Comment

Comment by Pam on August 25, 2013 at 5:25am

The consultants I have seen in the UK have told me that Regaine is unlikely to work with the type of hairloss associated with FFA. i have looked at the packet instructions on the Regaine, and it specifically says that it is more likely to work for women with top parting hairloss, not the frontal scarring type. I am concerned that initial use of Regaine can cause the hair to fall out - it should grow again, but maybe in our case it won`t! Then I`d be even worse off!
I have recently started taking turmeric thanks to all your advice, and think it has helped the inflamation a bit, and can`t do any harm.
I do worry slightly about the longterm use of hydroxychloroquine. Does anyone know about any know side effects of long term use? My consultant has said that i just need to get my eyes tested every year, as in a few rare cases it can affect vision, but otherwise just keep taking it for ever!
(Am very nervous about wearing my new wig! It is sitting upstairs, and I am just looking at it, trying it on at home, but not daring to go out in it!!! Help. I can`t face the comments I might get from friends and family when I firt venture out in it.)

Comment by Debs on August 24, 2013 at 11:47pm

Hi silversurfer the brand name is HEALTHWIZE it is made in the USA and the supplement is just called herbal HRT.

Terry fantastic idea about rogaine. I know that minoxidil is the only drug that is proven to prevent hair loss. This company has plenty of money to use in research for us too.

Comment by Liz on August 24, 2013 at 6:48am

Sounds an excellent idea Terry :o) x

Comment by Celia on August 24, 2013 at 6:34am

Well done Terry ! I am thinking about this ! X

Comment by silversurfer on August 24, 2013 at 2:06am

What is it called Debs

Comment by Debs on August 23, 2013 at 5:45pm

Ladies i know a few people that use herbal HRT to help with hot flushes. It is a herbal alternative to the regular HRT that doctors prescribe. A company called healthwize make it. It is supposed to really work.

Comment by Brenda, IL US on August 23, 2013 at 5:07pm

Thanks Debs! My hairstylist cut my hair shorter yesterday because of the hair loss. I think the scarves would work now. I'll give those a try first and maybe try a wig this winter. Carol I'm so glad your husband didn't even notice you had a wig on! I sweat horribly when i try to put makeup on. Doesn't matter what time it is. I wonder if this has anything to do with taking resveratrol. I'm trying to take so many new supplements now.

Comment by Debs on August 23, 2013 at 6:42am

Brenda, I can see that the humidity where you live would make a wig very hot indeed, luckily in the UK our colder climate is a real Godsend if you wear 'hair'. I wear a silk scarf, a long thin shape wrapped round my head basically in the same place that a headband would go and tie it in a double knot in the front and then just tuck the 2 end in. In silk material it looks expensive and a fashion choice. I have several nice silk scarves I have bought to match different dresses/tops. If I use larger earrings than I normally wear and no other jewellery it looks good. The silk scarves cost about £15 in the UK at Accessorize shops, I expect you can get something similar in the US. Good luck with finding a solution. XX

Comment by silversurfer on August 23, 2013 at 1:44am

that sounds just like me maddy. Sometimes I look as if I have run a marathon .my hair dripping wet. I will have to try taking turmeric to see if it makes a difference

Comment by Maddy, California, U.S. on August 22, 2013 at 9:56pm

I also get the head sweats really bad! It's always right around my hairline. Sometimes it actually drips. I get hot flashes too, but none of my friends ever get the hairline sweating. It must be connected to FFA. I am taking Turmeric too and have possibly also noticed a bit of a decrease in the hair sweats, but I can't be sure just yet.

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