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Comment by Annie on July 30, 2013 at 4:41pm

Alice, I have been taking Spironolactone for about 6 years to control my oily skin. I don't know if it helps to grow hair, but my doctor thinks it may be the reason my FFA hasn't been as aggressive as some. I'm still taking it along with Plaquenil.

Comment by Alice on July 30, 2013 at 2:29pm

Has anyone tried spironolactone? It's an oral BP med with anti-androgen properties. I took it for a while and sprouted lots of new hair on top. Stopped taking it due to loe BP but new hair is still there.

Comment by christiekd on July 30, 2013 at 2:08pm

Debs, I use the rogaine last after clobetesol or protopic.

Carol, I'm glad you discovered Smart Brow. I can even go swimming with it on and it doesn't come off. And sometimes, if I don't take it off at night, it stays on the next day too.

My derm is very aggressive with this disease. If this was not working for me, he told me he has other drugs that we can try. Although he says the other drugs have a lot more side effects than what I am currently on. I don't know what the other drugs are, but I am really hoping I don't find out. I'm hoping I will continue to have success with what I am currently on.

Comment by Debs on July 28, 2013 at 2:23pm

Christie thanks for your treatment regime. Can I ask please do you apply the rogaine before or after the clobetasol ? XXX

Comment by Annie on July 26, 2013 at 4:32pm

I use the men's strength Rogaine per my doctor's advice. He also said that the foam version only needs to be applied once a day after the first 6 weeks of use. You need to be prepared for extra shedding from the 2nd through 6th week when you first start using it. This a good sign that the new growth process is taking place. My hair loss probably doubled during that time.

Comment by April on July 26, 2013 at 3:21pm

For you ladies using Rogaine, are you using the women's strength or the men's strength? Thanks!

Comment by Annie on July 26, 2013 at 1:46pm

I've been using Rogaine for 3 months, and it has has made my eyelashes thicker & longer even though I use it only on my scalp & eyebrows. I also notice that I have to shave my legs more often (which I could have lived without). I'd also lost a lot of the hair on my left arm, which is starting to regrow. I am definitely a fan of Rogaine. I just wish I'd started using it sooner. I'm growing wispy hairs around my face that I thought the FFA had taken.

Comment by christiekd on July 26, 2013 at 1:39pm

My sister noticed the same about my arms when we travelled over spring break. Right now, I do have more hair in my arms as well.

With protopic, I do use it on my hairline trying not to get too much on my hair itself. Between that and rogaine, my hair does feel a bit greasy, but because I have curly hair, it's isn't too bad.

Comment by christiekd on July 26, 2013 at 12:40pm

Pam, I'm not totally sure if the rogaine works, but I do see hair regrowth where I had lost some recently. It's not coming in fully, just sparsely, but I figure that it must be helping where I haven't lost hair yet and perhaps it helps where I have cut the inflammation short and the follicle hasn't scarred yet. In terms of eyebrows, I think the rogaine helps as I have been able to regrow them back. By the way, I have very blond eyebrows, so I tint them every three weeks or so, which really helps the illusion of fuller brows.

Finally, rapid lash is for both eyebrows and eyelashes. I haven't used it much on eyelashes, but it seems to be working for my brows.

Also, I can tell when I am doing better with this disease because I grow more hair all over - arms, legs, etc. I find I have to shave my legs way more frequently right now. I dont think I shaved them at all this past winter. Just thought I would add that in.

Christie

Comment by Kath UK on July 26, 2013 at 11:27am

About wearing wigs - Debs has given excellent information.
I wear what I suppose is a 3/4 wig - it covers my forehead and mixes in with my own hair at the back of my head. Works well for me. I had my own hair highlighted (my hairdresser was very careful) so my hair matches the piece.
I wear an Ellen Wille piece which cost about £135. Bought two at a wig store - not online but I'd try online next time. They are lace front, acrylic and look natural and should last 4 or 5 months after which I believe I could use one for swimming (haven't tried that yet....) The piece attaches to my forehead with sticky tape and has 3 clips at the back which clip into my own hair. Comfortable to wear and I brush my own fringe (bangs) back when I put on the piece.
The wigsupport.com website is very helpful and will give suggestions on wigs and wig care. So should the wig store.

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