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Comment by Lexi on August 7, 2013 at 9:12pm

Has anyone got any info regarding treatment with stem cells please. I've been looking into it but haven't come across anyone with FFA yet , although when I asked company I called they said they had patients with this condition . Would love some feedback if anyone knows anything .

Comment by christiekd on August 7, 2013 at 5:21pm

Annie, my doctor gave me the retin-A saying that there has been some success with people. Not sure exactly what it does. I know that he told me to use it on my hairline and my eyebrows. Also, he told me to use it all over my face for wrinkles - just an added bonus.

Comment by Alice on August 7, 2013 at 3:27pm

Annie, are you using any topicals on your scalp or hairline? My scalp was very sore when I was using clobetasol. It got better when I switched to tea tree oil for the itching. All I use topically now is Elidel along the hairline and on my brows. I've been on Plaquenil for about 6 months, twice daily.

Comment by Brenda, IL US on August 7, 2013 at 12:46pm

Annie, Thank you for the information about not using rogaine before or after coloring hair. I need to read all of the directions. I should not give advise without doing so. Sorry Terry. No wonder my hairdresser always washes my hair before she colors it.

Comment by Annie on August 7, 2013 at 10:58am

Christiekd, I have a question regarding your treatment regimen if you don't mind answering. What is the Retin A for? Is it to keep the hair follicles open by sloughing off dead cells? I have some samples from my previous derm & thought I might try it.

Also, for those that have been using Plaquenil for a while. How long before the tenderness along the hairline goes away? I think mine is from the topical treatments because I never noticed it before my diagnosis. I've been on the Plaquenil for 6 weeks now, 1 x daily for two weeks to give my body time to adjust to it & 2 x daily for 4 weeks.

Comment by Annie on August 6, 2013 at 11:00am

Terry, I color my hair & use a generic version of Rogaine. You should not have Rogaine on your scalp when you color your hair or use it for 24 hours after, probably to avoid irritation. I found this information on the leaflet in the Rogaine box. Skipping a few applications shouldn't affect the results.

Comment by April on August 2, 2013 at 4:17pm

Rita, I have been grain free the past month, except for one time I had some rice. I think I feel better without it for now, so I will stay grain free for the time being.

Comment by Rita - Canada on August 2, 2013 at 3:29pm

Thanks April so do you strictly abide by the no grains which I think is the most difficult part of the whole Paleo approach?

Comment by April on August 2, 2013 at 2:59pm

Rita, I am currently eating a Paleo type diet. I am kind of doing a combo of Paleo and Specific Carbohydrate diet. I am doing this to try and clear up some other issues I have been having, but also hoping maybe it will have some effect on the FFA? I have been doing it for about a month now. I have been on a gluten free diet for 7 years so going Paleo was not a huge stretch for me, but it is definitely hard. You have to cook EVERYTHING you eat, which I hate, but it can be done. It really is more of a lifestyle than a diet. There is a book and website called Elana's Pantry which is full of great recipes including muffins, breads, and even bagels! I am not a doctor, just someone who is suffering from multiple food intolerances and immune issues, but I really think so many things are related to diet. I'm not sure if the diet is helping the hair loss, but it seems it may have reduced the itching I experience a bit. Also I have lost about 8 lbs. without really trying which is great! I agree that Dr. Weil's diet conflicts with the Paleo diet, yet both are supposed to reduce inflammation. What it really comes down to, I think, is that if you are having any food intolerances or sensitivities you need to eliminate those foods to improve your health. The Paleo diet approach eliminates a lot of the most common food offenders, i.e. grains, dairy, soy, etc., so it seems to be a good place to start for many people. There are some good books that can help you get started. Dr. Loren Cordain is the founder of the diet and has some good books. I can't say I follow any one diet exactly, but just do what works for me. Listen to your body most of all. Good luck!

Comment by Heidi Short UK on August 1, 2013 at 5:56pm

Hi everyone I haven't been on for a while! I stopped it coming through to my emails as there are so many on the website it was flooding my inbox! I hope everyone is well and enjoying this lovely weather, I wish every summer was like this.

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