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LeslieAnn Butler

Female

Portland, Oregon

United States

Profile Information:

Relationship Status:: Engaged
About Me:: I'm an artist and author living in Portland, Oregon. I've had aa for about 45 years. My award-winning book, "If Your Hair Falls Out, Keep Dancing!" is still available at a number of online sources including Amazon and Barnes and Noble. Written a few years ago, it's not completely up to date on medical findings, but these are readily available on this site.

Here are a couple of reviews: This "how-to" book provides a much needed text on dealing with emotional and cosmetic aspects of hair loss, whether from alopecia areata or chemotherapy. It details where to find and how to use products for compensating with this loss. It is written in the same bold and bright style that characterizes LeslieAnn's illustrations." -Janet Roberts, M.D., Portland Oregon

"This book is helpful, hopeful, funny and fabulous. It's full of practical advice about wigs, intimate encounters, the inappropriate questions from strangers, and other issues you face when every day is a bad hair day. Women with alopecia, LeslieAnn Butler is your new best friend " -Margie Boul , Columnist, The Oregonian ..

"An essential read, whether you've lost hair, or care about someone who has. Leave it to Leslie Ann to bring humor and glamour to a difficult topic. She is a living testament that the lack of flowing locks is no reason not to live your most glamorous and joyful life. Be inspired and uplifted by this remarkable woman's personal journey." -Nita Lina Howard, Author of A Woman's Journey is Her Legacy

I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.

I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you're not alone."

Hear a live interview at http://www.insidescooplive.com/author-pages/Butler-LeslieAnn-readin....

Visit my artist web site at www.leslieannbutler.com.
Do you have alopecia?: Alopecia universalis
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://astore.amazon.com/ngp-20/detail/1933449586

Comment Wall:

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claire

hi im going on a programme called street doctor to highlight alopecia.

Jun 17, 2008
Silje H Teig

Thank you very much. Yes I am doing fine! I have had it for so long that it has beocme the normal for me and I have accepted myself as I am. Hope you are doing fine. Silje

Jun 17, 2008
stacy

thank you so much!

Jun 17, 2008
Heidi

Hi LeslieAnn, I took your book along for the ride to the NAAF conference and just finished it last night. Fantastic! I was giggling on the plane and kept thinking that I need to share all the practical tips with everyone in my support group. I appreciated your honesty in treatment expectations. Not that I'm trying, but other people need to know what to expect or not. Anyway, thanks again for the pleasurable read. Heidi ...

Jun 18, 2008
Mary Sarra

LeslieAnn, Thanks very much. From the sounds of it, I may need to see if I can find a copy of your book. Thanks again, Mary

Jun 18, 2008
Zanie

Hi LeslieAnn, Thank you for the comment, I hope you are doing well and I am going to make a point to check out your book, it sounds amazing :)

Jun 18, 2008
Zanie

Thank you! I will do it now :) Have a wonderful day!

Jun 18, 2008
Gale

Thank you for the comment. I am doing ok thanks and yourself? What book are they talking about? I like to read. I have had aa since 97 and I am doing ok with it thanks.

Jun 18, 2008
Amy Bard

Thanks for the comment...I'm doing ok. I'm sure just like anyone else I have my good and bad days. Hope things are going well for you. I look forward to having more contact in the future.

Jun 18, 2008
jen

thanks for the comment. i was amazed to hear of this website and i have to say it is great.

Jun 19, 2008
Kim Culberson

I'm doing great.....I have a wonderful husband and kids..Jenna age 19, who is the reigning Miss New Brunswick, and Tyler 11 who is an amazing hockey player. I still miss my hair, but know that there are worse things in life. I enjoy the conveniences of not having any hair. That positive attitude goes a long way.
Talk to you soon
Kim

Jun 19, 2008
Carissa

Thanks! And yes, you're right...I am an animal lover. Mostly my animals though. :) They're cuter

Jun 20, 2008
Gale

I wanted to let you know that I ordered your book and waiting to get it. It sounds really good. Take care

Jun 20, 2008
Gale

I am sure that it is a good book from some of the reviews I have seen on here, but I will let you know. So do you wear wigs all the time? I have a few but I really dont feel the same when I wear them.

Jun 20, 2008
kyra

Hi LeslieAnn,i would love to have a chat with you.

Jun 21, 2008
Erica VanderBeek

Hi LeslieAnn!
Just wanted to say Howdy & it seems like you're doing well for 20 years with AU. Take Care!

Jun 21, 2008
Pascale

Hey Leslie-Ann!
Thanks for your message! I'm doing well. The wedding is in 6 weeks! Yikes!
Do you know if they retail your book at Chapters in Canada? I would love to read it!
Keep it up, girl!

Jun 21, 2008
Kathy

Hello LeslieAnn,
I am excited to read your book! I wanted to ask you if you need a rx. for the lumigan? Where can you buy it? It sounds like I will give it a try. Thank you for sharing the idea.
It feels good to find a place where others can relate to this disease. Thank you for your welcome.

Hugs,
Kathy

Jun 21, 2008
Gale

Just wanted to say hello.

Jun 21, 2008
Gale

I like Gillette, ever get this way let me know and we can get together. That would be cool

Jun 21, 2008
KnittyCat

I am actually doing very well, thank you for asking. I love your piece. It's a little warm here these days so I choose "not 2 hair". When I do hair I normally stay in the reds or deep auburns. I was a chestnut brown/auburn at one time in my life and really don't do well as a blond. I have done blond. It has to be a honey blond if I wear it, or a highly frosted auburn. I haven't had time to work on my sight, but will be adding more pics later. Thanks for the visit to my space, "Knitty" (Marie)

Jun 22, 2008
KnittyCat

I was in Desert Storm from January '91 - May '91 and ,No, I did not wear a wig, too much sand and too hot. I have been know to draw. At one time I wanted to be an architect, but soon realized I draw more for pleasure and don't do well on a schedule when it comes to my art work. I don't draw as much as I once did. My sister is also artistic (much better than I). She also has the starving artist syndrome (draws and paints when she feels like it). I keep saying I'm going to get back into my art and in a way I guess I do - I knit and crochet, cook, sew and play in my garden. I say "I play in my garden" because my imagination runs wild while in my garden - that is where my gnomes, fairies, and leprechauns live. I may write a children's book about my little people some day, they would like that (lol). I guess being of a Irish bloodline I have no choice but to believe in the little people. Later, Marie

Jun 23, 2008
Carissa

Ha ha, Thanks! Yeah, someday I'd like to be a photographer. Just gotta figure out how, first. :)

Jun 24, 2008
Holly

Hi Leslie-Ann, sorry no I don't know your friend. DC is a great city though, fun to live and explore. Your book sounds great - I can't wait to read it.

Holly

Jun 24, 2008
carrie

Thanks LeslieAnn! I went to the UofO also! I love Portland...just wish gas was cheaper so i could get up there more often. So much more to do there......Eugene is great though. I'm happy to live here!

Jun 24, 2008
Carissa

Thank you! And I am going to try my best!

Jun 24, 2008
Roger

Hi LeslieAnn.

It was a great painting they had at this years conference in Louisville. I got back to Sweden yesterday.

Roger.

Jun 25, 2008
Roger

Yes, I came all the way from Stockholm =)

Yes, they had an auction the last day. I think it was sold for 250. I dont remember. Im going next year too. Its in Houston.

Jun 25, 2008
Stacey Richards

Thanks so much for the warm welcome! Just now getting my feet wet! I look forward to meeting new people here! :o)

Jun 25, 2008
Heather

Hi LeslieAnn, I actually don't have an AA, I went straight for a Bachelor's in nursing. I got sort of a late start in life so I figured I might as well go for it or go home! I plan on after working a few years of perhaps getting a Master's but that is only a thought for now.

Jun 25, 2008
Roger

Ohh...it was a poster. I didnt see that. I was sitting long way in the back.

Im glad I attended to the conference. It was a great moment.

Roger.

Jun 26, 2008
beauty

i'm sorry that it took me so long to respond. I accepted the fact that i have alopecia once i graduated from high school! at first it was very hard. i didn't want to tell people, when i was dating it was even worse. now i realize that men do not care about that! i tell every guy that is interested in me that i have alopecia. i explain it to them and it's like they want me more. i have even been offered a couple of modeling positions for the lace wigs. NOW THATS SOMETHING I"M TRYING TO SEE IF I CAN HANDLE, LMAO! but i know with prayer and faith i can handle anything. how about u? are u still coping with this?

Jun 29, 2008
beauty

i didn't take them! i have a myspace account! alot of people look thru them and send me emails on the positions and i also get them from many hair stylist. i was wearing stocking cap weaves since high school. so that was a break thru for one of my stylist

Jun 29, 2008
rj, Co-founder

Thanks for being a friend, LeslieAnn. You're such a positive presence in Alopecia World, and I just want you to know that I truly appreciate it. :-)

Jun 29, 2008
Nicole

Thank you. I'm still shocked (for lack of a better word) about all of this. Nothing I ever expected to have to deal with.

Jun 29, 2008
Jackie

Hi Leslieann, I've had alopecia for almost 20 years now. I looked at your photos and love your hair! Tell me where you get them? I've generally just ordered them offline, but think I want something a little more real. I live in Phoenix. Where are you?
Jackie

Jun 29, 2008
Alex

I'm just wonderful!!! i had a lovely Sunday of golf and swimming :) woohoo...I'm totally loving this alopecia only thing...it's pretty cool! How about you...good weekend?

Jun 29, 2008
Ali

Hi LeslieAnn,
Mighty Tite is an adhesive that I got from the Medical Image wig shop here in Oakville - http://www.medicalimage.ca/.
As I understand it, you must have polyurethane tabs in your wig (plastic areas around the elastic portion of your wig, that sit against your scalp) in order to use the adhesive, but I could be wrong. They sewed some poly tabs into my wig for me.
Good luck!
Ali

Jun 30, 2008
Sara

LeslieAnn,
I just saw the article in Yesterday's paper (a coworker brought it to me!) Great job!!!!!
Sara

Jun 30, 2008
Jackie

Hi Leslieann,
Thanks, I would love to have information on your wig supplier. I, too, love Rene of Paris synthetic, but think I want something real to wear for special occasions.
Thank you!
Jackie

Jun 30, 2008
Jackie

Awesome! Thank you so much.....and I will keep you posted!
Hope your day is great!
Jackie

Jun 30, 2008
Kate Rotherham

Your very welcome my dear! I see you are from Portland...Oregon? I have family there, but i have never been ive heard its beautiful. Keep up the good things you are doing , i see only greatness on your page , and in your pictures you look like a movie star!
<3 Kate

Jun 30, 2008
Cheryl S. Moore

LeslieAnn, Thanks for the welcome! I've had au for about 15 years...prior to that I had aa in childhood...started at age 7. It waxed and waned and finally it all fell out! I also have vitiligo.
I'm wearing my vacuum prosthesis from Freedom Hair and will never wear a wig again...I love my new hair and I am just getting ready to order another one in a different color. I just ordered your book...it looks awesome and I can't wait to read it. Cheryl

Jun 30, 2008
Marisol

Thank you so much for the very kind words. Is your book available in stores?

Jun 30, 2008
Ms. Aries

Hi LeslieAnn,
Thanks for reaching out, nice to be in touch. I went from 60 to 0, so to speak, in 8 months & am all over the board experimenting with new looks. Most days it's fun. Keep up your good work! All the best...Mary Beth

Jul 1, 2008
Annabel

I will most definitely get your book. The more help the better. I love the paintings in your slideshow. Did you create that? I would like to see more. Do you have any with children in them?

Jul 1, 2008
Pambi

Hi! I was just reading about you in the Oregonian! I get my hair from Brenda Kay and think she's the best thing ever!! And I can't wait to read your book.

I've had aa almost all my life, but only in the last 15 years have I needed a wig. I think I've finally adjusted.

Jul 1, 2008
LouiseOxford

Hello LeslieAnn
Just writing to say I ordered your book and it arrived a couple of days ago. Really enjoying it and love your paintings!
Louise

Jul 2, 2008
Elizabeth

Well Hello Back! Your hair is lovely by the way, and so are your pictures of Portland!
Elizabeth

Jul 2, 2008
Melissa Romanowski

Hi..thanks for dropping me a line. I must say that you have amazing features and seem to have a different sense of self confidence that is stunning. How long have you been on alopecia world? Did you say you attended the conference in Kentucky?

Jul 2, 2008

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