Comment

Comment by Debs on March 9, 2013 at 4:34pm

Wow, I like the sound of this laser treatment. There don't seem to be side affects using it either.

Comment by Alice on March 8, 2013 at 8:46am

Rebecca, the excimer laser treatment you referred to sounds very exciting, especially since it doesn't involve drugs w/ negative side effects. See http://archderm.jamanetwork.com/article.aspx?articleid=1105344
I agree that would be a great question for Liz to ask Dr. Harrise.

Comment by Debs on March 8, 2013 at 6:53am

Liz, if you check the previous page I posted some info for you a couple of days ago, I saw a page band wig that looks just like your hair in the photo on this site, on sale at the wigtrendz website. I have just got this new wig from them and have also ordered a page band wig too. I know you had mentioned you were looking at wigs a little while ago. I don't have any questions for Dr Harries, I stared on the hydroxchloroquine a few days ago. Take it with breakfast and dinner. No problems with it. Dr Harries is very nice Liz so you don't need to feel anxious talking to him, he is very understanding or our situation.

Comment by Liz on March 7, 2013 at 4:53pm

Debs, you look lovely. I want one! That's just the style I'd go for. It would give the hair that I've always wanted :o)
I am going to see Dr Harries next Friday. I am travelling up from Brighton for the day. I've never been to Manchester before so it's a shame I wont have more time there. Are there any questions that anyone feels it important that I ask, either for myself or for all of us. I'm a bit crap at talking when I'm nervous. I want to get as much out of this appointment as I can. Anything you all think I should ask would be helpfull :o)
xx

Comment by Alice on March 7, 2013 at 3:56pm

Thanks for re-posting the TED talks link, Susanne. When the speaker was talking about bald women in the movies, I immediately thought of the film "Grey Gardens", in which Drew Barrymore plays a woman w/ alopecia who a relative of Jackie Kennedy and wears turbans.
I don't have a favorite site for scarves, Debs, but have picked up some lovely vintage silk ones at second-hand shops. I've also been buying patterns for hats and headwraps, since I make most of my own clothes. Did I mention that I a bit of a cheapskate?

Comment by Simone NJ USA on March 7, 2013 at 3:28pm

Hi Everyone:

Debs..you look like someone from the roaring 20's!!! Nice look!!! Is this one of the hairpieces you recommended?

Comment by Kath UK on March 7, 2013 at 12:44pm

Debs - you look really great in the curly wig. I'm sending for a Henri Margu fringe thanks to your reccomendation. Hope it is as successful as your one.

Comment by Jules UK on March 7, 2013 at 11:51am

Debs, you look absolutely fantastic! You're sounding so confident and positive. Curls suit you!
Susanne, I have been careful about eating sensibly and thought I was actually eating better..... But just have that anaemic feeling. And I really miss baking. I've been gluten free for about a month and paleo for 2 weeks and it hasn't made a difference yet. I don't think I have the staying power if it's not helping...
Thanks for the link to TED. I missed it before.

Comment by Susanne on March 7, 2013 at 9:22am

Jules - Debs had posted this some time ago. I'll repost it here. http://www.youtube.com/watch?v=lrJom48KQA4
It surprises me a bit to hear that you're so tired from the paleo diet. I have found that if I follow it an eat right, I have plenty of energy, but I've also found it to be so restrictive that now I'm just leaning toward it rather than following it strictly. I've been eating some rice and having some wine. I've come to the conclusion that fanatical obsession with these things just isn't realistic for someone like me. Since I started eating gluten-free a couple of months ago I've seen less inflammation - with occasional flare-ups, but I have no illusions that my diet is going to bring this thing down.

Comment by Debs on March 7, 2013 at 9:03am

IMG_1095.JPGOMG just got the first of my 2 Henry Margu wigs, only ordered a couple of days ago, very good service and the website gives us VAT relief. My page band wig should be here in a couple of days. At least I am having a bit of fun from this condition.IMG_1096.JPG

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