Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Jul 14

Discussion Forum

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

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Comment by Lorn. New York, USA on March 19, 2013 at 6:52pm
Hi Deba. Thank you for the eyebrow info. I would love to go to the person who did yours because judging by your picture they look really good I would never have quessed. I probably didn't put it out there but I live on Long Island New York. So if anyone knows a good perminent make up person let me know. Although - it could be. Great excuse to visit the uk
Comment by Liz on March 19, 2013 at 5:56pm

I'm feeling rough. Im not sure if I've caught a bug or if it's the antibiotics or the steriod injections. Anyone else feel rough when they've taken Doxycycline and does it get better?
x

Comment by Simone NJ USA on March 19, 2013 at 3:56pm
Judy..
Sorry..that message made no sense..lol..you mentioned that your eyebrows are growing back...did you put anything on them?
Comment by Simone NJ USA on March 19, 2013 at 3:55pm
Hi Judy:
You me ruined that your eyebrows are growing back(yeah, great!)..were you putting anything on them or just started to grow back?
Comment by Sigga on March 19, 2013 at 8:10am

Ok Rebecca,Arnaldur and Yrsa they are really good writers.I have to but some more picturs so you can see how my hair has become...

Comment by Debs on March 19, 2013 at 2:18am

Judy, delighted that your hair loss has stopped, I have only just started on the hydroxychloquine. Can I ask please; are you using any other drugs?? also you posted a few months ago your Dr advised using probiotics every day, what are you taking ?? as I would like to also be proactive in safeguarding my health now I have an autoimmune condition. Ta xx

Comment by Debs on March 19, 2013 at 2:04am

Lorn - re eyebrows, Celia and I go to the same lady in Chertsey, Surrey. You get touch-ups approx every 18 months. The cost is £410.00 for people with medical conditions. You have a consultation first. Then go back for your first treatment, then a second treatment a month later. She is excellent, it does not hurt (some other practioners go too deep and it is painful) the healing process is really quick because she only works on the upper layers. I had my brows done by another practitioner before and she was not anywhere near as skilled.

Check out the website www.belindahayle.com and you can see photos of clients.

Comment by Lorn. New York, USA on March 18, 2013 at 7:40pm

Hi Celia, I have been thinking about eyebrow tattoos for a long time - but am a little nervous about it looking natural - or as natural as can be.
That is encouraging that yours have turned out well. I'm not going to say money isn't a factor - but I am willing to pay the price for a good job - I just have to find one in my area who is very good. How long have you had yours and have you had any touch ups?

Comment by PJ - MN, USA on March 18, 2013 at 4:34pm

Saw my Dermatologist today. She said things looked pretty mild for me today with the FFA and my rosacea. They now have the Excimer laser treatment. I forgot about the article someone posted on this treatment, so I didn't ask her to much about it. They have only had it a month or so I think. Currently it is used on the scalp for inflammatory skin conditions. She wants to try it on my eyebrows since my scalp is not that bad yet. Don't think it has been used on eyebrows yet. Very experimental. It is also very expensive - around $3000 per treatment,not covered by insurance and you have to go twice a week. Needless to say, I can not afford to do that. Plus I'm concerned about the safety of the laser so close to the eyes. You do have to wear goggles. I got steroid injections on my scalp and eyebrows. They are painful on the eyebrows, not to bad on the scalp. I get the indentations on my head, but so far none on the eyebrows. Not sure how long I will continue with the injections. I have been on doxyclycline a month now so to soon to tell if that is helping. I now am to use only the clobetasol foam the night before and night after I dye my hair. I also asked about diet. There is no scientific proof that shows diet helps with inflammatory skin issues. So nothing different recommended there except to try to eat healthy. Sigga - my husband and I were just talking the other day how we want to travel to Iceland. We hear it's a beautiful country. Judy - How do you know your hairloss has stopped? Have you had that happen before and then start up again?

Comment by Sigga on March 18, 2013 at 4:23pm

Hi Rebecca the Doxoycycline workd on my swollen forehed but my hair is still fall off.And Yes it is Wonderful in Iceland.Ok and What is the writer name..And now I'm not on any medication...

 

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