Comment

Comment by Lace on April 12, 2013 at 2:06am

Hey Judy and Pam:

I have not been on this board for awhile, but I would love to be included if you two make plans for meeting in San Diego.

Best, Lace

Comment by AC from CA, USA on April 11, 2013 at 9:47pm

Also, Bernadette and others--

The whole idea of a wig has been a big deal for me. I am an au natural earthy kind of chick, so conceiving of myself with a wig was a hard concept to embrace.

My daughter suggested I check out YouTube and I stumbled on a woman who has scarring alopecia who has done a gazillion wig reviews (cool, helped me find wigs to try as a start)but listening to her journey, and watching several of her videos that really touched on the alopecia experience, just switched my whole perception around wearing wigs.

Here's a link to her initial video reveal about having alopecia for anyone interested: http://youtu.be/zJuiPpz6Gww

Besides a whole boatload of videos just focusing on wig reviews, she has several videos that go over her decision to shave her head bald and that just document her positive attitude in dealing with scarring alopecia.

You might find it empowering to watch a few of her videos: search the Jo Ann Gray youtube channel for alopecia as a keyword, or just browse through.

Also, I absolutely love the wig reviews because 1) I'm not interested in spending a fortune on any one wig, 2) it's helpful getting user reviews from an alopecia sufferer about wigs that I can then just hunt down online by exact brand and model, 3) she often showcases the shorter styles that I also favor.

Also, will share that I found some other very excellent videos on youtube relating to how to make a wig hairline look more natural. Invaluable!

Comment by Bernadette on April 11, 2013 at 9:42pm

Hi Aimee,

Thank you for your comforting words. Today was not a good day, but I'm taking one day at a time.

Comment by AC from CA, USA on April 11, 2013 at 9:22pm

Hi Bernadette,

I'm on the west coast, so I cannot offer info on the wig salon in NYC. But, wanted to say hello and welcome. Totally understand what you're experiencing...it's a struggle to accept what this is and also to find your own livable peace. I'm a couple months beyond my biopsy results and I still bounce back and forth with acceptance and coping ability. I'm also about to try the wig experience, if for nothing else, just to get on with what is and can't be changed. And also to stop feeling so nervous/enslaved to worry over what to do about the further progession that will quite likely happen for me before burnout arrives. Best thing about this site is knowing there are people here who can understand what you're going through in your head and can also provide a place where you can bounce thoughts off. All the best to you!

Aimee

Comment by Simone NJ USA on April 11, 2013 at 9:00pm

Hi Caro:

Thanks for your advice!!! You sound upbeat! That's great!!! Cheers!! Xx

Comment by Judy on April 11, 2013 at 8:35pm

Judy from San Diego
Hi ladies,
I am way behind in reading all the posts. Playing catch-up after
returning home. Yes, Pam, I am home and would love to meet up with you. My email is jkeller@aol.com.

Comment by Bernadette on April 11, 2013 at 7:18pm

Hello everyone. I get my biopsy results on Tuesday but the dermatologist is almost certain I have FFA. I cried for 3 days after my first visit with the dermatologist. I had a complete hysterectomy 10 years ago and initially I thought the symptoms were all related to menopause. Right now I am wearing a hair weave and I have eyelash extensions. My brows are sparse but recently have started to grow back which is totally inconsistent with the FFA diagnosis, but I will take whatever I can get at this point!! I have an appointment with Joseph Paris in NYC for a wig consultation next week. If anyone has a Joseph Paris wig please tell me about your experience.

Comment by Caro UK on April 11, 2013 at 10:49am

Hi Simone, I've just had my eyebrows tattooed! I'd say go for it! But please make sure you go to someone who is very experienced. I have one eyebrow with hardly any hair left and the other has about a third left. There won't a problem having them done. An expert in medical tattooing (from Nouveau Contour) has done a brilliant job and I am thrilled with the results. I now feel as though I have my features back. I need to return in a month's time for fine tuning the colour and shape of my new brows and then a third and final time. This is included in the cost. It should last for 1-3 years.
Good luck!

Comment by Simone NJ USA on April 11, 2013 at 9:47am

Hi Everyone:

I have a question for any of the ladies who have had their brows embroidered..I have one brow that's getting thinner and sparse than the other. I am wondering if it's better to wait till the other gets sparse to tattoo both or just go ahead & tattoo both now...not quite sure what to do...help!

Thanks...best wishes to all

Comment by Debs on April 11, 2013 at 4:08am

Paula, I agree 100% with Liz. I have to travel from London to Manchester to see Dr Harries but it is worth it for the reassurance that I get being treated by him.

• ‹ Previous
• 1
• …
• 429
• 430
• 431
• 432
• 433
• …
• 507
• Next ›
• Page