Comment

Comment by Judy on March 22, 2013 at 4:01am

Hi - sorry I didn't get to answer eariler. My dermatologist is the one who said the hair loss has stopped "for now" but to continue the Hydroxycloride. She will check again in 3 mos.
Sorry to be so vague but I HATE looking at my forehead and avoid
it at all costs. I am wearing long bangs so really don't need to
see the loss. As we all know these things can be temporary so I
am trying to think positive.
Eyebrows - don't know why some are growing (mind you it is only
some - I can count them). My dermatologist suggested adding dabs of Clobasol to the eyebrow area to see if that helps them also.
The Probiotics I get at Whole Foods, the refrigerated ones. I
think any health food store could suggest good ones.
I really don't know how long I have had the FAA but the eyebrows
and body hair loss started at least 3 years ago. I never looked
at the forehead. But that said I can only go by the eyebrows -
this is the first time in 3 years I have seen ANY growth and that has to be the Hydroxycloride. Possibly the probiotics and possibly
a little more sleep and less stress and possibly the DHA Shampoo and conditioner. Who knows? I hate to guess as I am happy to be in remittance. Will see in 3 more months.
So much good info on these posts. I am very proud of you all
that are wearing wigs - they are so attractive but I don't think I could tolerate one on my head. But I love the scarf ideas - I usually wear a hat when wind is blowing or bangs are having a "bad hair" day. Probably a little odd when I am inside but who cares?
Good luck everyone.

Comment by Debs on March 22, 2013 at 3:13am

Caro, last night I took my plaquenil with only about 3 mouthfuls of milk and I didn't get any reactionn, usually I take it with a proper meal (breakfast and then dinner) so I think you are right and your generic version is a bit tough on your tummy.

Comment by Simone NJ USA on March 21, 2013 at 7:37pm

Thanks, Alice...same to you...x

Comment by Alice on March 21, 2013 at 4:41pm

Comment by Alice on March 21, 2013 at 4:41pm

Simone, I put the cream all over the brow area. It spreads easily, so takes just a tiny amount.
A belated St. Pat's wish to all of you: "May the wind be ever at your back." I think this old Irish blessing may have special significance to those of us with FFA. :-)

Comment by Simone NJ USA on March 21, 2013 at 2:16pm

Hi Alice:

Thanks for the Info..will ask my Derm for this!!! Do you put it over the entire brow area or where you see the sparse areas?
Also.,Debs..I always look forward to seeing your different looks and am inspired that you have embraced the whole 'wig thing'.....I hoping to be adventurous and brave when it's my turn...

Comment by Caro UK on March 21, 2013 at 12:52pm

I am having burning pain and bloating in my stomach since I started taking hydroxychloroquine sulphate. Worse after I've eaten. I haven't been given Planquenil, my medication is the generic form (manufactured by Blackrock Pharmaceuticals). Perhaps this is the reason? I suspect I've been given it because it is cheaper than Planquenil. I'm going back to my GP to ask for Planquenil as I read somewhere (can't remember where!) that it is easier to tolerate. Anyone else had the same side effects?

Comment by Susanne on March 21, 2013 at 9:17am

Alice, I asked my derm for Elidel - turns out the very greasy and goopy Protopic she had given me for the scalp is basically the same thing. I'm much happier with the cream, though I have to say, the first few lines of the "possible side effects" info gave me pause. Thanks for the tip. I'm staying on Plaquenil for now. Love the new hair, Debs!

Comment by Alice on March 21, 2013 at 9:09am

Simone, I've been putting a very small amount of Elidel cream over the brow area every night. I started out using it twice a day but didn't like the way it worked with my brow powder/pencil. The only side effect I have noticed is the the skin under my brows is sensitive if I get the water too hot when I wash my face. I first asked my derm about it after reading an article about a woman in Greece whose FFA was successfully treated using Elidel topically on the brows and Avodart orally. I wasn't ready to try Avodart, since it's approved only for men w/ prostate enlargement.

Comment by Chrisy, MA USA on March 21, 2013 at 8:20am

Lorn what side effects desonide gave you?? I'm using it for about 2 mo and I think it works for me.

• ‹ Previous
• 1
• …
• 439
• 440
• 441
• 442
• 443
• …
• 507
• Next ›
• Page