Comment

Comment by Debs on September 28, 2013 at 4:17am

Rita i knew nothing about wigs before i had FFA bit i have been told by a lady that has had alopcia since she was in her 20s that wig technology has greatly improved in the past 5 years, so nowadays as long as you get a name brand wig you will be ok.

I have bought wigs that resemble hairstyles i have worn in the past so it is basically the 'old me' not a new look... I have gone a bit mad a have 2 that are long and nothing like any previous hairstyles. Last week i bought my usual Ignite wig by jon renau but have a slightly different colour so i am now feeling comfortable enough to enjoy changing my hair colour.

Good luck, i am sure you will look lovely if you do decide to try supplemental hair but if course there are orher options like headbands, wearing a fringe etc..

Comment by Rita - Canada on September 27, 2013 at 9:50am

Debs, Thanks again- the wig site www.wigs.com is very helpful in describing the different aspects of buying a wig. You're quite correct though in that one has to feel that in the end,you look like you. I remember the wigs of the 80's and how we'd buy these fake looking masses/ plop them on our heads and think nothing of it when wearing to an evening event or wedding. The pictures are really quite funny.

Comment by Alice on September 27, 2013 at 8:19am

Has anyone here tried spearmint tea? I've been doing ome reaerch and it seems to have antiandrognic properties, similar to Avodart and spironolactone. I grew new hair on the top of my head while on the spiro, but had to stop it because my BP was too low. I've been offered Avo, but was afraid to take it. I'm thinking spearmint tea might be worth a shot. It's also supposed to help face breakouts, which I've had problems with recently. Any thoughts?

Comment by Debs on September 27, 2013 at 2:38am

Rita a name brand wig like Jon Renau is good quality. Hand-tied, monofilament, lace-front, fully wefted are expressions you will see... I could explain the meaning on here but it will be easier for you to just look at www.voguewigs.com and www.wigs.com websites are they will have full explanations on there with diagrams. My personal preference is synthetic hair (because it is light density and you don't need to style it), lace front (because it means I don't have to hide my front hairline because it looks like hair is growing out of my scalp). A monofilament top also looks very natural but is not absolutely necessary.

I suggest you go back to the store. Look for a style that you like and that you feel comfortable looking back at you in the mirror. If you find a style that you can 'recognise yourself in' if that makes any sense then consider getting that one. If a wig looks like you that is more important than the 'construction' which as I say will be of a good quality with any type of name brand wig.

Comment by Polly UK on September 26, 2013 at 7:38pm

Thanks Rita, I have ordered a trial Toppik in dark brown from a UK website.

Comment by Rita - Canada on September 26, 2013 at 9:28am

Polly, There is a product available here that we can purchase from 'Sallys', called 'Toppik' which are fibers that you sprinkle over the roots and comes in a few colors.Then a little hairspray to secure it in place. There is another brand called 'Illusion' which is the same type of product.The 2 websites are:
www.toppik.com
www.illusionhairfibers.com

Comment by Polly UK on September 26, 2013 at 8:10am

I'm feeling so much more optimistic now my body seems to have accepted the Hydroxychloroquine. I've been taking 2 tabs a day for 6 days and no nausea or dizziness. Have been on it for 5 weeks in total but most of that only taking one a day. The inflammation looks a lot less to my untrained eye and shedding a lot less hair too. Hope it's still like it when I visit my dermatologist next week.
I'm taking turmeric daily and ordered the turmeric extra which Debs recommended - I've replaced one of my turmeric tablets with one of those.
I'm definitely feeling fitter and have lots more energy now I'm eating healthier and exercising more (3 classes a week).
I wanted to take multi vitamin and found a hair, skin and nail supplement from Holland & Barrett which includes Biotin and taking 2 of those daily.
I'm also still taking Ferrous Fumerate prescribed by my GP because a blood test organised by my dermatologist showed my iron stores were low.
I've decided not to have my roots coloured as frequently and found if I wear a beret or similar hat during the day that conceals my grey roots. Does anyone know of a good colouring pen I could use to cover my grey roots for when I go out to dinner etc in the evening?
Thanks to everyone on here for sharing things that have helped them.

Comment by Rita - Canada on September 25, 2013 at 9:22pm

Debs,Carol- I went out to look at synthetic wigs & the store really liked and promoted the Jon Reneau synthetic. I tried to find more info on wig support but came up empty on what I was looking for and that is the way the wig is made. she mentioned something about hand .... and what would you suggest for the construction of the wig, please & thanks?

Comment by Polly UK on September 24, 2013 at 6:35pm

Hi terry - thanks for the Regaine/Rogaine info. If it works I will be interested in finding it cheaper online as I bought mine in Boots!! I think I've seen it cheaper on Amazon?
I asked my derm if he thought it was ok for me to use it as it says not to if you are on drugs to lower BP and I take 3 different tablets daily. He didn't think much would be absorbed through the scalp so I should be ok....but I'm not sure if he thought I was going to try the women's 2% version so I am going to keep a check on my BP whilst using it just in case.

Comment by Jules UK on September 24, 2013 at 10:25am

I'm pleased that Regaine is helping many of you; is there anyone who hasn't had success with it? I'm afraid it may be responsible for my increased hairloss and after 3 months, there's no sign of it helping at all. I know it doesn't work for everyone so maybe I'm just unlucky. I emailed Dr Harries yesterday for advice. No reply yet. X

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