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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024
Discussion Forum
Food Allergy Testing question
Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
CARF Conference 2018 Notes
Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Botox and FFA
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Trying a new approach with CBD oil...
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Comment Wall
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Comment by ET on December 3, 2013 at 2:41pm
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Hey All, I'm wondering if anyone knows of a doctor in the Denver area that specializes in FFA. My sister who lives in Portland was diagnosed 2 years ago. I think I have FFA as well as my hair is receding.
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Debs, I would also love to see your fact sheet! I think I sent you a friend request...or at least I tried :). I have a call set up with Dr. T on Thursday...so hopefully can be part of the research! Thank you!
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Debs, it's a fantastic idea to create a fact sheet. Would you email me a copy, please? I've managed to opt out of email alerts somehow. I thought it had gone quiet! New eyebrows this week, at last. X
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Hi Rita, Of course, I will be most happy to. I really have tried so many different options and seen numerous doctors, some of which have published a lot on LPP (I have two forms of LPP: FFA as well as the 'classic' LPP elsewhere on my head; my FFA is most obvious and active). It has been such a journey. I am travelling at the moment but will write a detailed account of all the treatments I have tried, length of treatment etc., as soon as I am back home in London in a few weeks. It is not a happy ending unfortunately as nothing so far has seemed to work...
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Catherine, I for one, would be very interested in the treatments you've tried and length of time you tried each as well as the country you received the prescription from. I am sure we would all very much appreciate this information, please and thanks.
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Debs, I would love your fact sheet too (have sent you a friend request). Thank you so much! I have tried so many different treatments over the last year, and seen many doctors in the States, the UK and France. If useful for you all, I will happily summarize everything I have tried...
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Comment by Kath UK on December 3, 2013 at 11:20am
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Debs - great idea about the fact sheet. I'd very much like one, please. Have sent you a friend request.
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Comment by Celia on December 3, 2013 at 7:55am
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Thank you Carol for that info - I wasn't aware of some of that but it is good to know that things are beginning to happen !
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Fact Sheet - yes I would like one please! Brilliant idea. To give to my local derm as well, also local trichologist and skin/hair clniic. They all say they are seeing more of the condition, and would like more information. I think that the more we make people aware of FFA the better, and the higher the chance of some research being done into why it occurs, and what can be done about it.
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Brilliant idea, Debs, well done ! x
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