Comment

Comment by Debs on June 14, 2013 at 3:46am

Liz, thanks very much for your info. I really feel that the trigger for FFA is something in the environment that we are all in contact with, like your derm says insecticides or something similar. Liz, I nearly fell of my chair when I read your post... I didn't know my vulva needed to be included in a study of FFA... Good grief what next... I hope this is just the ladies with lichen planopilaris... The fact that so many women are now presenting with FFA is very sad however the upside for us is it is being seen as a condition worthy of study so lets hope we can get a more treatment options soon.

Hydroxychloroquine sulphate - I have been taking 2 pills a day since 6 March and the sides of my hair and temples have stayed the same but more front hairline has continued to shed hair. I see Dr Harries on 12 July. I know this drug takes a few months to get into your system so I am giving up all hope but it is interesting that Liz's derm has said doxycycline is a prefered treatment option if tolerated.

Comment by Celia on June 13, 2013 at 5:45pm

Hi Heidi - no repeat prescription - unless I go into London and have another expensive consultation !

Comment by Celia on June 13, 2013 at 5:40pm

Sorry - just reread what you said and you have tried minoxidil (in Regaine ?)

Comment by Heidi Short UK on June 13, 2013 at 5:40pm

Hi all
Celia_ I used Philip Kingsley products about a year ago but it was just the shampoo,conditioner and tonic not the 3M drops. I got mine online but Charlie works in a salon who stock some PK products so you could try a local salon, but I don't expect they could prescribe! Sorry I'm not much help! If you have already been to their clinic can't they give you a repeat persciption!
Jane you sound like you have had a nightmare! I wish you well, your luck must change soon!x

Comment by Celia on June 13, 2013 at 5:39pm

Liz - are you going to try the doxycycline again - I stopped because I started getting a rash on my face. I am taking hydroxychloroquine now and am losing more hair than before - confusing to say the least - have you tried Rogaine ? x

Comment by Liz on June 13, 2013 at 5:22pm

Hi Celia. Thanks for the information. I tried Doxycycline but I kept getting thrush so I gave up after a couple of months and I used the Minoxodil but it made my eyes burn...The things we are willing to try in the hope of keeping our hair! x

Comment by Celia on June 13, 2013 at 5:17pm

Hi Liz - good news that you are now reunited with your derm - I remember you saying there was a long wait between appointments. When I saw Dr Harries last time - he suggested Dutasteride and said that it was growing in prominence in the literature about hairloss, and gave me a leaflet about it. It says 'This medicine is for men only. It must not be taken by women, children or adolescents.'
It's used as you probably know to treat men with an enlarged prostate. I read the entire leaflet. I've copied a piece below for you.........................

Originally Posted by WomensHairLossProject View Post
Are doctors starting to prescribe Dutasteride for the treatment of women's hair loss as well? I know that Propecia is prescribed for some women, like those not planning to have kids anytime soon, but I just read today that a woman is taking Dutasteride so I'm curious if this is common ??

If doctors are starting to prescribe dutasteride for women with hair loss, it is certainly not “mainstream.” There have been several studies examining the use of finasteride in women with hair loss and the study with the most scientific validity essentially showed that there was no significant response. DHT has not been proven to be a mediator of hair loss in women and therefore its reduction, whether by finasteride or dutasteride, does not make sense as a treatment. However there are a few anecdotal reports of some women responding to finasteride. So the shorter answer is no, it is not common to treat female pattern alopecia with dutasteride. I would stick with the proven treatment of minoxidil.
__________________
James A. Harris, MD, FACS
Member, International Alliance of Hair Restoration Surgeons
..............................................................

It's interesting that your derm is seeing more people with FFA. There was no mention of paying privately for the drug.

I hope you get on well with the Doxycycline, Liz. Best wishes. x

Comment by Liz on June 13, 2013 at 4:25pm

Hi. I hope that everyone is well. Today I went to my local dermatologist.I hadn't planned to as I see Dr Harries and also wasn't sure about my local derm. However I'm glad that I did. He was helpful and told me a few things that I didn't know. He feels that Doxycycline is the best way forward with this disease if it's tolerated well by the person taking it. He said that less and less people are being prescribed Hydroxcloroquinine (I am not sure if he said that to me to make me feel better about not taking it) He then prescribed me Dutasteride which he said is been used more. However I may have to pay privatly for it due to licensing of the drug. He says that he feels that pollutants such as the spraying of insecticides may well have caused this disease and that they are doing more and more studies. He hopes that towards the end of this year they will be getting as many people involved in the studies as possible. He said that due to the conection with lichen planus they (dermatologists) were hopeing to study hair, nails and the vulva.He seemed very enthusiastic today and when I told him that I had seen Dr Harries becuse I felt that he had left me too long after giving me such life changing news he said that they were now putting on more clinics and that he was meeting ladies with this disease on an almost daily basis. xx

Comment by Celia on June 12, 2013 at 4:33pm

3M DROPS from Philip Kingsley.......... I tried to order some more online today as I have done in the past but was told there has been some legislation banning PK from keeping the 3M drops on the premises. Apparently one can only get these on prescription now from PK's clinic. To do so now I would have to have a follow up appointment (cost about 115 pounds)The drops cost 50 pounds a bottle. Heidi - I remember that you used to use PK's products - any ideas on how to buy the 3M drops ? I told the receptionist on the phone that there was no point in a follow-up apt with a trichologist as I am already seeing a dermatologist. The 3M drops have minoxidil in them - still not sure about trying Regaine, but I know that some of you have had some success with this.

Comment by sammi on June 11, 2013 at 2:58pm

The beautician told me of a product called revitalash for helping eyelashes x An American doctor invented it for his wife who lost her eyebrows and eyelashes to treatment for cancerx

• ‹ Previous
• 1
• …
• 406
• 407
• 408
• 409
• 410
• …
• 507
• Next ›
• Page