68

LeslieAnn Butler

Female

Portland, Oregon

United States

Profile Information:

Relationship Status:: Engaged
About Me:: I'm an artist and author living in Portland, Oregon. I've had aa for about 45 years. My award-winning book, "If Your Hair Falls Out, Keep Dancing!" is still available at a number of online sources including Amazon and Barnes and Noble. Written a few years ago, it's not completely up to date on medical findings, but these are readily available on this site.

Here are a couple of reviews: This "how-to" book provides a much needed text on dealing with emotional and cosmetic aspects of hair loss, whether from alopecia areata or chemotherapy. It details where to find and how to use products for compensating with this loss. It is written in the same bold and bright style that characterizes LeslieAnn's illustrations." -Janet Roberts, M.D., Portland Oregon

"This book is helpful, hopeful, funny and fabulous. It's full of practical advice about wigs, intimate encounters, the inappropriate questions from strangers, and other issues you face when every day is a bad hair day. Women with alopecia, LeslieAnn Butler is your new best friend " -Margie Boul , Columnist, The Oregonian ..

"An essential read, whether you've lost hair, or care about someone who has. Leave it to Leslie Ann to bring humor and glamour to a difficult topic. She is a living testament that the lack of flowing locks is no reason not to live your most glamorous and joyful life. Be inspired and uplifted by this remarkable woman's personal journey." -Nita Lina Howard, Author of A Woman's Journey is Her Legacy

I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.

I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you're not alone."

Hear a live interview at http://www.insidescooplive.com/author-pages/Butler-LeslieAnn-readin....

Visit my artist web site at www.leslieannbutler.com.
Do you have alopecia?: Alopecia universalis
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://astore.amazon.com/ngp-20/detail/1933449586

Comment Wall:

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Jennifer M

Wow thank you so much!! Yes it's a wig!
You look very pretty!
I have universalis as well. Thank you for writing to me!
XO
jen

Aug 7, 2008
The Be Bold Team

Hiya Leslie

Welcome to Be Bold let me introduce the team Ann-Marie (the wife), Sarah and myself Darren.

We are proud to say the UK is about to embark on the biggest alopecia awareness campaign ever. We have only been going for 4 weeks but already we have massive media interest from local and national tv.

Please keep an eye on the Be Bold site we are updating daily.

Thankyou for contacting us!

Regards and Be Bold

Darren

Aug 7, 2008
Angie W.

LeslieAnn, I got the book in the mail yesterday and read half last night and I'm hoping to finish the other half before the weekend is up...too bad I have to sleep and go to work or else I'd already be finished. I have laughed at many of the stories, related to many more stories and teared up while reading the chapter about kids with AA, (I'm so lucky my AA didn't develope until adulthood) I cannot imagine being a kid and going thru that. Anyway, I'm so glad I got your book and cannot wait to finish it. Hope this finds you well! ~Angie

Aug 8, 2008
Jazzmyn

im doing good and they are treating better than they use to

Aug 10, 2008
JeffreySF

Hi LeslieAnn,

I haven't read your book yet but I will always keep dancing.

Jeff

Aug 12, 2008
Angie W.

LeslieAnn, I finished your book sitting at Starbuck's on Saturday morning while enjoying my favorite latte...I really loved it. It was great seeing your art integrated into the book along with the wonderful stories and information. I've got a question unrelated to the book...I ordered a new wig off wigsalon.com and it has what they call a "center skin part", however they didn't mention that this "csp" was snow white...my scalp is not snow white and neither are my features (especially in the summertime) and I put on the wig yesterday as soon as I got home with it and it's almost like the part is a neon sign flashing for all the world to see and know that it's there. Do you have any recommendations on how to put a "tan" on that snow white center skin part? Hope to hear back from you. Blessings~Angie

Aug 12, 2008
Angie W.

THANKS SO MUCH FOR YOUR ADVICE...I DID TRY THE EYESHADOW IDEA, BUT THE CENTER PART IS MADE OF SOME KIND OF MATERIAL THAT APPARENTLY DOESN'T ALLOW THINGS TO STICK TO IT VERY WELL, IT'S ALMOST A SLICK MATERIAL. I DID EMAIL INFO@WIGSALON.COM AND EXPLAINED MY DELIMA, BUT NO ONE HAS RESPONDED YET. AGAIN, THANKS FOR YOUR RESPONSE.

Aug 12, 2008
Angie W.

Too bad i didn't tell you about this sooner, you could have told Joe about my problem when you spoke to him...ha! I hate to cause a fuss with anyone but I know that if that's going to bother me then I won't wear the wig. It's the Revlon TressAllure Parisienne http://www.wigsalon.com/wigx.htm?wig=1272 other than the part, I love the wig, the hair looks great for synthetic. If I don't hear back from them by email I will try to call them or something. Thanks!

Aug 12, 2008
Bob Hershberger

Les..Congrats on being a featured member ! ! ! ..Your a great inspiration...And also good job on your book..I can only imagine how many people have found solice therin..Good for you..God Bless...Bob

Aug 13, 2008
Angie W.

I just heard back from wigsalon, they suggested using an eyebrow pencil to shade in the part...I will try that and see if that helps. I've had that disappointed feeling many times when getting a new wig especially ones that were ordered instead of purchased at a wig shop. There aren't too many wig shops here so that's why I've ordered so many over the internet or thru catalogs. It's a bummer when you get them and you're expecting something different than what is in the box. Thanks for listening to my problem. You're a gem! ~Angie

Aug 13, 2008
Elline Surianello

You're very welcome dear!! Thank YOU!

Aug 13, 2008
Lindsey

Hi, Leslie Ann. Thanks for responding on my comment wall. I wanted to ask about the wig(s) you have on in some of your pictures (at least I think some of those are wigs!) I think they're the prettiest and most natural I've seen. Did they come from the wigsalon.com website? I've just ordered three from a place and they're horrible! They're going straight back. I've never really had a wig I've like, though, in all of these 26 years!! Thanks for any help you can provide.

Aug 13, 2008
Julia

Thank you so much for your feedback...

I will contact them this week.

I will talk to you soon!

OH...How long from the time you give the book (Manu) to them that your book was then published? Time Line?

Aug 14, 2008
Julia

Do you wish you had of Self Published? Are you mainly doing your Marketing?

Sorry for all the questions...lol

Aug 14, 2008
Julia

Love the Video too...just looked at it

Aug 14, 2008
jj

Hey LeslieAnn!
Thanks so much for the welcome and kind words. Don't really consider myself an artist but love to play with digital imaging and hoping it develops into more than it currently is.
Writing is something I'm excited to get back into as well - will definitely have to check out your book. Looks like a success for sure - congrats!!!
Hugs,
jj

Aug 14, 2008
Louise

Thank you LeslieAnn--I have enjoyed seeing your photos. My daughter has just developed AA. She is out of the country on vacation before her freshman year at college. She returns Monday and has some doctor's appointments next week, her allergist, regular MD and her dermatologist--Monday, Tuesday, Wed, then she's off to college on Thursday. I happen to work with a young lady with AA, and knowing her has been a very positive experience. I'll add some photos to my page soon. My daughter is a great girl, but she's scared right now. She happens to be a beautiful girl--her looks are an important part of who she is, but not the only important thing, of course. Seeing how beautiful you are has been very encouraging for me.

Aug 14, 2008
Louise

That is a great idea, thank you. I look forward to reading it myself.
All best wishes,
Louise

Aug 14, 2008
Jana

hehe ok , busy busy !
and yeah , i wear hair extensions :)

Aug 14, 2008
jessica renea

well i haven't lost all my hair yet so for now my mom puts brown eye shadow on the spots so they blend in with the rest of my hair. and on weekends i wear hats.. i would wear them to school but were not allowed and im sure my mom could get them to let me but i really dont want to draw attention to it. but only my really close friends no about it and they are really good and make sure none of the spots are showing.

Aug 14, 2008
jessica renea

thats a good idea
ill tell my mom when she gets home
:)

Aug 14, 2008
Geri

can't wait to buy your book. Just by the little bit I read, sounds like a whole lot of inspiration for all of us...

Aug 15, 2008
Geri

I will be ordering the book this weekend. Yes, I did watch the bit on the show. It was great and you looked fabulous :) I wish I found this place 20 years ago...lol Have a great weekend. I will let you know after I read the book what I think. I know I will really enjoy it...

Aug 15, 2008
Melissa Harris

Hi there! Maybe we can met up in Santa Fe. The art there is beautiful. I'm going to look up your book on amazon so I can get a copy! Thanks for

Aug 16, 2008
Melissa Harris

Opps! Clicked too soon!! Sorry! Thanks for the support for others faced with Alopecia. It has been an emotional drain for me to deal with this, plus I have to little ones to look after too, so I'm sooo tired!!! Hope you are well! Thanks again!

Aug 16, 2008
Jennie

Hi, I'm doing okay thank you. How are you? Thank you for the warm welcome. I look forward to getting to know you!

Aug 16, 2008
Bob Hershberger

Almost forgot..I love your new photo adds..Those are some great shots,and I love that giant art work of your book cover..How kewl is that?? Im betting you did the art work?? Very nice..Good for you..Those pics of you signing books with young girls just starting there journeys is very inspiring.. Im so glad they have resources we didnt have access to,to take maybe a little of the sting out of the ride..What a blessing..Bob

Aug 16, 2008
Lotte

Thank you, LeslieAnn! I really love your artwork and I'm looking forward to reading your book :)

Aug 18, 2008
Emma

You are so cool. You have some really cool pictures too. I told my mom about your book. We both love all of your pictures! I am 12 and was diagnosed w/ AU 3 years ago. I am just now starting to feel sad and mad about everything. I hope that this group will be able to help me.
Emma

Aug 18, 2008
Terri

Thank you so much for the information. We will most definetly check in to getting your book. Emma is so excited.

Aug 18, 2008
kathy

Hi Leslie Ann
I have been using Freedom Hair suchion from NZ for the past 6 years ,I think the are the best but it is getting somone to style it and cut it that I have a problem with......

Aug 20, 2008
Jean Smith

Thank you for the welcome. I hope that I will be able to help and pass some of my knowledge onto others.

Aug 20, 2008
Karena

Thank you!!

Aug 20, 2008
Elline Surianello

wow.. what an honor. thanks!! LOVE your book....have been sharing it with my customers at the salon...

Aug 21, 2008
Tanya

Thank you so much for your kind words. And I will check the book out.

Aug 21, 2008
KATHLEEN WEIBE BROWN

HELLO, JUST WANTED TO STOP IN AND SAY HI HOPE YOU ARE DOING GREAT.

Aug 22, 2008
Samantha

im doing pretty good with the horses and all that stuff!!
sorry i hadent replyed for a long long time!!
i really apriciate the comment!
i love this website..it is helping me cope with the fact of AA!
i want to be a model sooo badly but i have the fear they will all reject me!
but idk! thats just me!
what do yuo think i should do???

Aug 23, 2008
Samantha

thanks alot for the advice!!
i really apriciate it!
so i saw you wrote a book..
i wanted to start a book about AA tooo!
and like gather peoples stories and everything like that to put in it!
but wat im looking forward to most of all is modeling and hairstyaling!
Hugs! :D

Aug 23, 2008
Samantha

yeah i will totaly let you know!!
so what have you been up to today??
Giggles! :D

Aug 23, 2008
Emma

Hey! i'm doing fine, how are you? school is going good so far :),

Aug 24, 2008
Lystra

Hi Leslie,

How are you, thank you so much.
I am out of hair which was very thick. I guess living in the Caribbean has its draw back. Hope to hear from you soon.

Lystra

Aug 24, 2008
Lystra

Oh boy, you re so helpful. First of all I have been relaxing my hair for a while then I braided it then I began to notice that I have two patches at the corner hairline of my head. No now I am wearing weaves. I can no longer comb my once long hair in one. I just figured I ll live with it but sometimes it hard.

Lystra

Aug 24, 2008
Lystra

Hey Leslie,

what does your book say about African (kinky) hair.

Lystra

Aug 24, 2008
Heather

Hello.

Thank you for stopping by. I hope that you had a great weekend.

Heather

Aug 24, 2008
Sidney

doing good, thank you. what breed of horses did you have? I have an Arab/App mix, A Standard bred, and a Spotted Saddle horse.

Aug 24, 2008
sara

she has up's and downs she's been going through it for awhile but just recently lost almost all her hair. she doenst like to talk about it all the time so we let her come to us. she has a loving boyfriend and a supportive group of friends and of course her family that all know but sometimes she gets really sad. she has to be in my wedding in october and isn't used to wearing a wig yet..we'll see i'm trying to be as helpful as i can but i know that theres only so much i can do.

Aug 25, 2008
Anna

Hi LeslieAnn.
Apart from my hair, I feel good today, thanks:) how are you?

Anna

Aug 26, 2008
Lacey

Heey LeslieAnn.
your name is so cuute by the way aha. Yes i love Audrey she was so beautiful! Yes i love art, i do a lot of portraits, i also love cartooning. What kind of art do you do?
Hope to hear from you soon
Laceey

Aug 26, 2008
Lacey

ahhh your absolutely amazing and i see your wrote a book! i want to read it aha. I will try to get some of my work on here. I want to illustrate children books cause yeah cartoons are sorta my thing aha. Your sooo pretty, your wig is actually really nice! I don't need one yet though. Right now i'm just trying to cover the little spots aha.
when did you get alopeica?!
hopefully hear from you soon
Hugs
Laceey

Aug 26, 2008
Laura Duksta

LeslieAnn...I'm not sure if I ever commented back! Congratulations on your book...I LOVE the title! Thank you for sharing your story...it is clearly making a big difference for a lot of people here in the community!

Did you attend the conference this year? I was considering going and getting a table to sell my book (which isn't about Alopecia-but about love and is healing). Obviously I could just attend and sell/share about my book but I thought it would be a good way to contribute to NAAF too. I didn't make it this year-I ended up already having an enagement that weekend...maybe next year.

Keep Shining!
Laura

Aug 26, 2008

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