Frontal Fibrosing Alopecia

Information

Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

Comment Wall

Comment

You need to be a member of Frontal Fibrosing Alopecia to add comments!

Comment by Celia on August 15, 2013 at 9:09am

Hl Mary and welcome - my heart goes out to you - we have all been there and it is horrible and such a shock.
Advice from me would be tell nobody initially - then at least if you need a wig then you can get away with it without people who do not understand , being perhaps more sympathetic than you can handle. Find a good dermatologist who has experience. Read as much as you can on this site - there is a lot of info here. I too am in my sixties.... there are ladies on this site who are half my age and I feel so deeply for them. Try to think positive when the dust settles (I am not always very good at doing that !) Have a good cry, mourn a little and then get cracking with a good diet, plenty of exercise, try turmeric capsules from the health food shop - some of us have had reduced inflammation with this - we think - can never be sure what is working really.
Where do you live ? Keep communicating - nobody minds if you 'sound off' on here as we are all in the same boat - it's still afloat and we aim to keep it that way. XXX

Comment by Alice on August 15, 2013 at 8:53am

I haven't taken the Rogaine plunge yet but probably will start soon. I had good results on my brows with Elidel cream. It's by Rx only but a small sample tube will lasr for months. Does anyone else have itchy or tender brows?

Comment by Chrisy, MA USA on August 14, 2013 at 2:55pm
Thank you Deb! Is clobetasol and dermovate the same thing??
Sorry I have so many questions....
Comment by Annie on August 14, 2013 at 2:20pm

Linda, the foam version of Rogaine won't drip when you apply it. It also has less alcohol, which makes it less irritating.

Comment by sammi on August 14, 2013 at 1:54pm

Pam regaine (uk) has really helped the fullness of my hair and I can't praise it enough! Dr Harries, my derm asked me to try it and my fringe area has thickened especially when I compare photographs of course it hasnt help the bald areas but I intend to contine using once daily, hope this helps Sammix

Comment by christiekd on August 14, 2013 at 12:48pm

Linda, if you want to try it on your eyebrows, just use a q-tip to apply the Rogaine. It doesn't drip at all because the cotton on the q-tip absorbs some of the solution. I find Rogaine has helped my eyebrows the most.

Comment by Pam on August 14, 2013 at 11:37am

Thank you Annie for your comments on using Rogaine. Also thank you to everyone else for such helpful advice. I am going to Trendco in London tomorrow to have a consultation (thanks again to all your advice and lovely pics of the new wig!) - it has taken me a lot of courage to get to this stage, and all your support has helped tremendously.

Comment by Annie on August 14, 2013 at 11:26am

Alice, the Rogaine has regrown most of the wispy hairs around the sides of my face that I thought the FFA had taken as well as thickening up areas around the bare spots. I've had the best results on the right side of my face where the FFA hasn't been quite as aggressive. It's true that you can't regrow hair in the scarred areas, but, for whatever reason, the hair follicles next to the sides of my face haven't scarred over. I decided to try Rogaine because of all the postings I've read about, the ones using it have had the best results of slowing down the progression of FFA. The derm that diagnosed me said Rogaine wouldn't help, but the one I went to for a 2nd opinion said I should try it. He suggested the 5% solution generic version. I get the foam version at Sam's in the US for about $34 for a 4-month supply.
Also, the new hairs that are coming in are the same color as the surrounding hairs and a little finer in texture.

Comment by Debs on August 14, 2013 at 9:44am

Chrisy, I don't get any itching either but my derm has asked me to use it, it is another way of trying to get the inflammation under control. I use disposable plastic gloves when handling Dermovate because it is very powerful and I don't want to get it on any other part of me, or indeed anybody else or my pets. xxx

Comment by Chrisy, MA USA on August 14, 2013 at 9:19am
May I ask what is the purpose of clobetesol? My derm prescribed clobetesol shampoo for the itching part but I only used it once bc I don't really have any itching. Does it help to calm down the inflammation as well??
 

Members (599)

 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2026   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service