Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Jul 14

Discussion Forum

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

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Comment by Simone NJ USA on April 26, 2013 at 6:16pm
Hi Chrisy:

I'm using a product called: Repair Plus by Wellness Resources. Www.wellnessresources.com. $28.80
Hope this helps you...
Comment by Chrisy, MA USA on April 26, 2013 at 4:21pm
Hi Simone could you please let me know which turmeric brand you are using? There are so many options out there. Tx!
Comment by Celia on April 26, 2013 at 3:49pm

Hi everyone. Hope that all is well. Celia

Comment by Simone NJ USA on April 22, 2013 at 9:09pm
Hi Celia:
I started taking Plaquenil about 3 weeks ago after resisting for 4 months. Other than that I stated taking a Curcumin/bromelain/Bioperine/papain/Quercetin supplement all inclusive. No hidden fillers, preservatives, Non Gmo(which is a big issue in the US), no sugar, yeast, soy and more.It's said to be a be optimized for potency and absorption. Very high concentration 95% curcuminoids. Just stated it so I will see what happens.. Am also taking multivitamins based solely on organic whole foods, nothing synthetic. Had terrible itching for almost 2 weeks, but it's subsided since the past 3 days.. Not sure if that's due to the supplements.... Am not happy about taking the Plaquenil and am giving it 6 months and will decide to discontinue...I hope you are feeling better. I know it's hard to keep optimistic. Thanks AC..I would be great if you kept me updated with your progress on the Wobenzym..have a goodnight all...xx
Comment by AC from CA, USA on April 22, 2013 at 4:29pm
Hi Simone.
I will. I share your caution...that's exactly why I'm avoiding plaquenil. I am only game for trying the wobenzym on the recommendation of someone found it successful with her autoimmune issue.

Celia-- if the site wasn't open, I would have never found the group. But, I am also very concerned about privacy. That's why I don't post any photos, or how much identifying information.
Comment by Simone NJ USA on April 22, 2013 at 12:39pm
Hi AC:

Could you let me know when and if you see an difference taking the Wobemzym after a while? I would love to try this but am weary of all these supplements..I've been taking Tumeric for about 1 week now so I'm still waiting to see if there are any changes...thanks..
Comment by Paula uk on April 21, 2013 at 5:24pm
Hi Celia,
very kind of you - Thankyou.I am near Guildford.Would love to come and meet all of you.I will try and sort something out in work,although a little difficult as I am school based.but will let you know.
Thankyou again x .
Comment by Debs on April 21, 2013 at 3:57am

Thanks so much for the info, I will check this link out.

Comment by AC from CA, USA on April 20, 2013 at 12:55pm
Comment by AC from CA, USA on April 20, 2013 at 12:53pm
Oops, didn't mean to post that yet. The Wobenzym allowed her to get completely off plaquenil, and she is symptom free, after having years of debilitating pain. It seems to have helped her inflammatory loop stop. So, I recently ordered that and started taking that as well.
 

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