Comment

Comment by ChrisC. Chicago, IL on January 11, 2013 at 7:58am

Let us know if we can participate across the pond as well. I think we'd all be interested in getting to the root of this problem. (sorry for the bad pun)

Comment by Jules UK on January 11, 2013 at 6:22am

Hi Liz, Just wondered why you stopped the meds after 5 weeks rather than carrying on for 8? I'm tempted to stop everything to see if hairloss slows, but I'm aware that it can take a while for their effect to kick in. It's so hard when you know that every hair lost is gone for good!
Debs, you're quite right about the shampoos etc. The questonnaire asks detailed questions about skin and hair care products. I'm trying to remember what I've been using over the years I've had this. I'm hardly brand loyal! But this questionnaire is a good start.... and I'm grateful to be involved.

Comment by Debs on January 11, 2013 at 3:48am

Hi Celia, fantastic news about the survey, I will definately take part. Jules, I am computer literate but I rarely have to use a computer of any kind in my job. So I can say with certainty that I have not got FFA as a result of using technology. Please don't think that you have contributed to having FFA by your career choice. I was told by my derm that it may be chemicals used in shampoos and hair dyes etc.. the bottom line is the doctors don't know, it may well be a combiniation of things and an inherited predisposion to be sensitive to certain chemicals... if the doctors in the UK and Canada can pool their data that will give them a much better chance to find out what the triggers are. At least some research is being done.

Comment by Liz on January 10, 2013 at 5:45pm

Hi Jules. I was losing a lot of hair. I then took 5 weeks of prenisolone and doxycycline. I was prescribed 8 weeks but stopped at the 5. Now my hair loss is minimal. Not sure if it was due to the medication or it would have happened anyway but I have lost lots this year and the slow down conincided with the medication, after taking it for those 5 weeks it slwed right down x

Comment by CJ- Christine from Ottawa Canada on January 10, 2013 at 3:14pm

Hi all,
I'd love to participate. Do you have an email address for your Dr. Harries??? I just filled in one for Dr. Donovan here in Canada and let him know that if he wants we can put it online and get all of you to fill it in too. so far, no response. It would be good if they pooled their responses/data.

Comment by Jules UK on January 10, 2013 at 2:41pm

Hi, I too received one of Dr Harries' questionnaires today. The last question made me go cold - do you regularly use a computer screen? I've been an ICT trainer/ teacher since 1982! Of course, I know at this stage it means nothing but .......
Celia - thanks for the info re eyebrow tattoos. I'll look into it, but Surrey is a long way for me.
Hairloss is getting quite bad at the moment. Whether this is linked to using Protopic and Doxy... i don't know. Has anyone noticed improvement with any medication?

Comment by Liz on January 10, 2013 at 10:53am

Will you ask if we can all access and fill it in online or shall I phone and ask for one individually? x

Comment by Liz on January 10, 2013 at 9:37am

Hi Celia. I shall write or phone and ask to be included in the research x

Comment by PamW San Diego, CA, USA on January 9, 2013 at 10:43pm

Judy, your comment box was empty. How did things go for you at the doctor?

Comment by Judy on January 9, 2013 at 9:53pm

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