Comment

Comment by Liz on August 9, 2013 at 2:16pm

My new wig! (below) x

Comment by Liz on August 9, 2013 at 2:15pm

Comment by christiekd on August 8, 2013 at 11:47am

Not sure how others are using Clobetesol, but here is how I do it: 2x per day for two weeks, then only on weekends for 5-6 weeks. Then I start all over again. My doctor says you have to keep "surprising" the hair follicles. This helps with sensitivity also because after 2 weeks your follicles get a little break for 5-6 weeks. Then I use the protopic on the days I don't use Clobetesol.

Comment by Annie on August 8, 2013 at 10:30am

Christiekd & Alice, thanks for your helpful information. I'll start using the Retin A on my hairline as well as face. Alice, I've stopped using the Clobetesol for a while & still have the tenderness, though not as severe. I also had stinging along my hairline when I had my hair colored on Tuesday. The stinging stopped when my hairdresser rinsed my hair. I'm wondering if it has something to do with the open follicles where I've recently lost hair. I've always had a sensitive scalp.

Comment by Debs on August 8, 2013 at 6:02am

Ladies in the UK - have seen this info on the Alopecia UK website, a lady used the company HEAD4HAIR.COM to get a hair system, she is very pleased with it. They do partial hair systems - this is just a piece to cover the front - exactly what we need with FFA - she recommends getting the 'swiss lace base'. The company are based in Manchester but you can send a template of the area you want covered in the post with a sample of your own hair. Prices seem to start at £129.00 Might be worth looking at for those of you that want supplemental hair but not a full wig. XXX

Comment by Lexi on August 7, 2013 at 9:12pm

Has anyone got any info regarding treatment with stem cells please. I've been looking into it but haven't come across anyone with FFA yet , although when I asked company I called they said they had patients with this condition . Would love some feedback if anyone knows anything .

Comment by christiekd on August 7, 2013 at 5:21pm

Annie, my doctor gave me the retin-A saying that there has been some success with people. Not sure exactly what it does. I know that he told me to use it on my hairline and my eyebrows. Also, he told me to use it all over my face for wrinkles - just an added bonus.

Comment by Alice on August 7, 2013 at 3:27pm

Annie, are you using any topicals on your scalp or hairline? My scalp was very sore when I was using clobetasol. It got better when I switched to tea tree oil for the itching. All I use topically now is Elidel along the hairline and on my brows. I've been on Plaquenil for about 6 months, twice daily.

Comment by Brenda, IL US on August 7, 2013 at 12:46pm

Annie, Thank you for the information about not using rogaine before or after coloring hair. I need to read all of the directions. I should not give advise without doing so. Sorry Terry. No wonder my hairdresser always washes my hair before she colors it.

Comment by Annie on August 7, 2013 at 10:58am

Christiekd, I have a question regarding your treatment regimen if you don't mind answering. What is the Retin A for? Is it to keep the hair follicles open by sloughing off dead cells? I have some samples from my previous derm & thought I might try it.

Also, for those that have been using Plaquenil for a while. How long before the tenderness along the hairline goes away? I think mine is from the topical treatments because I never noticed it before my diagnosis. I've been on the Plaquenil for 6 weeks now, 1 x daily for two weeks to give my body time to adjust to it & 2 x daily for 4 weeks.

• ‹ Previous
• 1
• …
• 381
• 382
• 383
• 384
• 385
• …
• 507
• Next ›
• Page