Comment

Comment by Judy on November 16, 2012 at 9:16pm

Hi all, I have a few comments to these discussions if I can figure out HOW to comment - I am new to this.
I was diagnosed with FAA 10 days ago and it seems I must have had this for some time. Loss of hair on legs and arms for many
years, loss of eyebrows 2 years, which really was upsetting. I kept asking my dr about it and she would say ... It was just part of getting old!!!! My hair loss is 1-2" and I was so ignorant about what was happening that I just ignored it.
2. My dermatologist put me on Hydroxychloride (anti-malarial) med and the steroid med, . I was very reluctant to take the Hydroxy.... because of the MANY MANY side effects but learned that the eye problems only come after long use. My dermatologist felt that it "might" stop the loss and was worth a try. Does anyone else take it and have they had side effects???
I have been sick (stomach related) for 10 days but decided to
keep on it for another week or two.
It is amazing how upsetting this is and how noone else thinks it is a big deal - there are so many emotions popping up!
3. I am supposed to swim for excercise but this also bothers me.
Does anyone else swim and how do you handle it??

Comment by Judy on November 16, 2012 at 8:57pm

Comment by Debs on November 14, 2012 at 11:59am

Celia, another question for Dr Harries... a lot of us are using steroid lotions (dermaovate and betnovate etc.) is it safe for us to use steroid lotions for a long period of time? We all seem to have been given instructions by our derms as to how long to use them for. Many thanks xx

Comment by Debs on November 14, 2012 at 4:01am

Jules you don't need to get a custom made wig (unless you want to) an average size wig will fit 95% of people and you can loosen/tighten it to suit your head with little straps inside (ike a bra strap to get the picture but much smaller!) because we have a medical condtion we dont have to pay VAT - so online you can order and wig and ask for VAT to be knocked off.

Comment by Jules UK on November 13, 2012 at 4:31pm

Has anyone lost hair from the back, or lost their eyelashes? Heidi's photo looks great, by the way. I'd never guess she had hairloss?

Comment by MairiM on November 13, 2012 at 3:40pm

If anyone is worried about privacy on the Facebook page, perhaps its better to turn Notifications 'OFF' and just check out the page from time to time. If you leave yourself logged on to FB, as I often do on my ipad, people can (partially) see the FFA comments in the Notifications list.

Comment by MairiM on November 13, 2012 at 3:29pm

Question for Doctor Harries - In patients where he has seen the FFA burn out, how likely is it to return?

Comment by Heidi Short UK on November 13, 2012 at 3:23pm

Thought I'd update my photo as the last one was taken 2 years ago,this was taken a month or so ago. Its only taken me 30 minutes!!!Jules as I have said before I noticed my hair was receeding in January and now mine has probably gone back 1 inch at the front but the side bits ( the bits where men receed each side of the fringe)has gone back alot further probably 2.5 inches. My fringe still covers it as long as there is no breeze as you can see by my new photo!

Comment by Liz on November 13, 2012 at 3:15pm

My hair has receded about 1 and a half inches since Christmas and another 1 and a half inches behind that has thinned. Also I have lost a lot from my temples and half of one eyebrow.

Comment by Jules UK on November 13, 2012 at 2:51pm

Hi all. Can anyone say how quickly hair recedes at the front once it gets started? I suspect it's different for everyone, but does it disappear maybe an inch or so and then stop for a while or will it keep going? Mine is thinning alarmingly at the moment. Worried there won't be too much for dr harries to see..... And can you buy a hairpiece over the counter to tide you over until a custom made one is ready? I've got some research to do! Debs, your hairpiece looks fantastic!

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