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Comment by Debs on September 24, 2013 at 4:43am

Dee, I sometimes come up to Edinburgh, Glasgow and Aberdeen... If you are in/near any of those cities we can meet up for a coffee and chat. xx

Comment by Polly UK on September 23, 2013 at 5:02pm

I bought Regaine for men extra strength scalp solution on Sunday but reading on here I think I've got the wrong thing? As my inflammation is down at the moment I thought I'd try to thicken my hairline and see if it helps my eyebrows to grow back. I was having them tattooed last week but had to have a patch test first as I'm allergic to nickel so now have to wait a couple of weeks.

Comment by Polly UK on September 23, 2013 at 4:56pm

Hi Paula, it's interesting you are only taking one Plaquenil tablet daily and it seems to be working as I thought I had to take two a day for it to work. I'm struggling with side effects when taking two but no problems with one! I've been taking it for five weeks and my inflammation seems less at the moment but it could be Dermovate and/or turmeric helping too.

Comment by dee on September 23, 2013 at 3:06pm

I would love to be able to meet up with someone, anyone who has FFA. I'm on such a bundle of medication just now and feeling quite isolated. But I don't suppose there is anyone up here in the wilds of the Scottish Highlands. I hope you all have a productive and supportive get- together. Please post anything interesting that is shared. xxxx

Comment by dee on September 23, 2013 at 3:02pm

Comment by Celia on September 23, 2013 at 1:45pm

Hi Terry - are you close to London and if so perhaps able to join us for a get together on 9th October. e mail celiareeve@hotmail.com for directions if you think this might be possible. Best wishes !

Comment by Paula uk on September 23, 2013 at 11:01am

Hi Terry,
Thanks for the info, I take one plaquenil 200mg,I use clobestol foam shampoo each morning.I use Elocon steroid cream on my eyebrows and elocon scalp lotion on my scalp each evening.Of late I have reduced my use of the steroid cream and lotion as the inflammation seemed to have reduced considerably and I guessed it was from the plaquenil.so at the moment I am using them every 2-3 days.I'll keep a close eye on my scalp just in case.
Px

Comment by Debs on September 23, 2013 at 10:09am

Hi Terry, thank you very much for your info. I have never had much hair on my arms of legs, I have never needed to get my legs waxed for instance and use to just shave them once a week to keep them completely smooth. My eyebrows just fell out about 3 years ago - that said, I do have some eyebrow hair just not enough to look groomed.

At my age, 50 years, I have found that in the past 2 years I have only been menstruating about once every 6 months. However since July I have found I am back to menstruating once a month!!! There are 2 possible causes; I started juicing back in July and using Dr Weil's anti-inflammatory diet, I started plaquenil in March. I have also found that the skin on my body (arms/legs) is not dry any more and my hands look 'younger'. I think my improved diet is most likely the reason but maybe some other ladies have these symptoms that are using plaquenil.... whatever the cause I am quite happy with it. XXXX

Comment by Celia on September 23, 2013 at 3:42am

I have had an e mail from mobrsb - I haven't opened it - was not sure if it is from one of you or a spoof....if anyone emails me please refer to the get together in the title then I will know it is safe to open it - thanks !

Comment by Celia on September 22, 2013 at 8:25am

Thank you for messages re our get together. My e mail address is celiareeve@hotsmail.com for those of you needing directions. If you e mail me then I will send info, rather than here. Hope that's OK. So - the 9th October is the date and I hope that Paula can make that one ! So we are Julie, Sammi, Paula, Polly, Caroline, Pam, Debs and hopefully Heidi if she gets a message. Have a good rest of the weekend ! x

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