Comment

Comment by Jules UK on July 3, 2013 at 5:24pm

At my last appt with Dr Harries, he mentioned Finestride but the side effects outweighed any potential slowing of hairloss. Notably loss of libido, and at my age.....
I have tried homeopathic treatments but found that they really had nothing to offer. Although I do agree with Debs that investigating natural therapies like turmeric could be useful.
X

Comment by Debs on July 3, 2013 at 3:22pm

Thanks Liz for clarifying the side effects. I am not going to take it if I am offered. I don't want to pursue drug treatments for much longer, not unless research can prove a drug is effective and has minimal side effects. I am healthy apart from my FFA and I don't want to conpromise my health using drugs.

Comment by Liz on July 3, 2013 at 3:11pm

Hi Debs. When I was prescribed Avodart Dr Farrant said that not only should I ensure that I dont get pregnant I should do a pregnancy test each month I am on it to doubley make ure. Apparently the effects on an unborn child are devastating x

Comment by Debs on July 3, 2013 at 1:26pm

The info online about the Avodart drug does make pretty grim reading, it states that it should not be handled by children, adolescents and women.... It is surprising that it is being prescribed for FFA, even if its efficacy is proven the side effects may well be unacceptable.

Comment by Debs on July 3, 2013 at 1:18pm

Hi Celia I go back to see Dr Harries next week, 12 July, I will ask him what success rates have been recorded with Avodart. I have been taking the HYDROXYCHLOROQUINE since the 6 March and the hair loss has definately continued. I will let you know what I find out next week. Xxxx

Comment by Jules UK on July 2, 2013 at 1:53pm

Hi all, I've just been catching up on posts. Somehow I managed to switch off email alerts..... So welcome to our new ladies.
Re focus group with Dr Harries, there's a meeting in August and he's sent me a 75 page document to read, so I'll make a start on that tomorrow. It seems to be about the protocol of patient/clinician partnerships.
Still taking turmeric and plaquenil. My strategy for dealing with this at the moment is "head in the sand". I try not to look :) it's helping me to forget and get on with things. Hope it doesn't sound to dismissive. X

Comment by Liz on July 2, 2013 at 12:39pm

Hi Celia
I dont think that I shall go back to Salford.I'm just going to let my body do what it needs to do. I considered Avodart but its a strong drug with side effects and never designed for the hairloss that we have so I'm not going to take it. A drug which treats FFA specifically needs to be formulated and then I'll consider it.Maybe if we keep agreeing to take prostate and malaria drugs no specific drug will be designed. After all we are only women and as women we are used to being fobbed off (cynical me talking :o)) xx

Comment by Celia on July 2, 2013 at 9:20am

Liz - as far as I was aware - Avodart was an option which apparently is increasing in 'popularity'. There was no mention of cost. When do you go back to Salford ? I would really like to know some stats as to the effectiveness of these treatments. I asked about the questionnaire that some of us completed - apparently it is with a derm in Sheffield who is considering the implications.

Comment by Liz on July 1, 2013 at 7:00pm

Celia. When Dr Harries mentioned Avodart did he say that he would consider prescribing it to you? My derm prescribed it but I was told that it is a private prescription only drug and therefore costs about £210 for 6 months supply.

Comment by christiekd on July 1, 2013 at 6:04pm

Thank you, Annie, for the helpful hints. I use Rogaine (men's) as well on my hairline as well as my eyebrows. I think it works wonders too. Also, using self-tanner is a great idea. Plus, remember to use sunscreen as this part has probably not been as exposed to the sun as the rest of the face.

Also, I can't stress enough to find a really good hairdresser. They can do wonders. My hairdresser told me that she has uniquely cut women's hair who hardly have any at all and she does a really good job. You can hardly tell. She does wonders with my hair and said she could even help me if I lose more around my face. So be honest with your hairdresser. They really can work magic and have seen a lot of different kinds of hair problems.

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