Hi! My name is Rachel. I love Jesus, my family, and my two dogs. I'm originally from Chicago but am currently a graduate student working on a Ph.D in Microbiology and Immunology in Texas. I hope to do biomedical research in emerging infectious diseases one day. My journey with Alopecia has allowed God to instill in my life a beauty and confidence that I didn't know was there before!
I am 24 years old and was just diagnosed with AA. I am having fun with my little bald head! :)
Hi Rachel,
My book, "If Your Hair Falls Out, Keep Dancing!" was written for you! I was diagnosed in my 20's as well. I've had it for over 30 years now, and I wrote this book just so you wouldn't have to go through everything I did! Check it out on my page -- and you can click the link at the bottom, or go to Amazon.com to get it. A lot of women and girls are loving it -- that makes me very happy because I want to help!
LeslieAnn
Hi Rachel, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
I too have had AA for a wile and have been treating it with injections for about a year I've still developed new spots but its helped very much grow back new hair.
I was in 4th grade when my hair fell out and it all started w/ a tiny bald spot behind my ear and within 3 weeks I was bald. 3mths later I lost my eye lashes and eye brows. I tried all kinds of treatments. After 9mths of treatments my parents talked with me about everything. We decided that we would take a break for all of the treatments. I used a synthetic wig for a year, but then got a vacumn sealed real hair wig. I like it most of the time, but it is so hot. I wear it to school and church. When I am home I dont wear anything. I am just now starting to feel sad about it all. I am scared to start a new school year. I know once I get back in to school that I will feel better. Good luck and we will keep in touch.
Emma
Hi Rachel-
My name is Sarah and I came across your profile and noticed you live in Texas. I used to live in Austin and my husband I moved to Houston about seven months ago. I have AU (started losing my hair in December of 2006 and became AU in January of 2008). It is great to find a site like this and get in contact with other people with alopecia. My sister actually has a Ph.D in microbiology. She is a professor at the University of Richmond and whenever I have a science question on alopecia I always call her =) I hope you are doing well...I remember when I was first diagnosed and all the feelings I had...if you ever have any questions or want to talk just let me know.
Sarah
I would really enjoy meeting you. I know that this experience has affected me in ways that is hard to explain. I too, was recently diagnosed with Alopecia. It has been about six months now and some days I am in denial and other days I want to face it head on with solutions I need to make for myself. Let me know when you are available. I am sure you are busy with school just let me know.
I saw your post and the pictures of your wig. You look great!!! If you do not mind me asking what brand is your wig? I thinking about getting a new one pretty soon.
I also heard that you could have it cut down by a hairstylist if you would like to thin it out. I would go to someone that has some experience though! Let me know how it goes!
Melissa
Good for you!
I guess I was lucky that mine didnt spread so quickly. IT's been 4 months and only now do i need a wig. Im actually going next weekend to try some on and hopefully get one fitted. Im super nervous. I've heard good and bad things about wigs, but i guess I'll just have to see. Take Care pretty girl
Thank you so much!!! So you were just diagnosed... I am so sorry. But I am here to talk if you would like... I am having a really hard time battling this, but now finding so much more support on this website...
Rachel -Hi again didn't see your comment - yes I was just disgnosed on Friday, however I feel very cheated by the dermatologist - he didn't even look at the spot - he went by what I wrote in the intake paperwork - he didn't let me part my hair nothing
he instead tried to make me start taking valtrex every day when I have very few episodes, very mild episodes and succesfully address them even before anything visible occurs by taking my meds promptly - I take about 3 pills every 4 months or so and my primary doctor - who is fabulous but far away told me that is totally fine
he then looked at these little spots on my face and told me he coudl "correct" those as well
I have two spots on the crown of my head -I used to wear a sort of beehive hairstyle I did this for about a year so initially I thought traction alopecia but the circles are pretty round - so I really don't know
I have very little hx about my father's family and my maternal grandma lost her hair later in life perhaps about 65 I would say but she always had really thin hair
I was hoping for the dermatologist to look at the area and give me some differntial diagnosis - apparently that was too much for him
I refused the steroid injections -because they can't prevent other spots and from what I have read they may or may not result in hair growth this measured with the potential side effects made me not want the injections
He prescribed a cream I woudl rather wait and see what happends naturally at this point
My niece's husband has alopecia areata as well and he had the steroid injections stopped and lost hair again - he has been using acupuncture according to my sister ( they livein Florida) with some success
If I am going any route it will be with accupuncture
I also part my hair and try expose the area as much as I can
I am scared too - I think for a long time Ihave sort of hidden behind my hair - my fiance tried to tell me he doesn't care but I went insane last weekend to the point that I was crying nonstop for about three days - he literally had to pick me up off the floor at one point
and this is all weird because when I was in my late teens early twenties I used to rock a chelsea cut - not sure if you knwo what that is its like a buzz cut with bangs and I loved it ...
I think its because its a matter of choice - I feel right now my body is betraying me - but I'm better than last weekend - i am smiling again trying to take things day by day - anytime you want to chat drop me a line
hmmm that's strange what pic was it - I think im scared ....Oh wait now I know the pic of me in the halloween mask :) - they were 99 cents each couldn't resist :)
Roger
Roger.
Aug 15, 2008
LeslieAnn Butler
My book, "If Your Hair Falls Out, Keep Dancing!" was written for you! I was diagnosed in my 20's as well. I've had it for over 30 years now, and I wrote this book just so you wouldn't have to go through everything I did! Check it out on my page -- and you can click the link at the bottom, or go to Amazon.com to get it. A lot of women and girls are loving it -- that makes me very happy because I want to help!
LeslieAnn
Aug 15, 2008
rj, Co-founder
Aug 15, 2008
Cheryl, Co-founder
Aug 16, 2008
Jessica
I too have had AA for a wile and have been treating it with injections for about a year I've still developed new spots but its helped very much grow back new hair.
Aug 18, 2008
Emma
I was in 4th grade when my hair fell out and it all started w/ a tiny bald spot behind my ear and within 3 weeks I was bald. 3mths later I lost my eye lashes and eye brows. I tried all kinds of treatments. After 9mths of treatments my parents talked with me about everything. We decided that we would take a break for all of the treatments. I used a synthetic wig for a year, but then got a vacumn sealed real hair wig. I like it most of the time, but it is so hot. I wear it to school and church. When I am home I dont wear anything. I am just now starting to feel sad about it all. I am scared to start a new school year. I know once I get back in to school that I will feel better. Good luck and we will keep in touch.
Emma
Aug 18, 2008
Sarah S
My name is Sarah and I came across your profile and noticed you live in Texas. I used to live in Austin and my husband I moved to Houston about seven months ago. I have AU (started losing my hair in December of 2006 and became AU in January of 2008). It is great to find a site like this and get in contact with other people with alopecia. My sister actually has a Ph.D in microbiology. She is a professor at the University of Richmond and whenever I have a science question on alopecia I always call her =) I hope you are doing well...I remember when I was first diagnosed and all the feelings I had...if you ever have any questions or want to talk just let me know.
Sarah
Aug 19, 2008
Sherrilyn Smith
I would really enjoy meeting you. I know that this experience has affected me in ways that is hard to explain. I too, was recently diagnosed with Alopecia. It has been about six months now and some days I am in denial and other days I want to face it head on with solutions I need to make for myself. Let me know when you are available. I am sure you are busy with school just let me know.
Sherrilyn
Aug 25, 2008
Laurie
Aug 27, 2008
Laurie
Where did you go wig shopping in Houston? I think it's time I start looking at clip-ins or a topper or something.
Thanks!
Aug 27, 2008
Sarah S
I saw your post and the pictures of your wig. You look great!!! If you do not mind me asking what brand is your wig? I thinking about getting a new one pretty soon.
Sarah
Aug 28, 2008
Melissa Harris
Melissa
Aug 30, 2008
Chelsea McGee
I guess I was lucky that mine didnt spread so quickly. IT's been 4 months and only now do i need a wig. Im actually going next weekend to try some on and hopefully get one fitted. Im super nervous. I've heard good and bad things about wigs, but i guess I'll just have to see. Take Care pretty girl
Aug 30, 2008
carly
lol ik thats alright i do that all the time
Aug 31, 2008
LeslieAnn Butler
Hugs!
Sep 2, 2008
EMILIE
Sep 4, 2008
☆Joseph Giallombardo☆
Sep 4, 2008
Fitzy
Sep 5, 2008
uncomfortably numb
Am glad to be a part of this wonderful site, hope to catch up sometime for a chat.
Sep 7, 2008
uncomfortably numb
say "kien problem" to AA, you'v a way to go girl !!
best wishes..
Sep 7, 2008
uncomfortably numb
well..yeah Simba is a hearthrob wherever he goes..
i just hope he'd be happy and healthy wherever he be
Sep 7, 2008
uncomfortably numb
Sep 7, 2008
dollydreadful
he instead tried to make me start taking valtrex every day when I have very few episodes, very mild episodes and succesfully address them even before anything visible occurs by taking my meds promptly - I take about 3 pills every 4 months or so and my primary doctor - who is fabulous but far away told me that is totally fine
he then looked at these little spots on my face and told me he coudl "correct" those as well
I have two spots on the crown of my head -I used to wear a sort of beehive hairstyle I did this for about a year so initially I thought traction alopecia but the circles are pretty round - so I really don't know
I have very little hx about my father's family and my maternal grandma lost her hair later in life perhaps about 65 I would say but she always had really thin hair
I was hoping for the dermatologist to look at the area and give me some differntial diagnosis - apparently that was too much for him
I refused the steroid injections -because they can't prevent other spots and from what I have read they may or may not result in hair growth this measured with the potential side effects made me not want the injections
He prescribed a cream I woudl rather wait and see what happends naturally at this point
My niece's husband has alopecia areata as well and he had the steroid injections stopped and lost hair again - he has been using acupuncture according to my sister ( they livein Florida) with some success
If I am going any route it will be with accupuncture
I also part my hair and try expose the area as much as I can
I am scared too - I think for a long time Ihave sort of hidden behind my hair - my fiance tried to tell me he doesn't care but I went insane last weekend to the point that I was crying nonstop for about three days - he literally had to pick me up off the floor at one point
and this is all weird because when I was in my late teens early twenties I used to rock a chelsea cut - not sure if you knwo what that is its like a buzz cut with bangs and I loved it ...
I think its because its a matter of choice - I feel right now my body is betraying me - but I'm better than last weekend - i am smiling again trying to take things day by day - anytime you want to chat drop me a line
Sep 7, 2008
dollydreadful
Sep 7, 2008
uncomfortably numb
Sep 7, 2008