Comment

Comment by sammi on June 6, 2013 at 2:20pm

Just been reading the reports and case studies of theScottish dermertology hair conference FFA mentioned in many of the cases makes interesting reading though quite technical!

Comment by sammi on June 5, 2013 at 3:16pm

Hi Celia I dont intend to stop using it as it has made such a big improvment to the front part of my hair it only takes 2 mins to apply at the front of my hairline and when I compare a photo six months ago I am amazed how thicker my hair appears. I live in Altrincham nr Manchester my medical history is on my site Sammi

Comment by chris for hair on June 5, 2013 at 12:04pm

The recipe I use is a bit different than the one the client gave me, I take one lemon, two cloves of garlic, about the same amount of ginger, 1 teaspoon turmeric, one tablespoon raw honey and one chunk of jagery gur (an Indian sugar) chop it all and add water and ice. If there is enough sweetener it actually tastes good, but isn't bad with less sweetness. The Gur is an unprocessed sugar that is actually healthy and diabetics can eat it.
The original recipe says drink 1/2 cut twice a day but mine makes about three cups. The original recipe also says you can add ingredients like Aloe Vera juice. I did end up having to have a cortisone infusion, but this recipe made an amazing difference in my pain levels. Since all ingredients are anti inflammatory it should be beneficial to any autoimmune condition.

Comment by PamW San Diego, CA, USA on June 5, 2013 at 11:52am

Hi, Alice. Is the shampoo drying?

Comment by PJ - MN, USA on June 5, 2013 at 11:51am

Chris - I'm interested in your "magic tonic". Can you share the recipe/amounts of each?
Rebecca - I just started using Elidel cream about a month ago on my eyebrows (for regrowth) and along hairline (for the bumps). To early to tell of any changes. I have not heard of actually putting it in the hair though.

Comment by Celia on June 5, 2013 at 11:45am

May we have the recipe please Chris. Thanks !

Comment by chris for hair on June 5, 2013 at 11:40am

A little off topic, but Alice's comment about Tumeric and ginger is great. I have Lupus, another autoimmune condition, and had a very severe flair up over the past few months. Out of desperation I tried a "magic tonic" that a client gave me. It is lemons, garlic, ginger, turmeric and honey. It was amazing how much it calmed my inflammation and I now drink it every day for lunch. I am a huge skeptic and have tried many alternative natural treatments all with failing results. But this one really has made a difference.

Comment by Alice on June 5, 2013 at 8:59am

Welcome, Jane. It seems as though some of us have more trouble with scalp tenderness and itching than others. When mine was at its worst, I found a couple of things to be helpful: Nature's Gate Tea Tree Oil Calming Shampoo & Conditioner, as well as tea tree oil applied directly to the scalp (all available on Amazon). The oolong tea has also made a difference, I think. As I said earlier, I also take [generic] Plaquenil 2x/day and turmeric & ginger capsules daily. Elidel cream has helped my eyebrows grow back.

Comment by Plain Jane on June 5, 2013 at 7:51am

Rebecca, dapsone gel (brand name "Aczone") was developed for severe acne. It can be effective for rosacea, as well. Because it acts as an anti-inflammatory, my derm suggested I try it during LPP flares. Since it's prescribed off-label (my dx is FFA, not Acne) it is kind of expensive. And no, it has not stopped the hair loss. But my goal is to calm the inflammation, which (I hope) slows the destruction of the hair follicles. Once the scar tissue has formed, hair can never grow back... at least that's what the derm told me and what all the research indicates.

Comment by Celia on June 5, 2013 at 6:52am

Rebecca - how did you get on with your derm visit ? A little while ago you were upset with hair just disappearing - I hope you have found a bit of optimism and feel a bit more in control if that's possible. x

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