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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024
Discussion Forum
Food Allergy Testing question
Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
CARF Conference 2018 Notes
Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Botox and FFA
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Trying a new approach with CBD oil...
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Comment Wall
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Comment by Celia on February 19, 2014 at 10:54am
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Thank you Rebecca - I am loathe to take it anyway ! I just googled it and one of the things is that if you are in contact with anyone who has shingles you must see your GP immediately !!!!!! My friend currently has shingles............I have gained weight since being on hydroxychloroquine, by the way, wonder if that is the case for any others. Pred apparently may increase the size of the neck and give you a bit of a humped back - oddly enough the friend with shingles was on steroids a few years ago - she put on weight and esp gained a hump at the back of her neck - oh my goodness - is it worth it !!!! Thank you !
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I wonder if any of you have ever taken prednisone and if so what were the side effects - did it help. I have been prescribed this as well as a steroid lotion the be used daily. Any comments please ? Thanks !
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Jean - we hope that 22 March will happen, but I would hope that we can arrange a Summer 'do' too without The Weather ! It would be great if you could be there.then. It's hard to have 100% of the group in the SE at the same time - hope you have a wonderful holiday ! Best wishes, Celia.
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Comment by Jean on February 13, 2014 at 2:49pm
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I would have loved to join you ladies because everyone is so supportive (nothing like inviting oneself)!
I'm on holiday from 19th March but would really like to be included if another get together is planned, please.
Have a great time
Love Jean
x
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Comment by Caro UK on February 12, 2014 at 1:49pm
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Really looking forward to seeing you all. Thank you so much C for the invitation X
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Comment by Pauline on February 12, 2014 at 1:30pm
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I would love to have met up with you all but unfortunately, I have something planned for that weekend - perhaps next time?! Kind regards to all Pauline x
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You're very welcome !
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Comment by Meme on February 12, 2014 at 12:52pm
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Thank you so much for organising this, looking forward to meeting every one.
Meme
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Jules, Pam, Polly, Caro, Claire, Meme are all OK for Saturday 22nd - that's brilliant !
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Great response thank you all. So right now we have the 22nd as the favoured date. x
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