Comment

Comment by Celia on May 24, 2013 at 10:43am

Rebecca - very sorry to hear this. I know it is small consolation - but you are not alone.

I have had the steroid injections and I haven't got a clue as to whether the effect has been good or not.

This is an awful disease - unpredictable, incurable and seems to be arbitrary as to whom it descends upon. I think stress of whatever kind must send the body into some kind of preservation shock. My daughter told me of a friend's mother who lost her eyebrows instantly when her husband died of cancer.

Rebecca - the injections might help but they do leave some indentations - but if you have fringe they can be hidden - and really I wouldn't mind betting that nobody would notice.

It is almost a year since this FFA site began. I keep wondering how long we can have sooooooooooooooo many pages stored. A few of you were here in the very early stages and have thankfully continued to communicate. Recently a few of us ladies in UK got together and I can't emphasise enough how helpful that can be. It is good to communicate over the internet on the forum - but - really brilliant to chat face to face.

Holiday weekend in UK - hope you all enjoy it ! X

Comment by Kath UK on May 23, 2013 at 4:39pm

Rebecca, I really sympathise with you because a similar thing happened to me. It's horrid, I know, and you feel so helpless. In my case the new patch of hair loss that suddenly appeared behind my ear has stabilised though my hairline at my forehead is still receding. I'm now at the stage where a hairpiece is my only option though I've resisted getting wigs up to now. One nice thing is that my new hairpieces have brought me some unexpected complements and my granddaughter is begging to be allowed to borrow one!

Comment by KarenGinny - Iowa, US on May 23, 2013 at 2:26pm

Rebecca, I know in my case some of my hair loss was gradual where I didn't really notice it til it was gone, but at at least one time I had hair pulling out at my temples very easily right during a very stressful time when my husband was in the hospital with heart problems. I was shocked to see it coming out so easily, but figured it was due to the stress of my husband having a near heart attack since it happened within a few days. He is much better now, thankfully. Since then, the rest of my hair loss has been more gradual, just finding lots of hair in the drain and seeing how thin it was getting. And then sometimes I think the FFA stops for a while and calms down. I'm seeing a new Dermatologist who I hope will be able to help me. He's is supposed to be going over my records from another Dr and calling me back soon. I hope he has good news!

Comment by KarenGinny - Iowa, US on May 23, 2013 at 1:36pm

Rebecca , I'm so sorry, it is like a nightmare when you first discover your hair just coming out so easily, realizing you have large bald areas to try to hide. I've mostly come to accept my hair for the way it is and become better at concealing it, but it still is not easy. I know it's not easy to do but try not to obsess about it too much, that will just cause more stress and may make it worse. Try to concentrate on the good things in life, family, friends, hobbies you enjoy, soothing music. Just know that you are not alone here, we've all been through this.
And Hello to Mary, glad you are here.

Comment by Mary on May 23, 2013 at 12:59pm

By the way everyone I am new to this group and am already finding it a great comfort and encouragement to know I am not alone.

Comment by Mary on May 23, 2013 at 12:53pm

I really feel for you Rebecca. I haven't lost too much hair yet but am despairing about where it is going to stop. I suppose you have to accept that you get to the point where you can't hide it. Then you have to be open about it and that takes a lot of courage. I think it helps to read some of the brave and inspiring posts on this site and to know that you are not alone.

Comment by Celia on May 23, 2013 at 9:49am

Hope all you holidaymakers are having a great time !
I'm at home creating my garden but will get away once all is done. When I saw Dr Harries the last time I came away with only half the hydroxyl.......that I needed for 2 months - went to the GP here and got Plaquenil as suggested by Debs - easy peasy and yet - when I asked for this a few months ago I was told they were not allowed to prescribe it.........have had no inflammation for a few days - I am putting it down to the turmeric I've been taking. Bought some new vits for hair skin and nails and they contain everything I've been taking separately so I will just take that and the turmeric. I'll wait and see what happens. Karen - your holiday sounds wonderful !

Comment by KarenGinny - Iowa, US on May 21, 2013 at 1:40pm

Sounds like lots of people going on vacations here. I am leaving this Saturday driving with my family to South Dakota - the Black Hills, Badlands, and Mount Rushmore. It's such a beautiful place and I can't wait to go back there again. Hopefully we'll have good weather there and have a fun & relaxing time. Terrible storms and tornadoes went through Oklahoma yesterday destroying schools and houses; very sad. Hope everyone here has a good week!

Comment by Heidi Short UK on May 21, 2013 at 3:20am

Have a great holiday Debs, I'll be going on mine next week. I can't wait to get some sunshine,hopefully! Hope everyone is ok.

Comment by Kath UK on May 20, 2013 at 6:57am

Hi Alice, a 'Buff' is a sort of versatile head/hairband you can wear in various different ways. Look up Buffs headbands on the internet. There are a lot of patterns to choose from and their website will suggest ways of wearing them.

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