Comment

Comment by Alice on July 17, 2013 at 6:53pm

Simone, I am taking plaquenil snd the last time I saw my derm she scheduled a recall visit in 6 months. I think she will do some blood work then. I see my eye doc once a year. I found clobetasol to be very irritating, something I surely don't need.

Comment by Alice on July 17, 2013 at 6:48pm

Comment by Annie on July 17, 2013 at 3:43pm

It's interesting how different the advice can vary from doctor to doctor. Mine said to rub the Clobetesol on the affected areas of the hairline going back only 1/4 inch. I used it for two months, but it made my scalp so tender that I couldn't even stand to go outside on a windy day. I finally gave up & stopped using it a week ago. I can't tell you how much better my scalp feels.

Comment by Jules UK on July 17, 2013 at 3:08pm

Re steroid cream/lotion, I was told to rub it in along the hairline and up to 1 1/2 " back, twice a day. But because I was worried about thinning skin and didn't have redness, I left it off. I suggested that the hollows were because I'd lost weight but the GP didn't think it was that. It's not like thinning skin.
With Regaine, Dr Harries didn't exactly recommend it. I asked about using it and he said it was worth a try. He doesn't discourage anything as long as it won't cause harm. X

Comment by Rita - Canada on July 17, 2013 at 2:59pm

I was told by my GP that I had thinning(atrophy)of the skin where I put Clobetasol Liquid on.She never really said where to put it and I guess I was wasting my time& thinning my skin by putting it on where hair has already disappeared. Who got clear direction on application method? Who just applies where the itchiness occurs & who applies it here & there where the rest of your hair is.?Do you apply sparingly? I haven't found a great way to do so. Thanks.

Comment by PamW San Diego, CA, USA on July 17, 2013 at 2:53pm

Hi, Jules. My derm said to be careful with the clobetasol because it could cause your skin to get thin - could this be what you are experiencing?

Simone, I see my dermatologist every 6 to 8 weeks and the eye specialist once a year.

Thank you Debs for representing us.

I have a question about Rogaine: Did Dr. Harries recommend this? has he seen improvement with it?

Comment by Simone NJ USA on July 17, 2013 at 2:47pm

Hi Ladies...for those on Plaquenil...how often did your Derm recommend for followup visits?

Thanks...x

Comment by Jules UK on July 17, 2013 at 2:33pm

I think it does vary from Trust to Trust, sadly! I couldn't have it on the NHS. I did ask. X

Comment by Liz on July 17, 2013 at 2:02pm

Hi Jules. I got my Regaine prescribed on a normal prescription. Do gps have different rules depending on where you live? x

Comment by Jules UK on July 17, 2013 at 1:23pm

Hi everyone, re Dr Harries steering group, I've asked Debs if she'd be our rep instead of me and she's kindly agreed. She has been a reliable, invaluable presence on this forum who has done so much research on our behalf that I thought she was the natural choice. So good luck, Debs, and thank you!
Another matter - I asked my GP for a private prescription for Regaine foam and it cost £88 for 6 months supply. In Boots, they said that was almost half price. I asked for the 5% concentration.
Also, my GP said that I seemed to have lost some subcutaneous fat from the sides of my face near the hairloss, forming hollows. He thought it might be connected with FFA. Anyone else notice something similar? It'll save me sucking in my cheeks for that Marlene Dietrich look!
Xx

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