Comment

Comment by Plain Jane on June 4, 2013 at 11:15am

I was diagnosed with FFA (lichen planopilaris)nearly a year ago (my profile pic was taken right before the biopsy), but I'm new to Alopecia World. I'm encouraged by the care and support evidenced among the members here. I don't know anyone personally who has alopecia, and while my friends and co-workers try to be compassionate, they can't really understand what it's like to have FFA. So it's been isolating for me. It's wonderful to find a place where people gain strength and comfort through this roller coaster ride of hair loss.
I'm not really one to "reach out" to others, but at this point I have exhausted every medical option and still have a blistered, sore and itchy scalp with less and less hair every day. I look forward to the day when the lichen planopilaris "burns itself out" as they say, and I can have an un-inflamed scalp again, hair or no hair.
Thanks to all of the members of this group who take the time to share their stories and support others. The encouragement and advice you give are so valuable.

Comment by Alice on June 4, 2013 at 7:36am

For those of you interested in natural approaches, I want to suggest drinking oolong tea. I read that it has helped people with eczema and psoriasis, so figured I'd give it a whirl. My scalp feels much better and is less red. I drink a large mug each morning, using 2 tea bags. I'm also taking turmeric and ginger capsules and am on Plaquenil twice a day. Oolong tastes similar to green tea.

Comment by ElleMN, USA on June 3, 2013 at 9:57am

...cause not campuses...

Comment by ElleMN, USA on June 3, 2013 at 9:56am

Carrageenan is in the news here--another possible source of inflammation. Those of you in Europe may not have to worry about this food additive found in dairy products but those in the US should be aware of it. I avoid dairy because of it's potential to campuses inflammation for me but now I see carrageenan in my almond and coconut milks. Ugh...

http://articles.chicagotribune.com/2013-03-18/health/ct-met-carrage...

Comment by Paula uk on May 29, 2013 at 3:04pm

Jules,
Best wishes for Friday.
Good news on the eyebrows.x

Comment by Celia on May 29, 2013 at 11:11am

Jules - great news about the eyebrow tattoos - there's not much that can lift the spirits with this but I certainly found the eyebrow tattoos came close to it ! Just to wake up in the morning and not feel you have a 'bald face' as well as the other stuff going on is really good. Make sure your tattoo person make it look like individual hairs not a dark band - I am sure they will know what they're doing - I hope you get the alopecia discount - one of the perks....... x

Comment by Jules UK on May 29, 2013 at 8:20am

Thank you. I have quite a few things to ask about, but am happy to add to the list if there are more queries. I'm just about to book my eyebrow tattoo appt, at last! And a sign of the times - my hubby now reminds me when we go out - have you got your hair band? But I've found that sunglasses work well instead, that's when we have sunshine of couse. All too infrequently! X

Comment by Debs on May 29, 2013 at 8:09am

Jules, I wish you all the best on Friday. xx

Comment by Marian on May 28, 2013 at 6:12pm

Comment by Celia on May 28, 2013 at 5:26pm

I forgot to say that I do think turmeric has helped reduce the inflammation around my forehead. I have no inflammation at the sides of my head or above my ears and yet the hair continues to disappear. Oh, for a miracle !
Flying kites with our grand children at the weekend was the very best therapy, just great to switch off for a while.

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