Comment

Comment by ChrisC. Chicago, IL on December 5, 2012 at 9:28am

Good Luck Pam!!
Did you ever get feedback from Carol Sue on her experience with ACTOS? Do you feel that the Plaquenil did not work and are you still taking that as well?

Comment by Lace on December 5, 2012 at 9:27am

Sounds good.

Comment by PamW San Diego, CA, USA on December 5, 2012 at 9:24am

When Judy gets back to town, let's meet for coffee.

Comment by Debs on December 5, 2012 at 8:48am

Hi Pam, good luck with the actos. X

Comment by Lace on December 5, 2012 at 1:40am

Hey Judy--I just read about it on the internet; apparently they have meetings every other month at the Mission Valley Library. I think I missed their November gathering, but will try to make the next one.

I just checked the website: there's some social event happening on the 8th of this month. For your future reference, the website is:

http://www.alopeciaareatasandiego.org

I hope you do some events--I would love to meet you, and Pam as well. It would be a shame if we all lived in the same area and never met.

Comment by Judy on December 4, 2012 at 10:39pm

Lace, as I am rather new to this, I would appreciate your info on the San Diego group. From what some of the ladies have been saying the support groupa are helpful. I am out of town right now but return to SD soon.

Comment by PamW San Diego, CA, USA on December 4, 2012 at 10:36pm

Started Actos tonight. Keep your fingers crossed for me! My dermatologist said to use the Clobetasol on areas that have redness. It works by stopping the itchiness and the inflammation. Be careful on areas near temples and nape of neck because it can cause thinning.

Celia, you will love your eyebrows. My gal said they have to be touched up every year.

Wonder if we can skype with each other????

Comment by Lace on December 4, 2012 at 7:27pm

There is a support group in San Diego that I am thinking of attending; I think it's so true that being around others who are experiencing the same thing is healing. I so appreciate this forum, even though I post rarely; but I also look forward to being in the company of women who have walked this journey.

Comment by KarenGinny - Iowa, US on December 4, 2012 at 4:07pm

Oh and Celia, you are right, if it was the doctor's wife or mother being affected they would much more concerned about it and looking for treatments. I've heard there is an Alopecia support group in Omaha, Ne which is near me but I haven't gone to a meeting. I should look more into it.

Comment by Heidi Short UK on December 4, 2012 at 4:03pm

Hi everyone! Celia your eyebrows will calm down in a few days, I love mine, I feel more complete with them, just make sure you keep them from drying out for the first week, as if they scab up too much it will lift the pigment too.
Liz have you thought of jumping the que to see a private dermotologist. When I was first realised I had a problem and it wasn't going away my GP did lots of blood test but nothing was found, he then suggested I saw a derm I was sobbing so much I think he was embarassed!! I was in such a state I asked if I could go privately, he wrote a letter straight away and then I rang my local Nuffeild private hospital and I got an appointment 2 weeks later. It cost £150.00 for my first consultation and £90 for a follow up about 6 weeks later. Once I realised that there was not much else he could do and so I didn't have to pay any more I asked my GP to put me under the NHS derm, thats who I am with now. I know it is a lot of money but I rather that than waiting around getting more and more depressed and ancious, it was a small price to pay for peace of mind!

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