Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Debs on May 18, 2013 at 10:33am

Ladies that are taking hydroxychloroquine.... I asked my GP for a prescription and he gave me one with no problems. When I went to a local chemist to get the prescription filled I asked for Plaquenil not a generic version of this drug (because I know some people have tummy upsets with generics) he has Plaquenil in stock but advised me the patent on Plaquenil has now run out and the generic version of hydroxychloroquine sulphate are being stocked in many chemists. Plaquenil is available but you may need to ask you GP to specify on the prescription that you want this otherwise a generic version may well be dispensed. I know some ladies are using generics with no tummy upsets so it is not absolutely necessary to have Plaquenil but some of you may prefer it.

I am off on my hols tomorrow. Taking buffs for the beach and silk scarves for the evening. I am packing one wig just in case, the one I am wearing in this photo. I am so used to wearing wigs now it seems odd to be without them. I will catch up with all your news in a weeks time.

Have a super weekend. xxx

Comment by Caro UK on May 17, 2013 at 5:56am

Pam, thanks for the CARF link. Really useful information in their newsletter. Shall definitely be signing up.

Comment by Debs on May 17, 2013 at 3:14am

Pam thanks from me too. I have signed up for the CARF newsletters. i like the practical advice re diet and supplements.

Comment by Simone NJ USA on May 16, 2013 at 4:37pm
Pam..thanks for the link...great info...x
Comment by Alice on May 16, 2013 at 9:40am

Pam, Thank you for posting the link to the CARF newsletter. It contains some really good information about controlling inflammation. I was pleased to see that some of the products (tea tree oil), supplements (turmeric & ginger), and foods (olive oil, green tea) that I've found helpful were mentioned. There's also some good stuff in there about cosmetic options. Thanks for sharing.

Comment by Caro UK on May 15, 2013 at 6:29pm
Celia, thank you so much for hosting a great day. It was lovely to meet everyone X
Comment by Heidi Short UK on May 15, 2013 at 5:13pm

Thankyou Celia for making it such a lovely day. I've just got back from a meal with the family to celebrate Jamie's birthday. I had a lovely time and it was so nice to meet you all. I've shown my family the pictures of us today and they all agree there is no way that any one looking at us would think we had a problem with our hair! Thankyou again Celia you are a special lady.

Comment by Heidi Short UK on May 15, 2013 at 4:58pm

Comment by Jules UK on May 15, 2013 at 3:35pm
I'm glad the cake was OK. Haven't tried that recipe before -it's one of lovely Paul Hollywood's. I'll sort it out and email it to you soon. Thanks again, Celia. Just busy looking at barn conversions for sale...... Xx
Comment by Celia on May 15, 2013 at 3:31pm

It was lovely to see you all. We shall get through this little problem by being positive - sorry I wasn't soooooooo positive all day. You all looked great - we shall do this again in the Autumn - and I would love it if you were all able to come here again - Heidi - I think yours was the longest journey - or - the most time consuming - but thank you all for making a huge effort to get together. Liz - sorry not to see you today but we hope to meet up soon ! Jules - need the cake recipe please ! Martyn loves it........ In order to use the e mail here you need to invite me as a friend. Otherwise I think most of you have my Hotmail. xx

 

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