Comment

Comment by Sigga on March 14, 2013 at 12:16pm

Hallo I'm new here and I have had LPP for 3 years.I am happy to have found this group.Here I see that some of you have tried the same drugs and creams as me.

Comment by Alice on March 13, 2013 at 6:25pm

Liz, the static electricity look and shorter hairs sticking out sounds as though your hair may be dry and breaking off. There are products available that are supposed to help this. Perhaps you could ask your stylist to recommend something. I've noticed that my hair is a lot drier than it used to be. Don't know if it's related to the FFA or not.

Comment by Jules UK on March 13, 2013 at 3:53pm

Liz, good luck Friday! I believe there is an excimer laser in Birmingham. I read about a man who had treatment for psoriasis. Would you ask Dr Harries if he knows of anywhere we could get treatment, even if it might not be available on the NHS? Are you staying overnight?
My hair is also feeling generally thinner but is receding more than ever at the front, in spite of all the treatments I'm trying. I feel as though I'd go anywhere and try anything sometimes. X

Comment by Liz on March 13, 2013 at 6:09am

Thanks Pam. I have an all over thinning of my hair. It's a lot different now than it was. I notice it especially before I do anything with it in the morning. It sticks out like there is electricity running through it. Also there is a lot more noticable shorter length hair thats about 3 or 4 inches long and this shorter hair sticks up!
xx

Comment by PamW San Diego, CA, USA on March 12, 2013 at 10:48pm

Hi, Liz. good luck with your doctor this week. if you get a chance can you ask the doctor if he recommends shampooing more often or less. is it better or worse for our scalps? Also, I have noticed that I can go for days with minimal hair loss and then all of a sudden if I run my hand through my hair, I will lose hair. it is not from the front or sides, nut rather an all over thinning. Is that typical,of what others are experiencing?

Comment by Debs on March 12, 2013 at 7:24am

Liz, I have not heard of that specific hair system but I have met a lady with FFA wearing a hair system, it was excellent, she goes to a place in London www.greatlookinghairlondon.com mob 07949 207848 I would go to your place and maybe check these guys out too and see their prices. I met this lady in December at a support group meeting run by alopecia UK. I can definately recommend this salons work having seen how it looked on her.

Comment by Simone NJ USA on March 11, 2013 at 9:04pm

Hi Liz:

Let me know how it went & what they suggest...xx

Comment by Liz on March 11, 2013 at 12:47pm

Hi Debs. Yes I will mention it to Dr Harries on Friday.
Have any of you heard of 'Hair In XS'? They specialise in a mesh hair loss system apparently. I realised last week that thier shop is about a 5 minute walk from my home. I popped in to thier shop on Saturday and thier before and after pictures are very impressive. Anyway I have an appointment on Wednesday to learn more about it :o)
x

Comment by Debs on March 11, 2013 at 10:30am

Jules, yes I went back and looked his name is referenced but he may not be aware of the article if the Dr doing the researched was only referencing Dr Harries earlier work.
Liz, can you run this past Dr Harries on Friday please - EXCIMER LASER treatment with Alice's link below.

Comment by Jules UK on March 9, 2013 at 5:12pm

I don't know if anyone noticed, but one of Dr Harries' papers is referenced in the article, which suggets he may be aware of the research. It's exciting and at the same time frustrating to know something might help our condition but we can't get at it (yet)!

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