Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Jul 14

Discussion Forum

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

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Comment by Debs on December 2, 2012 at 6:32am

Celia, thanks so much for passing on this info. At least we all know what the options are for us and we are as best informed as the dermatologists themselves. I am very pleased for you that Dr Harries gave you some treatment on the day. Both you and Pam have now mentioned the anti-malarial meds as a treatment. I will look into that too. Thanks again, enjoy your weekend. XX

Comment by Jules UK on December 2, 2012 at 4:25am
Good morning! I wondered whether anyone has tried protopic cream. Since Dermovate isn't helping any more, I've been given this to try. I'm. Bit worried that there's a warning with it about skin cancer, which I've had twice, and that you can't drink alcohol! No wine over Christmas....., I just can't remember if anyone's mentioned it before. I agree that it's puzzling that there's no news from celia, but I'm sure she'll be in touch when she's ready to talk. Hope she's ok. X
Comment by Anabela on December 1, 2012 at 5:41pm

Good evening to all.
One of the best Portuguese dermatologist that I consulted in Oporto, told me that the implant is not possible, since the skin is healed, therefore, has no pores to breathe. He gave me an example, "it's like trying to plant trees on cement." We can only hope that the hair stop falling.
So, let's enjoy the weekend and relax our mind and be happy!!!

Comment by MairiM on December 1, 2012 at 4:42pm

Pam - I haven't had any hair loss with the Minoxidyl. I've been making partings all over the top of my head and applying it. My thinking was that I need this hair to be in good condition to cover up the gapsin front! This may be totally wrong, but there's no clear guidance from the medics. The minoxidyl was prescribed by my consultant - we are lucky that we get prescriptions free in Scotland.

Comment by Debs on December 1, 2012 at 2:45pm

Pam, I was thinking the same as you... Celia may just be having some time to relax after her consultation on Thursday, I certainly hope that she did not have any upsetting prognosis. xx

Comment by PamW San Diego, CA, USA on December 1, 2012 at 11:25am
Yes, I am concerned that we have not heard from Celia. I hope she is ok.
Comment by Debs on December 1, 2012 at 1:44am

Hello Pam, thanks very much for posting this info for us all to share. It will be interesting to compare the advice Celia is given by Dr Harries. I hope you are able to relax a bit now and enjoy your weekend. xx

Comment by PamW San Diego, CA, USA on November 30, 2012 at 11:08pm
Judy, her name is Dr. Caroline Goh. She has alopecia.Check out the UCLA dermatology website.
Comment by PamW San Diego, CA, USA on November 30, 2012 at 11:00pm
it was a woman doctor but i dont remember her name. I will google it and see if I can come up with it for you. The one to really see is Dr. Vera Price in San Francisco. She has done the most research.
Comment by Judy on November 30, 2012 at 10:56pm

I am on straiaght Medicare so I think it would be covered for me, plus my best friend lives very close to UCLA - her husband works there.. How did you hear about this doctor and do you remember his name??

 

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