Comment

Comment by Susanne on March 1, 2013 at 5:27pm

My nails are ok. A few months ago I agreed to participate in a dermatology clinic session at the university medical center and everyone who had a look at me checked my nails. I didn't know why at the time.

Comment by Jules UK on March 1, 2013 at 5:14pm

I saw Dr Harries today. Some "good news", or so I thought, was that my hair has already receded 2 cm at the front but because I had a low hairline, it doesn't show too badly. The sides, however, could continue receding, he said. And they've already gone back miles.
He said that the average amount of frontal hairloss was about 4 cm, max 8 cm. He didn't know what % of patients lost the maximum 8 cm. He knew of no correlation between hairloss elswhere on body and how far back head hairloss would go, nor how fast it could progress. It's different for everyone. Regarding Griseofulvin, it wasn't something he would consider prescribing for FFA, but if it worked for someone, he'd be open to using it. I asked about fucidin - he said it probably had no effect on the FFA and the fact that mine seemed to stall after using Fucidin was coincidence.
So, I went armed with a list of questions, but mostly he had to reiterate what we already know - there are no hard and fast rules.
I'm carrying on with Doxy for a further 3 months to give it chance to work.....plus elidel - a weaker steroid cream than dermovate so it doesn't thin the skin. And he thinks that it might have some effect when used alongside antibiotics. I've declined injections for now. Next appt in June.
4 days on paleo diet - no improvement yet!
Liz, I haven't noticed a problem with nails.

Have a good weekend everyone.x

Comment by Liz on March 1, 2013 at 12:34pm

Hallo everyone.Hope you are all having a nice day :o)Can I ask about your nails? I read today that alopecia and nail pitting quite often go together, although the article I read refered to alopecia areata. I'd looked up to see what I could find becuase I've had ridges on my nails for years (top to bottom) and in the last 6 months or so they've also been a bit bumpy (I cant thing of a better word) in the other direction. Any one alse have this, or not?
xx

Comment by Caro UK on February 28, 2013 at 10:11am

Hello again everyone and thank you so much Celia for your welcome message and invitation. I would love to come if I can.

Comment by Debs on February 28, 2013 at 8:15am

Thanks very much ladies for that info, I will treat these injections with caution if I am given them on my next visit.

Comment by Liz on February 27, 2013 at 10:54am

I have an indentation which starts at the point where my old hair line was. I've never had injections so maybe for some of us it is the condition itself which causes the indents.
x

Comment by ChrisC. Chicago, IL on February 27, 2013 at 10:26am

My indents got better. . . I had injections quite a bit from last November through June. I had a deep one that ran down my forehead. They are all filled in and when I transferred to Dr. Barbosa, she insisted that I stop the Clobetesol as well. the skin at my temples was very thin. I have used Protopic when inflammation pops up. But since taking the Plaquenil, the inflammation at my temples and above my ears has totally disappeared and the most worrisome is that the top of my scalp along the hairline is still showing red around the follicles and is thinning.

Comment by Alice on February 27, 2013 at 10:04am

I think tissue atrophy and loss of pigmentation are known side effects of cortisone injections, though not necessarily common. Years ago, I got a cort shot in my elbow for tendonitis. Not long after, I noticed the bone was very prominent and the skin had turned very white. The skin color finally came back but the tissue is still thinner than the other arm. I would imagine that de-pigmentation would not be noticeable on the scalp but tissue atrophy would look like dents. I believe my derm told me that long-term use of Clobetasol can cause the tissue to thin, too.

Comment by Debs on February 27, 2013 at 3:16am

Rebecca, I did ask about the indentation that the steriod injections leave and Dr Harries said they go but it can take several months... is that your experience? or do the dents stay forever? I don't fancy making my scalp look as you have put it 'like a skull'. Liz, I am so sorry your hair loss is bad at the moment, I know you are probably not going to be able to take the hydroxychloroquine but as you say maybe if you restart the doxycycline it was slow it down again. Welcome to the group Caro, we have already been chatting on the alopecia uk website. Glad you have also joined this group. xx

Comment by ChrisC. Chicago, IL on February 26, 2013 at 10:59pm

I'm alittle jealous of all the Brit ladies being able to get together. . . anyone in Chicago??

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