Comment

Comment by Jules UK on March 17, 2013 at 6:13pm

Celia, I really agree with your sentiments. And was disappointed with the reply that Liz had to her enquiry about the the laser treatment. Like you, the answer to all my questions was ' we don't know', and I value honesty about the situation. But any trial , however small, that has shown some success is surely worth consideration. Perhaps Caro could mention it to Dr Rajpar? I've been taking doxycycline since Dec and noticed no slowing of hairloss. Feeling resigned to what will be and pretty fed up at the moment.

Comment by Liz on March 17, 2013 at 1:52pm

The steriod injections didnt hurt at all. Dr Harries told me that they can be uncomfortable and I braced myself for pain but they were not painful at all.I would be happy to have them all the way along next time.
x

Comment by Caro UK on March 17, 2013 at 9:15am

Hi Debs,thanks for the advice. Sounds like your diet is really healthy and you work out a lot. You must be very fit! I am feeling better today. I went to work on friday which didn't help my recovery. I really should have called in sick but I didn't want to let the team down. By the way, I've just read one of your posts that said you had been advised to use Dermovate for only two weeks. Was that from Dr Harries?
Liz I think you are very brave to have the steroid injections into your scalp. I do hope this works for you. Dr Harries is clearly the expert on this condition so you are in excellent hands.

Comment by Debs on March 16, 2013 at 2:54pm

Liz I am do pleased you are now also seeing Dr Harries. I am relieved that the injections don't hurt as he did say he might give me some next time.

Liz, thanks for asking about the laser, the poor man must wonder what our group are going to throw at him next.

Caro, I take my hydroxy with food, sometimes that is just a couple of pieces if fruit for breakfast and I drink a glass of water to wash it down, I have not felt any queasiness at all, maybe me drinking a glass of water helps to calm my tummy down. But as your

hubby also feels a bit poorly then like you say hopefully it isn't the drug.

Comment by Caro UK on March 16, 2013 at 2:05pm

Hi everyone. So glad your appointment with Dr Harries went well Liz. Good luck with your treatment.
I've not felt at all well for several days. Burning pain in my stomach and abdominal cramps. My husband has had similar symptoms otherwise I would think it was the hydroxychoroquine that was causing the pain. I've noticed that after I take the drug I have stomach pain but that it passes off quite quickly. I always take the tablets just after a meal.I've missed several doses as I haven't felt well enough to eat much.

Comment by Liz on March 16, 2013 at 1:32pm

Hallo :o) What a lovely man Dr Harries is. He was friendly and considerate and listened to all my concerns. I didnt feel at all rushed and I sat talking to him for about 40 minutes. He told me the same things that he has told those of you that have seen him, that they dont know why and who this conditin affects or the eventual progression. We talked about medication etc. He looked at my hair now and compared it to the clinical photographs I had taken back in September. We both agreed that I have lost more hair since then. He also checked my nails which are very pitted.
He wants me to take Doxycycline until I see him again in 3 months time. He wants me to double it to 200mg daily. He injected steroids in one area of my hairline and says if that goes ok he will inject all along the hairline next time, it didn't hurt at all (hopefully to stop the inflamation underneath). He also suggests that I use mens strength of minoxodil (Regaine) because I have thinning over the top (which may not be related to the FFA).
I asked him a few other questions. Swimming is fine. There is no evidence to suggest that diet has any impact on this condition. I mentioned the Excimer laser treatment and he said that there is no evidence that it works. He said that me and my mum both having FFA is very rare.
For any of you in the uk who are thinking of getting an appointment with Dr Harries, I recommend it. He knew about the forum :o)It was so nice to meet with a professional who has a real passion for this condition and who is happy to sit with you for as long as you want to talk.
xx

Comment by Heidi Short UK on March 16, 2013 at 7:10am

Hope everything went well yesterday Liz, I was thinking of you. He probably won't tell you anything new but a Friendly professional opinion will hopefully keep you positive!x

Comment by Debs on March 15, 2013 at 11:49am

Yesterday I posted on another alopecia website did anyone know about excimer lasers... 2 guys have replied that they are aware of several small scale studies and it is being talked about as helping alopecia areata, they don't know if it is going to be offered as a treatment option on the NHS in the UK but it has been shown to be effective. Lets see what Dr Harries has to say about it. Good luck Liz, thinking of you today. xxx

Comment by Lorn. New York, USA on March 14, 2013 at 8:05pm

Oops. Spelling... Dr Harries

Comment by Lorn. New York, USA on March 14, 2013 at 8:03pm

Liz. Good luck with Dr Harris. From the sound of it he seems like a great dr who is up on the latest regarding this dreadful disease.

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