Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Liz on November 12, 2012 at 10:02am

I was offered the anti malarials first but I didnt want them becuse the forst thing the doctor said was that can cause eye damage. He then told me that this was rare but I have problems with my eyes and so for me it wasnt worth the risk.

Comment by Debs on November 12, 2012 at 9:39am

Anti-malarials.... I have been in contact with a lovely lady on the Alopecia UK website who was diagnosed with FFA in 2006. She sent me an informative email detailing all the treatments she has tried. She stressed the importance of an early diganosis, before you lose too much hair and she did think based on her experience that maybe I would have been offered the anti-malarial treatment option at this still quite early stage in the condtion. My derm here in the UK, Surrey has not offered this... has anyone used/is using anti-malarial drugs, I know this is a treatment option for FFA but don't know why I wouldn't have been offered ?????

Comment by Debs on November 9, 2012 at 12:44pm

Hello Celia, 'bangs' are a fringe in the US. The lady I had my eyebrows tattooed last November has a beauty salon in Richmond, she did a very nice shape and I am happy with them BUT... she did a block of colour and I have since seen people with individual little lines that look remarkably like real hairs from other salons. In my local paper there have been 2 articles about a lady in Chertsey, Surrey that is supposed to be one of the best, she does the little lines so it looks like hair growing and she has worked on the Olympic Gold medal cyclist that has alopecia...

www.belindahayle.com Belinda Hayle 01932 566776/07976

I have not used Belinda yet because my brows are still dark enough from a year ago but I will go to her when I need a top up.

Comment by PamW San Diego, CA, USA on November 8, 2012 at 9:45pm
You will love it. The first few weeks you will be too dark. Give it time and you wont regret it. If I had to draw on eyebrows AND fix my hair, I would never get out of the bathroom. Good luck to you!
Comment by CJ- Christine from Ottawa Canada on November 8, 2012 at 8:51pm

I think its only on the face, BUT who knows!!! The only thing I`m learning is that not that much is certain and lots is uncertain. I`m looking into tattooing!

Comment by PamW San Diego, CA, USA on November 8, 2012 at 5:49pm

I have red spots between my eyebrows - on the bridge of my nose. CJ is it only on the face? I think I have a rash on my arms sometimes.

Comment by PamW San Diego, CA, USA on November 8, 2012 at 5:48pm

Comment by Heidi Short UK on November 8, 2012 at 3:46pm

Funny you should say that CJ, when you look at my forehead under a light it looks as if I have got a rash under my skin. I wandered if it was to do with FFA, I was going to ask my derm next visit. Did you find any thing else interesting about ffa?

Comment by CJ- Christine from Ottawa Canada on November 8, 2012 at 2:01pm

HI All,
I learned at the Skin Matters conference that FFA can cause 'bumpy skin' or bumps on the face. I have noticed that my skin along the jaw line had changed texture over the last year and I assumed it was age related but apparently it is something often seen in FFA. Its kind of crepe- like with bumps that look like very small emerging pimples that don't go on to become pimples... hard to describe really. anyone else have this?

Comment by KarenGinny - Iowa, US on November 8, 2012 at 1:33pm

I've been using Neutrogena T-gel shampoo for scalp irritation for about a year now. I've also tried Nioxin shampoo and conditioner but I use the t-gel more since it is less expensive. It seems to help control the itching and irritation pretty well. - Karen

 

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