Comment

Comment by Debs on March 12, 2013 at 7:24am

Liz, I have not heard of that specific hair system but I have met a lady with FFA wearing a hair system, it was excellent, she goes to a place in London www.greatlookinghairlondon.com mob 07949 207848 I would go to your place and maybe check these guys out too and see their prices. I met this lady in December at a support group meeting run by alopecia UK. I can definately recommend this salons work having seen how it looked on her.

Comment by Simone NJ USA on March 11, 2013 at 9:04pm

Hi Liz:

Let me know how it went & what they suggest...xx

Comment by Liz on March 11, 2013 at 12:47pm

Hi Debs. Yes I will mention it to Dr Harries on Friday.
Have any of you heard of 'Hair In XS'? They specialise in a mesh hair loss system apparently. I realised last week that thier shop is about a 5 minute walk from my home. I popped in to thier shop on Saturday and thier before and after pictures are very impressive. Anyway I have an appointment on Wednesday to learn more about it :o)
x

Comment by Debs on March 11, 2013 at 10:30am

Jules, yes I went back and looked his name is referenced but he may not be aware of the article if the Dr doing the researched was only referencing Dr Harries earlier work.
Liz, can you run this past Dr Harries on Friday please - EXCIMER LASER treatment with Alice's link below.

Comment by Jules UK on March 9, 2013 at 5:12pm

I don't know if anyone noticed, but one of Dr Harries' papers is referenced in the article, which suggets he may be aware of the research. It's exciting and at the same time frustrating to know something might help our condition but we can't get at it (yet)!

Comment by Debs on March 9, 2013 at 4:34pm

Wow, I like the sound of this laser treatment. There don't seem to be side affects using it either.

Comment by Alice on March 8, 2013 at 8:46am

Rebecca, the excimer laser treatment you referred to sounds very exciting, especially since it doesn't involve drugs w/ negative side effects. See http://archderm.jamanetwork.com/article.aspx?articleid=1105344
I agree that would be a great question for Liz to ask Dr. Harrise.

Comment by Debs on March 8, 2013 at 6:53am

Liz, if you check the previous page I posted some info for you a couple of days ago, I saw a page band wig that looks just like your hair in the photo on this site, on sale at the wigtrendz website. I have just got this new wig from them and have also ordered a page band wig too. I know you had mentioned you were looking at wigs a little while ago. I don't have any questions for Dr Harries, I stared on the hydroxchloroquine a few days ago. Take it with breakfast and dinner. No problems with it. Dr Harries is very nice Liz so you don't need to feel anxious talking to him, he is very understanding or our situation.

Comment by Liz on March 7, 2013 at 4:53pm

Debs, you look lovely. I want one! That's just the style I'd go for. It would give the hair that I've always wanted :o)
I am going to see Dr Harries next Friday. I am travelling up from Brighton for the day. I've never been to Manchester before so it's a shame I wont have more time there. Are there any questions that anyone feels it important that I ask, either for myself or for all of us. I'm a bit crap at talking when I'm nervous. I want to get as much out of this appointment as I can. Anything you all think I should ask would be helpfull :o)
xx

Comment by Alice on March 7, 2013 at 3:56pm

Thanks for re-posting the TED talks link, Susanne. When the speaker was talking about bald women in the movies, I immediately thought of the film "Grey Gardens", in which Drew Barrymore plays a woman w/ alopecia who a relative of Jackie Kennedy and wears turbans.
I don't have a favorite site for scarves, Debs, but have picked up some lovely vintage silk ones at second-hand shops. I've also been buying patterns for hats and headwraps, since I make most of my own clothes. Did I mention that I a bit of a cheapskate?

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