Comment

Comment by Debs on March 19, 2013 at 2:18am

Judy, delighted that your hair loss has stopped, I have only just started on the hydroxychloquine. Can I ask please; are you using any other drugs?? also you posted a few months ago your Dr advised using probiotics every day, what are you taking ?? as I would like to also be proactive in safeguarding my health now I have an autoimmune condition. Ta xx

Comment by Debs on March 19, 2013 at 2:04am

Lorn - re eyebrows, Celia and I go to the same lady in Chertsey, Surrey. You get touch-ups approx every 18 months. The cost is £410.00 for people with medical conditions. You have a consultation first. Then go back for your first treatment, then a second treatment a month later. She is excellent, it does not hurt (some other practioners go too deep and it is painful) the healing process is really quick because she only works on the upper layers. I had my brows done by another practitioner before and she was not anywhere near as skilled.

Check out the website www.belindahayle.com and you can see photos of clients.

Comment by Lorn. New York, USA on March 18, 2013 at 7:40pm

Hi Celia, I have been thinking about eyebrow tattoos for a long time - but am a little nervous about it looking natural - or as natural as can be.
That is encouraging that yours have turned out well. I'm not going to say money isn't a factor - but I am willing to pay the price for a good job - I just have to find one in my area who is very good. How long have you had yours and have you had any touch ups?

Comment by PJ - MN, USA on March 18, 2013 at 4:34pm

Saw my Dermatologist today. She said things looked pretty mild for me today with the FFA and my rosacea. They now have the Excimer laser treatment. I forgot about the article someone posted on this treatment, so I didn't ask her to much about it. They have only had it a month or so I think. Currently it is used on the scalp for inflammatory skin conditions. She wants to try it on my eyebrows since my scalp is not that bad yet. Don't think it has been used on eyebrows yet. Very experimental. It is also very expensive - around $3000 per treatment,not covered by insurance and you have to go twice a week. Needless to say, I can not afford to do that. Plus I'm concerned about the safety of the laser so close to the eyes. You do have to wear goggles. I got steroid injections on my scalp and eyebrows. They are painful on the eyebrows, not to bad on the scalp. I get the indentations on my head, but so far none on the eyebrows. Not sure how long I will continue with the injections. I have been on doxyclycline a month now so to soon to tell if that is helping. I now am to use only the clobetasol foam the night before and night after I dye my hair. I also asked about diet. There is no scientific proof that shows diet helps with inflammatory skin issues. So nothing different recommended there except to try to eat healthy. Sigga - my husband and I were just talking the other day how we want to travel to Iceland. We hear it's a beautiful country. Judy - How do you know your hairloss has stopped? Have you had that happen before and then start up again?

Comment by Sigga on March 18, 2013 at 4:23pm

Hi Rebecca the Doxoycycline workd on my swollen forehed but my hair is still fall off.And Yes it is Wonderful in Iceland.Ok and What is the writer name..And now I'm not on any medication...

Comment by Judy on March 18, 2013 at 3:55pm

Caro, regarding the hydroxycloride and nausea. I also had stomach problems for about 2 weeks. Was eating only rice, chicken noodle soup, etc. But it did go completely away. However, I still always take it after a meal or with food.
I saw my demeratologist today and we both agreed that the hairloss has probably stopped (at least for now) and irritation is gone plus quite a few eyebrow hairs are growing back. Amazing! I've been taking it for about 4 months so it is worth a try.

Comment by Sigga on March 18, 2013 at 3:19pm

Hi I have used Thymuskin,Stimulant serum,Actigener(scalp and body treatment,Flagyl,Protopic,Dermovat,Actos,Plaquenil,Metronidazol creme,Regaine forte nothing of this have workd for me.Doxoycycline workd for my forehed it was so swollen.But now the skin on the forehed is so thinn and if I go in the sun I have to use a sunscreen 50+ and wear scarf.I have lost 3,5cm of my hear on my forehed and my skin feel like it is burning on the forehed and the eyebrow.And I also have bald spots on top of my head.I hope my Englis is ok..

Comment by Debs on March 18, 2013 at 12:28pm

Caro - I only used the dermovate lotion for 7 days in the end. Dr Harries did not prescribe it to me, another local dermatologist gave it to me, it was really only to stop any itching/redness if I had any - which I did not!!! Dr Harries did say that he has not found the dermovate to be effective for FFA.

I really don't like the thought of having permenant marks left by these steriod injections, my skin is nice and smooth where the hair has gone, it is not unsightly (although of course I would prefer it to be covered with hair), I wear a wide headband to the gym and for casual times and I intend to just wear a scarf tied up in a bow sometimes in the summer so I really don't want any marks appearing on my head. I think I might just stick to the hydroxychloroquine sulphate and give these injections a miss. I feel after reading your posts that they might cause more harm to my overall appearance than the hair loss.

Comment by Lorn. New York, USA on March 17, 2013 at 7:39pm

Hi. I have had injections for 7 months now. It is hard to tell what is working or not. I don't see as many raised red dots around the hair follicles or as my hair dresser says the doll head hair but I definitely have veins showing on my forehead and in the temple region. The skin on my forehead is thinner as well. The injections in my eyebrows have caused dents as well as bruising. I have been told they go away once you stop. The thinner skin will not get thicker. At times i feel pretty badly about it. I feel like i'm getting beat up with this regimen. Having said all ghat, I do feel this has all slowed the hair loss and I got a little bit of regrowth in the temple area. My fear is if my skin gets too thin, I won't be able to do a hair system. Also, the Dr has told me not to use the desonide cream on the eyebrows and hairline. Instead I am to use rogain on the eyebrows. Regarding the steroid shots. I had them by my original Dr and they weren't too bad, but with this last dr, they hurt like heck (I go to a teaching hospital where I see different dermotologists under the direction of a top dermotologist). I have used the doxycycline in combination with the shots and I think it has all helped. The question for me is how long will I have to do this regimen. When I see the Dr, that will be one of my questions. One more thing, the doxycycline has made me very sensitive to the sun (which they do warn you to stay out of the sun). I remember last summer the sun hurting my scalp and last weekend being outside, watching a parade, my lips got burnt.

Comment by Caro UK on March 17, 2013 at 7:34pm

Jules I am sorry you are feeling low. I am taking hydroxychloroquine but Dr Rajpar has said there is no guarantee it will halt my hair loss. It does seem to have worked for some women. I'm seeing Dr Rajpar agin in three months. Wish I could pack up work as my job is pretty stressful and I'm sure that's not helping. In fact it may well have been the trigger that set this thing off in the first place.
It is worrying that the steroid injections given to Celia and Rebecca have caused ridges and indentations but not actually helped reduce the hair loss.

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