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Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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Dotty

Hi Cheryl,
All I can say is WOW and Thank You!!!! You two are so awesome. I'm so happy to be a part of this group. Thank RJ for me. This site is going to be HUGE!!!!!

Mar 10, 2008
Janna

I wanted to send my thanks along to you and RJ, as well. This site, and the others that you upkeep, are a blessing to those of us touched by alopecia! It's so good to spend time with people who understand what it's all really about...beyond skin deep.

Mar 10, 2008
Åsa

Thanks for a lovely group I´m gonna spread the word with my other alopecian friends here in Sweden! Really happy for the "new" alopecians who now have the support that I looked for 15 years ago... Feels wonderfull to see that your not alone... :)

Mar 10, 2008
Karen Martin

Thanks...this is really nice. When I joined it looked like I was about the oldest here. LOL

Mar 10, 2008
MO gal

Thanks so much for the welcome! This seems like an awesome site! Im so glad I joined!

Mar 10, 2008
Dee Connelly

HI girl, Just about to put supper on the table. We have had about 14 inches of snow thus far. We can hardly wait for spring to come. I love the humming birds and the beautiful flowers that I will have on my deck. We hope you are doing well! We miss you bunches!! This site is awesome. Talk to you again soon! Dee

Mar 10, 2008
Karen Martin

I think what you are doing here is great. I had looked at your site when your finace brought out the subject of Jerry Siendfeld. I think you two are so cute togather and wish you both the best of luck. You two will have to let us know when you get married and post your pictures.

Mar 10, 2008
Ashley

I love your profile picture, its bald & beautiful for sure. Aren't you one of Melissa's friends? I thought I had seen you on her myspace.

Mar 10, 2008
Jill

Congratulations to you too!!! Very exciting times. ;o)

Mar 10, 2008
brian kirchman

hey C i had a question about the confrence it says it starts on the 19th does it start early or is it all just checking in the first day i need to book my flight but i dont know when i should get there?

Mar 10, 2008
Ellie

Awesome site. I just love it!!!!!!!!!!!

Mar 11, 2008
brian kirchman

lol awsome thanks

Mar 11, 2008
Steve

hello cheryl thanks for the welcome! it was 17c in calgary today are you sick of the snow yet

Mar 11, 2008
Hayley Burton

Yeah I believe we did meet at NAAF last year! How are you doing?xxx

Mar 11, 2008
Ashley

Yeah, I'm talking about Melissa from Louisiana. I was lucky enough to meet her on the alopecia group on myspace. =) She's awesome! Will you be going to conference this year?

Mar 11, 2008
Ashley

Thats really cool that you've been to that many. I'm really excited since this is my first one. I've heard nothing but good things about it, and I really can't wait. It'll be so fun to meet people like me. I've only met 1 woman in person who has alopecia & only heard of a couple others I don't know personally in my area.
I really am excited about this site, its awesome! I'm so happy to be a member, it's the coolest site ever. =)

Mar 11, 2008
Kelly Fineman

I am good Cheryl, nice to run into you on here.

Mar 11, 2008
Hayley Burton

it was a one-off i'm afraid! its rather expensive to travel there from Europe!! xxx

Mar 11, 2008
Roger

Hi.

How things going in Montreal?

Roger.

Mar 11, 2008
Faheemah

Thank you for the add and creating such a wonderful website. I always wished to talk to others with alopecia, but I never had the pleasure of meeting anyone. Now there is a site where I can communicate with many people like me. Thank you again and good luck with you engagement.

Mar 11, 2008
Faheemah

I actually did not know there was a conference. Alopecia has always been apart of my life, but I feel like I am learning so much from this site about events that are out there for people with Alopecia. I might not be able to go this year, because it is my freshman year in college and i have already missed a lot of days because I recently lost my great-grandmother. She actually is the one who helped me embrace having alopecia and that I was beautiful with of without hair. Could you tell me a little bit about the conference and when it is usually held and where?

Mar 11, 2008
kastababy

No, I really don't speak French very well, but Babelfish is my best friend!!! I speak Spanish fluently and understand more Portuguese than I speak. I think, though, that I might need to learn French, considering there are so many alopecians on this site that are Canadian and living in Quebec. I'm always looking to learn something new, so I'll have fun doing it!

Mar 12, 2008
Maureen

Hi Cheryl, Thank you,glad to be here! have a great Day!

Mar 12, 2008
Amy Jo

HEY!!! I RECOGNIZE U FROM NAAF!!! I THINK!!! LOL

Mar 12, 2008
Nika

thank you! i'm looking forward to getting to know all of you!

Mar 12, 2008
Faheemah

Thanks for the info on the conference. I would love to attend so hopefully I will.

Mar 12, 2008
Shemika

Hi Cheryl! I'm so happy today because I just got a wall comment for Porcia who said she found this site from my myspace page!!! Yay! I also sent out a bulletin today as well. Let me know if you saw it:)

~Shemika

Mar 12, 2008
Solange

Hi there Cheryl, I'm doing pretty good - I am very excited about this site - I have been needing something like this for a very long time!!!

Mar 12, 2008
Solange

First place for what?

Mar 12, 2008
Julia

Cheryl, when will you be making your March trip?

Mar 13, 2008
Susan

Thanks for the warm welcome. And thank you for making this site. I NEEDED this so much. Becauuse it helps me see that NO MATTER WHAT, I will be ok.

Mar 13, 2008
Suzanne Thompson

Cheryl, Way to go, girl! Look what you started! Can't wait to see you in Louisville. You are one in a million!
Love,
Suzanne

Mar 13, 2008
Nathan Paul Prince

Cheryl - your sotes rock the Alopecian community like no other! How've you been? I got your email about the Montreal group - I'm certain they are ALL going to miss you :) My new MSN is nathanpaulprince@live.ca - add me and we'll chat! Big hugs from British Columbia (I'm amazed I'm still here - it feels like forever since I've been gone from back east!!)

Mar 13, 2008
Pascale

Cheryl. You rock! This website is awesome. God is working through you. Can you feel it? I wish I had this when I was first diagnosed and going insane in the fall of 2005.
All is well. School is crazy. 1 month to go and I'm done year II. It's going by so fast !
Take care!!!

Mar 13, 2008
kastababy

Hi Cheryl!!! I know I kinda tapered off for the last day or so, but now it's the weekend so I hope I will have time to get back into blogging and commenting! What happened to the clouds on the main page??? Those absolutely ROCKED!!! I shaved my head again last night; I posted the picture today!!! Let me know what you think!!!

Mar 13, 2008
Solange

Yeah, unfortunately they are - but I am still hoping that the Leafs will pull off a miracle and make it into the playoffs..

Mar 13, 2008
kastababy

So inquiring minds want to know: with all this blogging and getting the website up and running and the AlopeciaAndLove.com blog going, when is the wedding going to be??? You're going to be a beautiful bride!!!

Mar 13, 2008
Cheryl, Co-founder

Being Canadian and rj is American, there are a couple of hoops that we have to jump. As soon as we know we will let you know.

Thanks YoKasta!

Mar 14, 2008
Heather Curtis

Haha it is beets. Total california cuisine style... Thanks for the comment and it is great to be on here!

Mar 14, 2008
Susan

I just want to thank you from the bottom of my heart for creating this website. I have spent many months with feelings of despair and I have met so many wonderful, strong, beautiful people on here that have made me realize that my life is so far from over. I have truly been enlightened. I NEEDED this.

Mar 15, 2008
Maureen

Hi Cherly, I no this is a crazy condition... you never no if it's coming or going lol!

I am sad my son left this afternoon to go back to College. :( Still waiting for him to call to say he got there...

Hope you have a great weekend!

Maureen

Mar 15, 2008
Maureen

Yes he will be 19 on the 26th of this month. We are going to go up to see him at college for Easter and his Birthday. It is hard being so far away from him. Also my husband left today to go help his son paint his house in York Pa., his son is getting it ready to sell the house. This is the 1st time I am by myself since I had my son. I forgot what it is like. I lived alone 5 years before I married.

Mar 15, 2008
cate

hi Cheryl! thanks for the welcome...i'm really excited to be here. and it's always nice to meet a fellow Canuck! ;-) i live in Ottawa, so i'm not too far from you.

and i just want to say that you are absolutely gorgeous!

cate

Mar 15, 2008
Jérôme

Hi cheryl,

but we can also speak english together.

we wil have a national meeting in France, next may. One day it could be nice if I can attend the national US meeting. will you go to the next Us meeting ?

Mar 16, 2008
kastababy

Hey Cheryl, I hope you and RJ had a great weekend! I'm off to bed to get ready for work in the morning...have a good evening!!!

Mar 16, 2008
Dotty

It's national care week...
time to send messages to all your friends, telling them how much you care about them.

Without friends
you would be missing out on a lot.

A friend should be radical;

They should love you when you're unlovable,

Hug you when you're unhuggable,

And bear you when you're unbearable.

A friend should be fanatical;

They should cheer when the whole world boos,

Dance when you get good news,

And cry when you cry.

But most of all, a friend should be mathematical,

They should multiply the joy, Divide the sorrow,

Subtract the past, And add to tomorrow,

Calculate the need deep within your heart,

And always be bigger than the sum of all their parts.

I care about you.
Have a nice day, and
I'm glad we are friends!!! Delete Comment

Mar 17, 2008
Ingmar

Hi Cheryl,
You have the greatest website ever! Yesterdayevening I read your article "Lost something gained something" It set me to tears. it really touches me how you write about your experiences. and especially your relationship with RJ. I truly hope and pray I will find a man like RJ. I hope in the future I can share the pain and tears with a partner. You know how much it hurts and I'm happy for you that you have somebody close to you. Thanks for making this wonderfull site and I will visit it regularly. Unfortunately I'm from the Netherlands and there is some time-problem but I noticed that all the people are very friendly here. bye now, ingmar

Mar 17, 2008
Jérôme

Hello Cheryl,

I can't answer to that question right now, I will let you know after the meeting ! less than 100 for sure. I have 182 alopecians registered on my website and most of them are from France. (http://mon.alopecie.free.fr

Mar 17, 2008
Jeremy

Hey you! I was told that the Canadians had something to do with this awesome site! The first response I made was to the teacher question! You must have read my mind....see you at the conference?

Mar 17, 2008
Jennifer

ok thanks.... i only just joined today... still getting used to it

Mar 17, 2008

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