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Comment by Debs on September 12, 2013 at 3:08am

STEROID INJECTIONS... can anyone tell me please... if you had steroid injections and it left you with dents in your head how long did it take before the dents went away? or do you still have the dents and they stay forever??? This may be my next treatment option and I can't find anyone on any alopecia site that has used these injections and not ended up with dents in their foreheads....

Carol, thanks for the info. I will check out this supplement, sounds like it has a bit of everything we need in it.

Comment by Debs on September 11, 2013 at 12:21pm

Hi Ladies, have just got back from a fab holiday in France. So been away from the site for a week. Liz, yes... I also have the old fashioned fillings in my teeth. I had my molars filled as a child due to the side effects of me taking tetracycline antibiotics as a baby for pnemonia... funnily that is the same drug we are being given for our FFA (it only effects babies future teeth not us as adults)...

Very hot on holiday. Used a synthetic wig (with open wefts) Jon Renau brand and also a couple of nice silk scarves... I was very comfortable in both options and the heat was not a problem.

I saw an article in the Daily Mail about EYELASH TRANSPLANTS... It is an expensive option but one that might be worth having a go when your FFA has stabilised. The article says surgeon Asim Shahmalak at the Crown Clinic in Manchester performs this procedure. I assume there must be other doctors that do it too. The procedure was invented in the USA apparantly.

Plus... I saw a couple of ladies on holiday with FFA. I mentioned it to my friends and they agreed that the hair loss was like mine. This is the first time I have noticed other FFA sufferers and had a friend with me to confirm I am not just being paranoid. I really feel this is not a rare condition just under-diagnosed.

Comment by Annie on September 11, 2013 at 10:49am

Hi all, I've been using 5% Rogaine since early April. My shedding doubled from week 2 thru week 4, then I went back to my normal FFA shed. It's true that you won't grow hair on the scarred areas, but some of the fine baby hairs around my face has grown back, which helps to cover the bare spots. My hairdresser noticed new hairs sprouting about two weeks after I started using Rogaine. I now have new hairs ranging from about 1/2 - 2 inches all over my head. Regarding irritation, my scalp was itchy & tender for about a month when I first started using Rogaine, but I slowly adjusted to it.

Comment by Jules UK on September 11, 2013 at 4:37am

Hi Rita, I've been using Regaine 5% since beginning of July. I've since lost loads of hair. I had expected some hairloss preceding some new growth to thicken up what's left but there's no sign of that yet! I've heard from others that it can take around 6 months to see a difference so I am sticking with it in the hope that it will work. Otherwise, I've had no side effects. This sounds demoralising, I'm sorry, but that's my experience so far. It would be interesting to hear from anyone who's had success with Regaine, especially if hairloss was very noticeable but then things did improve. X

Comment by Sam on September 10, 2013 at 10:20pm

I had the shedding, so much so I stopped it. I only did it for about a month. It also made my ears red and irritated so my doc thought I may be allergic. I am hoping what shed will grow back. But I do hear it works and shedding should be sign its working as better hairs should grow.

Comment by Rita - Canada on September 10, 2013 at 9:36pm

I saw my derm today and she encouraged the use of Rogaine 5% but I recall reading that several people had more shedding for awhile upon starting. Is this what most have experienced? Derm said this happens because the hairs that are just sitting there ready to shed get pushed out by the newly grown hairs. I understand no growth can occur on the areas where FFA has demolished.

Comment by Polly UK on September 9, 2013 at 11:33pm

I am also allergic to nickel!

Comment by Polly UK on September 9, 2013 at 11:31pm

Hi, I felt fine taking one Hydroxychloroquine 200mg tablet a day for two weeks but after four days of taking two a day I started feeling sick and dizzy so as we're on holiday this week I've cut back to one and already feeling better. Has anyone else had this problem? I am also taking iron as prescribed and applying Dermovate but just doing it once a day for convenience while on holiday. I had felt ok with both of those for past month so it has to be the increased Hydroxy dose...
Liz, I have a mouth full of amalgam fillings, in some cases it's more filling than tooth!

Comment by Rita - Canada on September 9, 2013 at 8:42pm

Maddy, I recall you were taking the same med Doxycycline 100mg only twice a day. Also Clobetasol on scalp twice a day. Do you see any difference. i see my Derm tomorrow. Did you also have those scalp injections ev.8 wks.?Thanks.

Comment by Liz on September 9, 2013 at 12:28pm

Hi Ellen. I'll have to find out about having my fillings replaced. I have 3 which have been in my mouth for about 30 years!
I am allergic to nickel. I have also had bouts of eczema which flare up from time to time and is made worse if I jewelry x.

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