Comment

Comment by Celia on July 12, 2013 at 4:27am

Has anyone noted any weight gain associated with Plaquenil - I have gained 4 kilos since starting this - not good ! Still losing hair !

Comment by Debs on July 12, 2013 at 2:46am

Hi Annie & Rebecca, many thanks for that info. Glad the minoxidil is helping to thicken up your remaining hair and eyebrows. XXXX

Comment by Annie on July 11, 2013 at 5:11pm

Perhaps I should clarify my earlier post regarding Minoxidil. I should have said that it has worked great for the areas that haven't been affected by the FFA. Unfortunately, those spots are still bare. I have been able to regrow a lot of the short baby hairs around my face, which helps to cover up the bare spots. I use it on my entire scalp to thicken up the existing hair as well as on my eyebrows, which haven't been affected yet. As an added bonus, my eyelashes have gotten longer & thicker. Maybe the FFA will take longer to advance if there's more hair follicles to attack. One can always hope....

Comment by Debs on July 11, 2013 at 2:44pm

MINOXIDIL (also called rogaine and regaine) Hi Ladies, this is very interesting that the minoxidil is working for you. The first person that diagnosed FFA for me was a trichologist at the Belgravia Hair Loss Clinic in London. This was after my GP had told me I had alopecia but did not know what type! She told me to go back to my GP and ask for a scalp biopsy to get the FFA confirmed. I was supposed to go back to the trichologist and she was going to put me on a strong formulation of minoxidil but I did not go back and have been seeing dermatologists ever since.

How many of your ladies have used minoxidli ? Has it worked for you all?

Comment by Annie on July 11, 2013 at 10:57am

Terry, I have had good luck with the men's 5% Minoxidil foam. I have been using for 3 months at the recommendation of my doctor. I have regrown a lot of the fringe around my face and have new hairs about an inch long all over my scalp. I did have an initial shedding from week 2 through week 6 after I started using it. This is normal, and a good sign that new hairs are growing in and pushing the old hairs out. It's not easy seeing all those lost hairs on your bathroom counter when the last thing you want to do is lose more hair, but I honestly think that that Minidoxil is the only thing I've used since my diagnosis 4 months ago that makes me feel like I'm actually seeing some positive results.

Comment by Alice on July 11, 2013 at 9:22am

I am also bothered by lot by an itchy, sensative scalp. It sounfs weird but the thing that seems to calm it down best is drinking oolong tea. I read that it helps psoriasis and eczema, so decided to try it. I now drink it daily, hot and iced. For topical relief, I rub in some tea tree oil. Both can be ordered from Amazon at reasonable prices.the Clobetsol was too strong for me.

Comment by PamW San Diego, CA, USA on July 10, 2013 at 5:41pm

I have heard of the interlace system, but not sure if it is an option for me since my scalp is very sensitive and itchy. Not everyone of us experiences scalp discomfort. I think I am more bothered than most.

Comment by Jules UK on July 10, 2013 at 1:18pm

Thanks Debs, I'll look into it. Xx

Comment by Paula uk on July 10, 2013 at 12:42pm

Hi all,
You know ladies,I just don't know how I feel about this " thing" I have . Im just going along with what Dr Fenton recommends, hydroxychloriquine, prednosoline , clobestal foam shampoo, elocon cream and scalp lotion!I think I feel indifferent to the whole thing ...

Comment by Debs on July 10, 2013 at 8:20am

Jules you can buy generic cheaper versions of minoxidil online. I have not used it but I did check it out last year. Regaine is just a brand name, Boots chemist do their own version and so do a few other companies. Xx

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