Alopecia World
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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 602
Latest Activity: Jul 14
Discussion Forum
CARF Conference 2018 Notes
Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Botox and FFA
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Trying a new approach with CBD oil...
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Man with FFA. New member.
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Comment Wall
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Comment by Judy on May 19, 2013 at 7:24pm
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Pam, thanks from me also. I have signed up for the CARF too.
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Debs, oranyone else who may know - what is a buff???
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Have a wonderful holiday Debs and thanks for all your information on all sorts of topics regarding FFA ! Sammix
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Debs,have a great holiday - relax and enjoy!
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Comment by Debs on May 18, 2013 at 10:33am
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Ladies that are taking hydroxychloroquine.... I asked my GP for a prescription and he gave me one with no problems. When I went to a local chemist to get the prescription filled I asked for Plaquenil not a generic version of this drug (because I know some people have tummy upsets with generics) he has Plaquenil in stock but advised me the patent on Plaquenil has now run out and the generic version of hydroxychloroquine sulphate are being stocked in many chemists. Plaquenil is available but you may need to ask you GP to specify on the prescription that you want this otherwise a generic version may well be dispensed. I know some ladies are using generics with no tummy upsets so it is not absolutely necessary to have Plaquenil but some of you may prefer it.
I am off on my hols tomorrow. Taking buffs for the beach and silk scarves for the evening. I am packing one wig just in case, the one I am wearing in this photo. I am so used to wearing wigs now it seems odd to be without them. I will catch up with all your news in a weeks time.
Have a super weekend. xxx
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Comment by Caro UK on May 17, 2013 at 5:56am
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Pam, thanks for the CARF link. Really useful information in their newsletter. Shall definitely be signing up.
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Pam thanks from me too. I have signed up for the CARF newsletters. i like the practical advice re diet and supplements.
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Pam..thanks for the link...great info...x
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Pam, Thank you for posting the link to the CARF newsletter. It contains some really good information about controlling inflammation. I was pleased to see that some of the products (tea tree oil), supplements (turmeric & ginger), and foods (olive oil, green tea) that I've found helpful were mentioned. There's also some good stuff in there about cosmetic options. Thanks for sharing.
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