Comment

Comment by Celia on May 29, 2013 at 11:11am

Jules - great news about the eyebrow tattoos - there's not much that can lift the spirits with this but I certainly found the eyebrow tattoos came close to it ! Just to wake up in the morning and not feel you have a 'bald face' as well as the other stuff going on is really good. Make sure your tattoo person make it look like individual hairs not a dark band - I am sure they will know what they're doing - I hope you get the alopecia discount - one of the perks....... x

Comment by Jules UK on May 29, 2013 at 8:20am

Thank you. I have quite a few things to ask about, but am happy to add to the list if there are more queries. I'm just about to book my eyebrow tattoo appt, at last! And a sign of the times - my hubby now reminds me when we go out - have you got your hair band? But I've found that sunglasses work well instead, that's when we have sunshine of couse. All too infrequently! X

Comment by Debs on May 29, 2013 at 8:09am

Jules, I wish you all the best on Friday. xx

Comment by Marian on May 28, 2013 at 6:12pm

Comment by Celia on May 28, 2013 at 5:26pm

I forgot to say that I do think turmeric has helped reduce the inflammation around my forehead. I have no inflammation at the sides of my head or above my ears and yet the hair continues to disappear. Oh, for a miracle !
Flying kites with our grand children at the weekend was the very best therapy, just great to switch off for a while.

Comment by Celia on May 28, 2013 at 5:22pm

Good luck, Jules - I hope it goes well for you ! I will be thinking about you.

Comment by Jules UK on May 28, 2013 at 1:21pm

Hi all, I see Dr Harries on Friday, so I'll mention the points raised too. X

Comment by Celia on May 28, 2013 at 1:07pm

Debs - I am see Dr H on June 27th - will make a list. Any news from that conference in Edinburgh ?

Comment by Debs on May 28, 2013 at 8:04am

And.... just checked out the BAD website more thoroughly. ACITRETIN is a drug, tablet form, that can be used to treat lichen planopilaris, since FFA is a varient of lichen planopilaris I think it is worth us asking our derms if this can be used if we don't respond to hydroxychlorogquine sulphate. Again, anyone seeing Dr Harries can they run this drug past him please.

Comment by Debs on May 28, 2013 at 7:46am

DAPSONE - Rebecca, I have just looked up this drug your new derm has mentioned. It is an antibacterial originally used for leprosy. The British Association of Dermatologist has info about Dapsone on their website

www.bad.org.uk

If anyone is seeing Dr Harries can they please ask him if he has used Dapsone for FFA. I see him next in July. It would be fantastic if we have another drug to use on this condition.

I did manage to switch off on my holiday and didn't think about my FFA. It was great to be away, a change of scene really does help you relax.

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