Comment

Comment by Donna on July 14, 2013 at 8:50pm

Hi Rita. I am in Saskatchewan, Canada. Where are you? I have had my eyebrows tatooted for 7 or 8 years now. I would not delibertly give up real eyebrows for this but when you have no eyebrows left it is a great solution. This year when I was getting my eyebrows touched up I got permanent eyeliner and I love it. I have very sparse lashes left so it gives my eyes some definition and I don't think it looks weird and so time saving when doing makeup. Main thing is to be sure the person doing it is very experienced abd has a good reputation.

Comment by PamW San Diego, CA, USA on July 14, 2013 at 8:28pm

Itchiness is definitely part of FFA and LPP. I think it is because of the inflammation, which is destroying the follicle. I have been taking a vit d supplement for many years now.

Comment by April on July 14, 2013 at 8:23pm

Hi everyone: ) just wanted to add that I just had my vitamin d levels checked and I was also very low, have started a supplement. Also, I have not experienced the sweating, but I do have itching all over my entire head, forehead and sides of my face. Does anyone else have this? Is it related to FFA? My doctor doesn't think it is related but I'm not so sure.

Comment by Liz on July 14, 2013 at 7:20am

Hi everyone. Hope you are all enjoying the sunshine :o) I have just had the most fabulous week in Cornwall. Whilst I was a way my mum had a diagnosis of FFA by a dermatologist where she lives. Her dermatologist said it was the first case of FFA that she had ever seen. Anyway, I'm guessing that confirms a hereditory link, or that mum and me passed under a toxic cloud some years back. Hope you all have a fab rest of your weekend xx

Comment by Annie on July 13, 2013 at 10:07am

Terry, I had some sweating while my body was adjusting to the topical steroids the doctor prescribed for my scalp. This is normal and just lasted about a month for me.

Comment by Rita - Canada on July 13, 2013 at 8:46am

Hello Terry,re the Vit.D low levels.I too, had same & both MD & Naturpath said most people who live in our climates have such.I take 5 vit.D.Drops (5,000 IU) & have brought level up.Re sweating-I've had upper body incl.head ever since peri-menopause(15 yrs.+, could be from menopause or from a med one is taking but not aware symptom of FFA. Re tattoed eyebrows-could do that, eyelashes-a bit nervous but the results as Deb has experienced would be welcomed.

Comment by silversurfer on July 12, 2013 at 5:21pm

just had my eyebrows tattooed. Am taking bad seeing eyebrows lol

Comment by Jules UK on July 12, 2013 at 3:57pm

Hi Debs, by anti- inflammatory do you mean you're going gluten free or paleo? X

Comment by Debs on July 12, 2013 at 3:32pm

I had a consultation today with Dr Harries. I have been taking the hydroxychloroquine sulphate for 4 months (2 a day). The sides of my hair and temples have not lost any hair but my front hairline has. I am going to take the drug until November (so for another 4 months) and then go back to see if the hair loss has slowed down. I know this drug takes a few months to get into our systems and I don't get any side effects so I will carry on till November and see how it goes. I also continue to use my turmeric supplements. I am going to start changing my diet and adopting the anti-inflammatory diet approach to try and give myself every possible chance of sorting this out. I do feel positive that whatever happens I have done my best, as we all have, to get this FFA under control. Have a fab weekend. XXXX

Comment by Jules UK on July 12, 2013 at 4:42am

No weight gain, but I swear by the 5:2 fasting diet. Very hard on the fasting days but great on the days off! X

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