Comment

Comment by Liz on March 16, 2013 at 1:32pm

Hallo :o) What a lovely man Dr Harries is. He was friendly and considerate and listened to all my concerns. I didnt feel at all rushed and I sat talking to him for about 40 minutes. He told me the same things that he has told those of you that have seen him, that they dont know why and who this conditin affects or the eventual progression. We talked about medication etc. He looked at my hair now and compared it to the clinical photographs I had taken back in September. We both agreed that I have lost more hair since then. He also checked my nails which are very pitted.
He wants me to take Doxycycline until I see him again in 3 months time. He wants me to double it to 200mg daily. He injected steroids in one area of my hairline and says if that goes ok he will inject all along the hairline next time, it didn't hurt at all (hopefully to stop the inflamation underneath). He also suggests that I use mens strength of minoxodil (Regaine) because I have thinning over the top (which may not be related to the FFA).
I asked him a few other questions. Swimming is fine. There is no evidence to suggest that diet has any impact on this condition. I mentioned the Excimer laser treatment and he said that there is no evidence that it works. He said that me and my mum both having FFA is very rare.
For any of you in the uk who are thinking of getting an appointment with Dr Harries, I recommend it. He knew about the forum :o)It was so nice to meet with a professional who has a real passion for this condition and who is happy to sit with you for as long as you want to talk.
xx

Comment by Heidi Short UK on March 16, 2013 at 7:10am

Hope everything went well yesterday Liz, I was thinking of you. He probably won't tell you anything new but a Friendly professional opinion will hopefully keep you positive!x

Comment by Debs on March 15, 2013 at 11:49am

Yesterday I posted on another alopecia website did anyone know about excimer lasers... 2 guys have replied that they are aware of several small scale studies and it is being talked about as helping alopecia areata, they don't know if it is going to be offered as a treatment option on the NHS in the UK but it has been shown to be effective. Lets see what Dr Harries has to say about it. Good luck Liz, thinking of you today. xxx

Comment by Lorn. New York, USA on March 14, 2013 at 8:05pm

Oops. Spelling... Dr Harries

Comment by Lorn. New York, USA on March 14, 2013 at 8:03pm

Liz. Good luck with Dr Harris. From the sound of it he seems like a great dr who is up on the latest regarding this dreadful disease.

Comment by Sigga on March 14, 2013 at 12:16pm

Hallo I'm new here and I have had LPP for 3 years.I am happy to have found this group.Here I see that some of you have tried the same drugs and creams as me.

Comment by Alice on March 13, 2013 at 6:25pm

Liz, the static electricity look and shorter hairs sticking out sounds as though your hair may be dry and breaking off. There are products available that are supposed to help this. Perhaps you could ask your stylist to recommend something. I've noticed that my hair is a lot drier than it used to be. Don't know if it's related to the FFA or not.

Comment by Jules UK on March 13, 2013 at 3:53pm

Liz, good luck Friday! I believe there is an excimer laser in Birmingham. I read about a man who had treatment for psoriasis. Would you ask Dr Harries if he knows of anywhere we could get treatment, even if it might not be available on the NHS? Are you staying overnight?
My hair is also feeling generally thinner but is receding more than ever at the front, in spite of all the treatments I'm trying. I feel as though I'd go anywhere and try anything sometimes. X

Comment by Liz on March 13, 2013 at 6:09am

Thanks Pam. I have an all over thinning of my hair. It's a lot different now than it was. I notice it especially before I do anything with it in the morning. It sticks out like there is electricity running through it. Also there is a lot more noticable shorter length hair thats about 3 or 4 inches long and this shorter hair sticks up!
xx

Comment by PamW San Diego, CA, USA on March 12, 2013 at 10:48pm

Hi, Liz. good luck with your doctor this week. if you get a chance can you ask the doctor if he recommends shampooing more often or less. is it better or worse for our scalps? Also, I have noticed that I can go for days with minimal hair loss and then all of a sudden if I run my hand through my hair, I will lose hair. it is not from the front or sides, nut rather an all over thinning. Is that typical,of what others are experiencing?

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