Comment

Comment by PamW San Diego, CA, USA on September 18, 2012 at 7:32am

My derm knew it was FFA as soon as I told her about the eyebrows. She called it Post-Menopausal Front Fibrosing Alopecia - and doctors do believe that there is a hormonal trigger. Chris, I had a hysterectomy but my ovaries were left. That's why I was never sure when menopause started -- but I have to say that my hot flashes were really, really bad this year.
Also, every one of my siblings and my parents have or had autoimmune diseases - diabetes, Chron's, and Pemphigus. I thought I was going to be lucky. I am an ex-smoker but I don't really drink - only an occassional glass of wine.

Comment by Debs on September 18, 2012 at 2:43am

Hi Ladies, I am 49. I noticed that my eyebrows were falling out (and not growing back) about 18 months ago. I had my eyebrows tattoed last year, I still have a little eyebrow hair but not much. I have not gone through the menopause yet, however I only menstruate about 3 times a year so I am heading that way. I have not heard of anybody having FFA that is in their 20s or 30s... so maybe it is linked to hormones changing as we age..

Comment by ChrisC. Chicago, IL on September 18, 2012 at 12:34am

Hi all,
I'm 57. . . started noticing the lack of eyebrows two years ago. Had a hysterectomy when I was 46. . . I had my ovaries out as well. I was wondering if that had anything to do with it, but some of us are just going through menopause so that's not part of the equation. hmmmm. . . Live in an urban area (Chicago), don't smoke, drink in moderation . . . maybe it is all the diet soda I consumed over the years!? :-) There is a history of some conditions in my family that are thought to be autoimmune . . . Vitiligo, ankylosing spondylitis, eczema. Not sure if that is related, but wonder.

Comment by CJ- Christine from Ottawa Canada on September 17, 2012 at 10:26pm

I am 52.. literally going through menopause at the moment. hot flashes.. missing periods etc.. cranky too.

Comment by PamW San Diego, CA, USA on September 17, 2012 at 7:50pm

I am 55 and noticed my eyebrows and hair loss in March of this year. I got the official diagnosis in July. I don't really know when my menopause started - it seems like forever.

Comment by PamW San Diego, CA, USA on September 17, 2012 at 7:48pm

Comment by PamW San Diego, CA, USA on September 17, 2012 at 7:48pm

Comment by KarenGinny - Iowa, US on September 17, 2012 at 6:18pm

I am 47 and have been dealing with this for about 2 years now. I'm not in menopause yet but probably heading that way.

Comment by Heidi Short UK on September 17, 2012 at 4:44pm

I'm 48 and I was 43 when I started going through the menopause. It's early I know, as my sister who is 3 years older than me is still having periods and she is 51 now, I haven't had one for 5 years! I thought I had early menopause because I smoked up until I was 43, but now I think perhaps this is all connected!
Mairi I looked up the Rosa monkton interview and I agree it looks like she has our problem, I'm not on twitter either so I can't check if she has written anything, I looked on the internet with her name but I didn't find anything.

Comment by MairiM on September 17, 2012 at 12:55pm

What are your ages? I am thinking that I might be very much the oldest (I am 66), but I have had this disease probably less than two years like the rest of you.

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