Comment

Comment by Debs on January 24, 2013 at 3:54am

Hi Liz, It would be lovely to meet up, I am in Surrey but can of course drive to meet up with you.

I don't have any medical condtions, apart from FFA! I did start another thread 'other autoimmune related health problems' so I am keeping any watch for any other nasties happening in the future.

I don't have wispy bits at my former hairline. Last night whilst taking off my wig I accidently 'waxed' about half a centimetre of hair off my hairline. I was using wig tape for the 2nd time and I took my wig off, this left the wig tape on my head. I should have used my rubbing alcohol on a piece of cotton wool to remove the tape but I didn't bother and just pulled it off, thereby effectively waxing some of my remaining precious hair. It came out with no pain as it was already about to fall out. I found it quite funny as I am running about like a headless chicken trying to save hair and I go and wax myself! XXXXX

Comment by Liz on January 24, 2013 at 3:49am

I wonder if men do get it but dont think of it as anything other than going bald?

Comment by Debs on January 24, 2013 at 3:43am

Minnosotamom, Please do inform your derm that Black women (indeed females of all ethnic groups) get FFA. I am Black, Lace has already responded to you on this forum and I know of another Black British lady that has FFA. So out of a total of 32 females that I now of with FFA - 3 of us are Black. This condition is exclusive to women that is about all that can be said of it and age appears to be a factor. Welcome to the group, Deb xxx

Comment by Liz on January 24, 2013 at 2:51am

Good morning everyone :o) I hope everyone has a lovely morning, evening and night. I'm off to work in a minute. Can I ask 2 questions. 1. Do those who have whispy bits of hair where thier hairline once was, shave those bits off? And how long do they take to grow back and does it irritate that part of the scalp? And also, Who else suffers from allergies? I have excema, hayfever, allergic rhinitis and asthma. xx

Comment by Judy on January 23, 2013 at 11:11pm

Another question. I'm going to try Biotin - does anyone else take it? I know these things can be false hopes, but why not?

Comment by Judy on January 23, 2013 at 10:58pm

Hi, I agree about antibiotics destroying your bacterial balance. I always take the probiotics if I MUST take an antibiotic. Recently I asked my doctor what I could do to improve setting off this aauto-immune disorder. She recommended probiotics and stree reduction. I had not considered taking probiotics all the time. Thanks for the reminder.

Comment by ElleMN, USA on January 23, 2013 at 10:39pm

Hi Lace! I'll let my dr know about you; you'll debunk her theory. Another thing she told me was that this was first diagnosed in 1994 but that in the last few years there has been a huge upswing in cases. Why now?

Comment by ElleMN, USA on January 23, 2013 at 10:18pm

Dr H also has me switching between the DHS and H & S classic clean, and shampooing every day (normally I would shampoo every 2 or 3 days--these Minnesota winters are pretty dry).

PJ-- interesting take on antibiotics; I have the opposite hypothesis. I was taking antibiotics a lot and I think I messed up my body's bacterial balance. I've been taking kefir to try to boost my good bacteria. Have you heard of the Human Microbiome Project? Just another thought to try probiotics.

Comment by Lace on January 23, 2013 at 10:13pm

To Minnesota Mom:

I'm Black, and i have it; it could be more prevalent with people of European descent, but it's not exclusive to them.

Comment by PJ - MN, USA on January 23, 2013 at 9:00pm

PamW - it is the Classic Clean 1% zinc for the Head & Shoulders. The DHS shampoo has 2% zinc in it.

Ellen and I see the same Dr. Which is very interesting hearing our different treatments, but yet some of our early symptoms and such are very similar. Good to hear you have had the dents dissapear that soon. I've had mine 1 1/2 months now and no signs of dissapearing. I use the generic Retin-A on my face for my rosacia and the bumps that go with it. So far I don't see a change. Still have bumps and a red face. I've been teased since I was young about my red face and how easily I get "embarassed". My rosacia has bothered me more over the years than the hairloss. I really feel that FFA is caused by something in our environment or a chemical in a product that we have used or ingested. I have been on antibiotics alot over the years. I wonder if that has helped in keeping my FFA from being as advanced as others that have had it as long as me.

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