Comment

Comment by claire on February 6, 2014 at 4:31pm

Thanks Terry for the reply. It seems that alot of the sufferers are in the USA, are you based in the UK. I think I have had this contition coming on for years. The first thing I noticed was my eyebrows thinning-they have gone completely now but I have had them tattoed which is great. I feel disappointed that little is known about this condition. It took the doctors and dermatologists nearly a year to make the diagnosis. It seems so obvious to me know!! Kind regards Claire.

Comment by claire on February 6, 2014 at 4:05pm

hi Terry,

I have been taking hydroxychloroquine for about 5 months. Initially I felt better but now my eyes stream every day and are very watery and sore. I am going to see my doctor tomorrow. I also had my eyes tested and the optitian refered me to my GP. I had blood tests and all was ok.

Just found this site and it is so interesting.

Claire

Comment by Brenda, IL US on February 6, 2014 at 10:01am

Celia my doc gave me a paper that i keep on my bathroom mirror and i check my vision daily.  There is a white dot in the center of a black square with vertical and horizontal lines creating little squares.  You cover one eye and view the dot from 14".  If any lines or squares are distorted, irregular, or wavy or if a blind area appears stop the plaquenil and see your eye dr.  A friend of mine on plaquenil for lupus had this happen but her vision returned to normal.  She cant take the drug anymore.

Comment by Celia on February 6, 2014 at 9:17am

Brenda - I do get that occasionally esp noticeable when driving.  How are people having their vision monitored.  Mine was just done by reading from a card in much the same way as when one goes to the optician - is there any other way that this is done ?

Comment by Debs on February 6, 2014 at 6:11am

Anti inflammatory food diet workshop in UK
KINGSTON UPON THAMES sat 22 Deb
www.rikidavies.co.uk

Ladies that are using a holistic approach may find this Worksop of help

Comment by Brenda, IL US on February 5, 2014 at 9:02pm

If anyone is experiencing any type of vision problem, such as blurring or trouble focusing please get to an eye Dr.  This is a serious side affect of plaquenil.

Comment by Rita - Canada on February 5, 2014 at 8:03pm

Sam, I have only started the rogaine lately but haven't been all that good about it. I never intended to do it twice a day, only the once.  Then when I put the tumeric fluid on (trying this instead of Clobetasol for inflammation on scalp), I feel it's put down a layer on the scalp that  the foam will not be able to penetrate through. I just watched a video online that mentions the scalp should be clean and none of the topik cover up should be there and that totally make sense.  I do use Topik to help disguise the hair loss at times.  I don't know, it's all a guessing game isn't it. No shedding yet as just started but I just know I will panic as well, too precious little there to start with.

Comment by Sam on February 5, 2014 at 7:49pm

Thanks ladies. Gosh, I can't seem to get over the original panic. I am sure the starting and stopping is not good either. Any estimates on how long until you noticed the regrowth? I that would help me stick it out until I see that but it stresses me out so much to see it fall out.

Comment by Annie on February 5, 2014 at 12:40pm

Sam, my shedding doubled about 2 weeks after I started using 5% rogaine foam.  It lasted for about 2 - 3 weeks, then I went back to my normal ffa shed.  There wasn't enough shedding to notice a difference in the volume of my hair, but it did freak me out at first.  Shedding is supposed to be a good sign that it's working for you by stimulating the hair follicles to replace old "dead" hairs with new and improved ones.  I also had itching and discomfort for about a month while my scalp adjusted to the rogaine, but I'm very happy with the results after 10 months of use. 

Comment by Jules UK on February 5, 2014 at 5:03am

Hi Sam, I did lose a lot more hair as soon as I started using Regaine. It lasted a few weeks. I panicked and brought forward my derm appt. however, it eased off and seemed to stabilise, until the sugar rush that is Christmas! Things have calmed down a little since returning to a more "measured" diet. But it was interesting to see how much of an effect diet possibly had.

• ‹ Previous
• 1
• …
• 315
• 316
• 317
• 318
• 319
• …
• 507
• Next ›
• Page