Thanks for your reply! Your word "The disease calls the shots".., I can't agree more now that I have ohiasis since 2011.
I am hoping..., that this stops here and will not advance further.
Is ohiasis is just the precursor to universalis, or ohiasis likely stays as ohiasis??
I had a pin-point-stress related hair loss in 2009 by diffusing but all of my hair came back without any treatment after I got rid of the stressors. Alopecia started in 2014 with patches, after my life became stress free!
I was wondering about starting a post if anyone here still believes our alopecia somehow was caused / triggered (and staying as is) because of the stress - now that you mentioned it!
I am sure all of us here got get annoyed when someone who knows nothing about hair loss tells that it's stress related. Same for me too but now I am round the clock again started thinking, maybe it is deeply rooted to my mentality.
My stress-related hair loss has been the diffusion not ohiasis but maybe it's time to review that self analysis.
This time, my ohiasis advanced a month ago and I think it is directly related to the hormone injections for IVF I did 3 months ago.
I am just hoping to get back to the level of ohiasis I had last year and don't have a hope up so high as to "be healed" completely. It may or may not happen with or without treatment like you said..
Yeah, all those "snake oil sellers" .. don't worry, I am not a believer. :)
Thanks for your reply! Yeah I see that Alopecia World is not very active and also I can’t find any similar forum anywhere else! I think there is a Facebook group but not like a forum where people can discuss by topic / post. I like forum style because you can keep up with the post by the specific topic!
Thanks for your story. I hope mine stays on ohiasis or go back to patches… But I think we don’t really hear “recovery story” in this forum because then people simply leave forum and get on with their other life!
You said you were stressed before you lost critical mass of hair, were you stressed because of the hair loss or were there other known stress cause?
To me, it looks like I have diffusion when I get visibly stressed not ohiasis. Everyone is different, I think.
And diffusion is not happening now that I don’t have visible or known stress at the moment! I think my ohiasis advanced due to the hormone injection for IVF 3 months ago. If that is the case, I hope to get some hair back...
Started laser treatment and minoxidil… I don’t really have much hope in treatment just like most of us here gave up on treatment after years of trying. I think I will just give one more try and if it doesn’t do anything then will again, stop treatment and switch to “do nothing, see how it goes” method.
Hi! I just found this group and can relate to all comments here. i have been on alopecia world for a while, but the stubborness of the ophiasis pattern (AA to AT) has always been pointed out to me by my derms. i was on xeljanz, but became non responsive after a year and then i cut off all my hair. i found a drug trial from concert phamaceuticals in August 2018 and have great results. I know not everything works for everybody but i have 95% of my hair back. it is less dense in the ophiasis areas, but is definitely growing hair in areas that had not grown in years. I have had alopecia on and off for about 22 years. I am sending this note to give you guys hope that they are coming very close to a treatment for this condition. I am now on this drug until it comes to market. Stay encouraged!
TG
Hi RossG
Thanks for your reply! Your word "The disease calls the shots".., I can't agree more now that I have ohiasis since 2011.
I am hoping..., that this stops here and will not advance further.
Jun 25, 2020
TG
Hi 5DH
Thanks for your reply! Yeah I see that Alopecia World is not very active and also I can’t find any similar forum anywhere else! I think there is a Facebook group but not like a forum where people can discuss by topic / post. I like forum style because you can keep up with the post by the specific topic!
Thanks for your story. I hope mine stays on ohiasis or go back to patches… But I think we don’t really hear “recovery story” in this forum because then people simply leave forum and get on with their other life!
You said you were stressed before you lost critical mass of hair, were you stressed because of the hair loss or were there other known stress cause?
To me, it looks like I have diffusion when I get visibly stressed not ohiasis. Everyone is different, I think.
And diffusion is not happening now that I don’t have visible or known stress at the moment! I think my ohiasis advanced due to the hormone injection for IVF 3 months ago. If that is the case, I hope to get some hair back...
Started laser treatment and minoxidil… I don’t really have much hope in treatment just like most of us here gave up on treatment after years of trying. I think I will just give one more try and if it doesn’t do anything then will again, stop treatment and switch to “do nothing, see how it goes” method.
Jun 25, 2020
Chi_Loss
Hi! I just found this group and can relate to all comments here. i have been on alopecia world for a while, but the stubborness of the ophiasis pattern (AA to AT) has always been pointed out to me by my derms. i was on xeljanz, but became non responsive after a year and then i cut off all my hair. i found a drug trial from concert phamaceuticals in August 2018 and have great results. I know not everything works for everybody but i have 95% of my hair back. it is less dense in the ophiasis areas, but is definitely growing hair in areas that had not grown in years. I have had alopecia on and off for about 22 years. I am sending this note to give you guys hope that they are coming very close to a treatment for this condition. I am now on this drug until it comes to market. Stay encouraged!
Jun 29, 2020