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Comment by Celia on June 25, 2013 at 7:24am

Sandy - thanks for the info.
I was looking back and you were one of the first ladies to comment on this site. It started one year ago today. You have come a long way and sound soooooooooooo upbeat now ! That's great ! How short is your own hair now ? Do you go to a salon to have it cut now and again ?

Comment by PamW San Diego, CA, USA on June 25, 2013 at 1:48am

Thanks, Sandy! Last summer when I thought my hair loss was going to be more rapid, I purchased a topper, which has to be clipped in. I liked it because it looked like my bio hair, but I could not tolerate the clips since my scalp is so sensitive. Also, it lays flat, you can't get any height. Some of the synthetic wigs look so stylish and pretty. So, up close it doesn't look to wiggy?

Comment by dee on June 24, 2013 at 4:18pm

Kath - thanks for your comments. Funny thing is my hair has always been a pretty miserable affair, fine, floppy and a mousy brown but how I treasure it now. I don't think I can do a part head of hair even for in private. So when do you shave off what's left and go down the scarf and wig route ? Anyone like to share their personal experience ?
I also don't want people to think I've had chemotherapy and feel concerned and sorry for me. So will I tell more people?

Comment by PamW San Diego, CA, USA on June 24, 2013 at 4:10pm

Sandy, are you comfortable? Does it feel like you are wearing a helmet? Also, did you try any on in a shop before you started ordering on line?

Comment by Jodie UK on June 24, 2013 at 2:32pm

Debs- thanks for all the info on essential oils, I have already ordered these, and will keep you posted about how I am doing with them, wether I feel they are making a difference.

I know there are a lot worse things that can happen in life than FFA, and I am slowly beginning to accept it, and I am getting on with my life regardless of FFA ,but I will never stop looking for and trying things that I think might help.

Comment by Kath UK on June 23, 2013 at 5:11pm

Dee, please don't feel ashamed of freaking out about your hair loss. I sympathise with you because I too did a fair amount of freaking out when I first realised that my hair was disappearing but I've had several years to get used to the idea.
The fact that wearing a hairpiece could actually be fun and even empowering came as a complete surprise to me.
I really liked Sandy's approach to wigs - that she just' plops one on' and off she goes!

Comment by Debs on June 23, 2013 at 3:39pm

Celia I do hope that the hydroxchloquine will work out for you and this side effect of hair loss is just a temporary thing where the hair will grow back. I would like the cause of FFA to be isolated but no doubt it is a mixture of our genes, environment etc.. all acting together. So many women are now being diagnosed, which is dreadful but maybe with more patients the doctors can find an effective treatment, I wish they would do research into some of the natural alternatives because they have been shown to be effective in other autoimmune conditions. Then we could have a definitive dose of turmeric to take. XXXX

Comment by dee on June 23, 2013 at 3:16pm

You are all so positive and pragmatic about stuff like wearing wigs and accepting the hair loss. I feel almost ashamed to still be whimpering and freaking out about what is a tiny loss so far. I am so impressed by your strength.

Comment by Debs on June 23, 2013 at 3:04pm

Jodie, you need to put the essential oil in either a carrier oil or a lotion (one without any perfume, Simple moisturiser is OK). I am using jojoba oil as my carrier oil.

10ml of jojoba oil (or 10ml or Simple lotion) to 5 drops of essential oil is the usual ratio.

I have used different essential oils before but not turmeric.

I am going to put some lavender in my blend because it is healing for the skin, you can use it undiluted on burns in fact and it will make the blend smell nice. Lavender has been used in hairloss essential oil blends. It is best to keep the blend simple with just 2/3 essential oils. I am going to put a few drops of the blend on my fingertips and work it through the first inch of my hair. Turmeric is applied topically for skin conditions with success so it can't do any harm. (You might want to do a small patch test first just to make sure you are not allergic to anything in the blend before you put it on). Jojoba oil is not greasy so it should sink in and not leave stickiness. Alternatively you can put the essential oils in a cheap Simple lotion and that will sink in nicely I have used Simple before to carry essential oils.

I will use 3 drops turmeric and 2 drops lavender in 10ml jojoba oil.

www.oshadhi.co.uk 01223 242242
organic jojoba oil £6.75
turmeric essential oil £9.75
lavender £3.49

I love the smell of essential oils and find them very relaxing so it will be a nice treatment to use.

Comment by PamW San Diego, CA, USA on June 23, 2013 at 10:27am

Sandy, what kind did you get?

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