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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 599
Latest Activity: Jul 25
Discussion Forum
Dermatologists who specialize in alopecia?
Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
Food Allergy Testing question
Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
Hair Toppers
Started by Leni. Last reply by Lang Bozic May 22. 10 Replies 0 Likes
I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue
Get Ahead of Hairloss Event plus new information on FFA
Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies 1 Like
Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue
Comment Wall
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Comment by Judy on November 18, 2012 at 11:45pm
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True....... Recently, before I knew I had FAA, I visited my family and forgot my eye makeup --- my grandchildren were fascinated!! My grandson kept telling people "Look! my grandma doesn't have eyebrows!!"
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Comment by Lace on November 18, 2012 at 11:14pm
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What would be worse is if you only put one on!
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No, it really doesn't itch, only occasionally. I guess I am lucky. Thanks for the tip on Good Person. Are you happy with them (tatoos)?
Yesterday I bought a chubby eyebrow pencil from Clinque - I think I can learn to do it but what a PAIN!! (especially when I go out, forgetting that I didn't put it on!!!!)
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Comment by PamW San Diego, CA, USA on November 18, 2012 at 9:58pm
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judy, I went to. Good person for eyebrows. She is in Poway.
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It is good that the redness is gone. Does your head itch or burn like mine?
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Interesting about the clobestasol - I also think my hair is thinning on the scalp but maybe it's an illusion? .... Because the redness is gone now. My dermatologist said to takke the 2 pills together - 400 mg total/day. I questioned that also but she stuck to the 2 together.
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Yes, 200 mg twice a day. I can't imagine taking both pilss together. I am also still taking the Doxy, which I think is actually helping with my rosey cheeks. Clobestasol on the red scalp, but I think it is thinning my hairline.
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Comment by ChrisC. Chicago, IL on November 17, 2012 at 12:26pm
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The Protopic is alittle sticky as the base is like vaseline. But I only put it at my hairline where the redness exists around the follicles. I am looking into a compounded prescription with the tacrolimus in a Cetaphil lotion base. My derm wrote a script for it but I have yet to get a cost. Will let you know. . .
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I am only taking 200 mg of Plaquinil once per day. Are you both taking a total of 400 mg per day?
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Judy, why are you taking the two pills together? One in the morning, and one at night with food makes it easy for me.
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