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Comment by christiekd on September 12, 2013 at 3:08pm

I had a setback about a year after taking plaquenil when everything was going fine for a long time. I believe it was because of stress in my life - my mother-in-law became ill, was diagnosed with cancer and died all in a span of about 10 days during this time. Afterwards, I started shedding again. It was a total relapse with itching and everything that went on for a while 3-6 mos. I also have to admit that I had been feeling so good for so long that I was not always remembering to take my medicines regularly.

When I went to my doctor, we started all over again with my meds: plaquenil, back on doxycycline, steroid creams, and steroid shots. I added protopic, and I also began Rogaine in earnest. Finally, I began taking tumeric after reading about it on here.

Well, it took a few months, but now I am back on track and am no longer on antibiotics. I am still taking everything else. My regrowth of eyebrows has been astonishing to me as well as the fine hairs around my hairline that have recently started growing. I thought they were gone forever. I'm also trying not to get too attached since we all know things could change rapidly.

From this relapse, I have learned a couple of important lessons:
1) Don't get lazy with my regimen of medication and lotions.
2) Try not to stress! I do this by exercising daily and taking time for me each day.

Comment by Annie on September 12, 2013 at 2:16pm

I have a question for those who have been on Plaquenil for a while. Did you continue to have flare-ups while taking it? I started taking it June 22. My doctor said it would take a couple months for it to affect the shedding. I felt like things were going fine until about a week ago when I started shedding a little heavier, and now my scalp is as tender as before I started taking the Plaquenil. Should I gradually get better, or will I continue to have setbacks while taking meds? I don't have another appointment with my doctor for another month.

Comment by christiekd on September 12, 2013 at 1:56pm

I agree with Carol. Using Rogaine has really helped by my hairline and my eyebrows. I would also like to add that using Rogaine along with Rapidlash has caused my eyebrows to fill in completely. While they aren't as thick as they once were, I now have hair all the way across. I even feel comfortable not wearing makeup on them, which a month ago, I would have never done. Feeling so much better about them.

Comment by Annie on September 12, 2013 at 10:36am

Alice, my doctor gave me completely different advice regarding Rogaine. He said to use the foam morning & night for the first 6 weeks, then once a day after that. He also said that if I chose liquid Rogaine to use it twice daily even after the first 6 weeks.

Comment by Sam on September 12, 2013 at 9:02am

Christiekd, do you mind sharing what lotions, potions and meds you are taking that are working for you? Which is great to hear btw.

Comment by Chrisy, MA USA on September 12, 2013 at 8:20am

Deb, I also had 3 sets of steroid injections about 10 weeks apart. I was ok with the first two sets but the third one really messed me up. I got some dents on my head where the injections went in which they dissapeared in about two months but my eyebrows are still suffering from indentation. It's been three months I stopped using the steroid cream as well and you can still see them. Unfortunately all the hair I gained on the euebrows by doing the steroid cream and injections are gone but let me tell you that dents on the eyebrows really look bad. It looked like somebody carved you with a knife. After three months things looks better but still there. It is hard to tell if steroid injections help with the hairline but it definitely help with the eyebrow hair but you have to keep getting them at least every two months.

Comment by christiekd on September 12, 2013 at 7:59am

I also have received injections - twice in a space about a year apart. Both times I got dents where the injections were placed, and both times they eventually went away. I also think they helped and would do it again if my hair loss increased again. Right now I am not losing any hair and have grown my eyebrows back. I am continuing to faithfully use all my lotions, potions and medication in the hopes of keeping things as they are now.

Comment by April on September 12, 2013 at 7:49am

Debs, I had one set of injections about 4-5 weeks ago. I did get a dent where the injections were placed. My doctor said it is a common side effect but does eventually go away.

Comment by Alice on September 12, 2013 at 7:09am

For those of you using Rogaine, what is the dosing? My derm said she reccommended staring out just 2 or 3 times week, but I failed to ask why. I'm wondering if starting slow makes a difference with shedding or irritation. I almost bought some at Costco yesterday but chickened out after reading the precautions on the box.

Comment by Sam on September 12, 2013 at 6:53am

I think the shots should just be done where you have hair so any indentions should not be visible. Of course if u lose that hair eventually it may be but mine were a centimeter back. I just did one so far but I can keep you posted.

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