Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Mary on May 23, 2013 at 12:53pm
I really feel for you Rebecca. I haven't lost too much hair yet but am despairing about where it is going to stop. I suppose you have to accept that you get to the point where you can't hide it. Then you have to be open about it and that takes a lot of courage. I think it helps to read some of the brave and inspiring posts on this site and to know that you are not alone.
Comment by Celia on May 23, 2013 at 9:49am

Hope all you holidaymakers are having a great time !
I'm at home creating my garden but will get away once all is done. When I saw Dr Harries the last time I came away with only half the hydroxyl.......that I needed for 2 months - went to the GP here and got Plaquenil as suggested by Debs - easy peasy and yet - when I asked for this a few months ago I was told they were not allowed to prescribe it.........have had no inflammation for a few days - I am putting it down to the turmeric I've been taking. Bought some new vits for hair skin and nails and they contain everything I've been taking separately so I will just take that and the turmeric. I'll wait and see what happens. Karen - your holiday sounds wonderful !

Comment by KarenGinny - Iowa, US on May 21, 2013 at 1:40pm

Sounds like lots of people going on vacations here. I am leaving this Saturday driving with my family to South Dakota - the Black Hills, Badlands, and Mount Rushmore. It's such a beautiful place and I can't wait to go back there again. Hopefully we'll have good weather there and have a fun & relaxing time. Terrible storms and tornadoes went through Oklahoma yesterday destroying schools and houses; very sad. Hope everyone here has a good week!

Comment by Heidi Short UK on May 21, 2013 at 3:20am

Have a great holiday Debs, I'll be going on mine next week. I can't wait to get some sunshine,hopefully! Hope everyone is ok.

Comment by Kath UK on May 20, 2013 at 6:57am

Hi Alice, a 'Buff' is a sort of versatile head/hairband you can wear in various different ways. Look up Buffs headbands on the internet. There are a lot of patterns to choose from and their website will suggest ways of wearing them.

Comment by Judy on May 19, 2013 at 7:24pm

Pam, thanks from me also. I have signed up for the CARF too.

Comment by Judy on May 19, 2013 at 7:23pm

Comment by Alice on May 19, 2013 at 5:42pm

Debs, oranyone else who may know - what is a buff???

Comment by sammi on May 19, 2013 at 2:13pm

Have a wonderful holiday Debs and thanks for all your information on all sorts of topics regarding FFA ! Sammix

Comment by Paula uk on May 18, 2013 at 3:29pm
Debs,have a great holiday - relax and enjoy!
 

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