Comment

Comment by Judy on March 18, 2013 at 3:55pm

Caro, regarding the hydroxycloride and nausea. I also had stomach problems for about 2 weeks. Was eating only rice, chicken noodle soup, etc. But it did go completely away. However, I still always take it after a meal or with food.
I saw my demeratologist today and we both agreed that the hairloss has probably stopped (at least for now) and irritation is gone plus quite a few eyebrow hairs are growing back. Amazing! I've been taking it for about 4 months so it is worth a try.

Comment by Sigga on March 18, 2013 at 3:19pm

Hi I have used Thymuskin,Stimulant serum,Actigener(scalp and body treatment,Flagyl,Protopic,Dermovat,Actos,Plaquenil,Metronidazol creme,Regaine forte nothing of this have workd for me.Doxoycycline workd for my forehed it was so swollen.But now the skin on the forehed is so thinn and if I go in the sun I have to use a sunscreen 50+ and wear scarf.I have lost 3,5cm of my hear on my forehed and my skin feel like it is burning on the forehed and the eyebrow.And I also have bald spots on top of my head.I hope my Englis is ok..

Comment by Debs on March 18, 2013 at 12:28pm

Caro - I only used the dermovate lotion for 7 days in the end. Dr Harries did not prescribe it to me, another local dermatologist gave it to me, it was really only to stop any itching/redness if I had any - which I did not!!! Dr Harries did say that he has not found the dermovate to be effective for FFA.

I really don't like the thought of having permenant marks left by these steriod injections, my skin is nice and smooth where the hair has gone, it is not unsightly (although of course I would prefer it to be covered with hair), I wear a wide headband to the gym and for casual times and I intend to just wear a scarf tied up in a bow sometimes in the summer so I really don't want any marks appearing on my head. I think I might just stick to the hydroxychloroquine sulphate and give these injections a miss. I feel after reading your posts that they might cause more harm to my overall appearance than the hair loss.

Comment by Lorn. New York, USA on March 17, 2013 at 7:39pm

Hi. I have had injections for 7 months now. It is hard to tell what is working or not. I don't see as many raised red dots around the hair follicles or as my hair dresser says the doll head hair but I definitely have veins showing on my forehead and in the temple region. The skin on my forehead is thinner as well. The injections in my eyebrows have caused dents as well as bruising. I have been told they go away once you stop. The thinner skin will not get thicker. At times i feel pretty badly about it. I feel like i'm getting beat up with this regimen. Having said all ghat, I do feel this has all slowed the hair loss and I got a little bit of regrowth in the temple area. My fear is if my skin gets too thin, I won't be able to do a hair system. Also, the Dr has told me not to use the desonide cream on the eyebrows and hairline. Instead I am to use rogain on the eyebrows. Regarding the steroid shots. I had them by my original Dr and they weren't too bad, but with this last dr, they hurt like heck (I go to a teaching hospital where I see different dermotologists under the direction of a top dermotologist). I have used the doxycycline in combination with the shots and I think it has all helped. The question for me is how long will I have to do this regimen. When I see the Dr, that will be one of my questions. One more thing, the doxycycline has made me very sensitive to the sun (which they do warn you to stay out of the sun). I remember last summer the sun hurting my scalp and last weekend being outside, watching a parade, my lips got burnt.

Comment by Caro UK on March 17, 2013 at 7:34pm

Jules I am sorry you are feeling low. I am taking hydroxychloroquine but Dr Rajpar has said there is no guarantee it will halt my hair loss. It does seem to have worked for some women. I'm seeing Dr Rajpar agin in three months. Wish I could pack up work as my job is pretty stressful and I'm sure that's not helping. In fact it may well have been the trigger that set this thing off in the first place.
It is worrying that the steroid injections given to Celia and Rebecca have caused ridges and indentations but not actually helped reduce the hair loss.

Comment by Jules UK on March 17, 2013 at 6:13pm

Celia, I really agree with your sentiments. And was disappointed with the reply that Liz had to her enquiry about the the laser treatment. Like you, the answer to all my questions was ' we don't know', and I value honesty about the situation. But any trial , however small, that has shown some success is surely worth consideration. Perhaps Caro could mention it to Dr Rajpar? I've been taking doxycycline since Dec and noticed no slowing of hairloss. Feeling resigned to what will be and pretty fed up at the moment.

Comment by Liz on March 17, 2013 at 1:52pm

The steriod injections didnt hurt at all. Dr Harries told me that they can be uncomfortable and I braced myself for pain but they were not painful at all.I would be happy to have them all the way along next time.
x

Comment by Caro UK on March 17, 2013 at 9:15am

Hi Debs,thanks for the advice. Sounds like your diet is really healthy and you work out a lot. You must be very fit! I am feeling better today. I went to work on friday which didn't help my recovery. I really should have called in sick but I didn't want to let the team down. By the way, I've just read one of your posts that said you had been advised to use Dermovate for only two weeks. Was that from Dr Harries?
Liz I think you are very brave to have the steroid injections into your scalp. I do hope this works for you. Dr Harries is clearly the expert on this condition so you are in excellent hands.

Comment by Debs on March 16, 2013 at 2:54pm

Liz I am do pleased you are now also seeing Dr Harries. I am relieved that the injections don't hurt as he did say he might give me some next time.

Liz, thanks for asking about the laser, the poor man must wonder what our group are going to throw at him next.

Caro, I take my hydroxy with food, sometimes that is just a couple of pieces if fruit for breakfast and I drink a glass of water to wash it down, I have not felt any queasiness at all, maybe me drinking a glass of water helps to calm my tummy down. But as your

hubby also feels a bit poorly then like you say hopefully it isn't the drug.

Comment by Caro UK on March 16, 2013 at 2:05pm

Hi everyone. So glad your appointment with Dr Harries went well Liz. Good luck with your treatment.
I've not felt at all well for several days. Burning pain in my stomach and abdominal cramps. My husband has had similar symptoms otherwise I would think it was the hydroxychoroquine that was causing the pain. I've noticed that after I take the drug I have stomach pain but that it passes off quite quickly. I always take the tablets just after a meal.I've missed several doses as I haven't felt well enough to eat much.

• ‹ Previous
• 1
• …
• 442
• 443
• 444
• 445
• 446
• …
• 507
• Next ›
• Page