Comment

Comment by Simone NJ USA on March 2, 2013 at 5:20pm

Also:great Alice about the eyebrows..Jules, you commented that your FFA stopped for 8 years. When did it start again and if it has..what are you taking?

Comment by Simone NJ USA on March 2, 2013 at 5:18pm

Hi everyone:

I haven't been on the forum for a week now and am just catching up..thanks Debs for your advice on the wig.. Welcome Caro...

Comment by Debs on March 2, 2013 at 1:38pm

Liz, 'yes' my nails are different now. I had not noticed until I saw Dr Harries last Friday, he looked at my hands and asked if my nails had always had ridges, I hadn't noticed them before as it isn't very pronounced. I have since looked at the CARF website again and there are photos of finger nails with ridges running top to bottom for people with lichen planopilaris - and FFA is a variant of LP. My nails are strong and always have been so the ridges are a sign of my FFA but don't bother me. My eyebrows have not lost any more hair for over a year, I do have semi-permenant makeup on them but I can still see/feel my eyebrow hair and it hasn't grown back but has not shed since about November 2011 and I have not applied any creams to it.

Jules, are you also on the hydroxychloroquine sulphate?

Comment by Caro UK on March 2, 2013 at 12:32pm

Hi Liz, my fingernails are OK. No ridging, though some of my toemails are slightly discoloured and one is thickened but they've been like that for some years. I forgot to mention this to Dr Rajar. I had a look at some images on line which looked a bit like my toenails, though mine are not nearly as bad as some of the photos. I went to my GP to get my prescription for the meds and asked her to look at my toenails. Asked her if it could be Lichen planus? She didn't think so but said she would have clippings tested for ?fungal infection. Alice that's great news that your eyebrows are growing back!

Comment by Alice on March 2, 2013 at 8:38am

My nails are very weak. I keep them very short because they peel and split so badly. I've been taking Biotin supplements and using paint-on nail hardeners, all to no avail.
I've been using Elidel on my eyebrows for months and most of the hair there has grown back. I tried using it along the hairline but haven't noticed any difference there.

Comment by Susanne on March 1, 2013 at 5:27pm

My nails are ok. A few months ago I agreed to participate in a dermatology clinic session at the university medical center and everyone who had a look at me checked my nails. I didn't know why at the time.

Comment by Jules UK on March 1, 2013 at 5:14pm

I saw Dr Harries today. Some "good news", or so I thought, was that my hair has already receded 2 cm at the front but because I had a low hairline, it doesn't show too badly. The sides, however, could continue receding, he said. And they've already gone back miles.
He said that the average amount of frontal hairloss was about 4 cm, max 8 cm. He didn't know what % of patients lost the maximum 8 cm. He knew of no correlation between hairloss elswhere on body and how far back head hairloss would go, nor how fast it could progress. It's different for everyone. Regarding Griseofulvin, it wasn't something he would consider prescribing for FFA, but if it worked for someone, he'd be open to using it. I asked about fucidin - he said it probably had no effect on the FFA and the fact that mine seemed to stall after using Fucidin was coincidence.
So, I went armed with a list of questions, but mostly he had to reiterate what we already know - there are no hard and fast rules.
I'm carrying on with Doxy for a further 3 months to give it chance to work.....plus elidel - a weaker steroid cream than dermovate so it doesn't thin the skin. And he thinks that it might have some effect when used alongside antibiotics. I've declined injections for now. Next appt in June.
4 days on paleo diet - no improvement yet!
Liz, I haven't noticed a problem with nails.

Have a good weekend everyone.x

Comment by Liz on March 1, 2013 at 12:34pm

Hallo everyone.Hope you are all having a nice day :o)Can I ask about your nails? I read today that alopecia and nail pitting quite often go together, although the article I read refered to alopecia areata. I'd looked up to see what I could find becuase I've had ridges on my nails for years (top to bottom) and in the last 6 months or so they've also been a bit bumpy (I cant thing of a better word) in the other direction. Any one alse have this, or not?
xx

Comment by Caro UK on February 28, 2013 at 10:11am

Hello again everyone and thank you so much Celia for your welcome message and invitation. I would love to come if I can.

Comment by Debs on February 28, 2013 at 8:15am

Thanks very much ladies for that info, I will treat these injections with caution if I am given them on my next visit.

• ‹ Previous
• 1
• …
• 447
• 448
• 449
• 450
• 451
• …
• 507
• Next ›
• Page