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Amanda

34, Female

stillwater, minnesota

United States

Profile Information:

Relationship Status:: Single
About Me:: hi my name is amanda.. i was diagnosed with alopecia universalis in April of 2008.. i have actually had a really hard time with all this hair loss stuff but im trying to look to the bright side..
Do you have alopecia?: Alopecia universalis
Are you age 18 or older?: Yes

Comment Wall:

Katie Jones

Hey Amanda i'm Katie thanks for adding me! I know it's hard loosing your hair. I ended up loosing all my hair in less than 6 months when i was first diagnosed. Now I have Shaved my head.( and actually like it.lol) Well i hope to get to know! If you ever want someone to talk to I'm here :] talk to you later.
-Katie

May 15, 2008
Cheryl, Co-founder

Hi Amanda, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder

May 15, 2008
bee.

hey!
and thankyou :)
umm i dont know, haha
ive had it for almost five years now, so it deff takes some time, and i still dont have it down 100% perfect, give it some time though, i promise you'll be able to do the same :)

May 15, 2008
Babe

hey amanda! im pretty new to this whole thing too, just over a year! whats your story?! where you from!?

May 16, 2008
Mandy

Welcome Amanda. :)

May 16, 2008
bee.

hmm
what kind of glue are you using?
that might partially have something to do with it,
but make sure youre putting extra glue on the ends, like both ends so they stay on longer

May 19, 2008
Debi

Hi Amanda,
My daughter is 18 and a senior in Pgh. Pa. You guys would have so much in common. She is AT. She doesn't get on these boards, but I might convince her to converse with you. Do your friends know?

May 20, 2008
carly

hey :)
whaz up?

May 20, 2008
Lolin

hello there amanda. sorry you have to go through this as well. it really sucks. how do pepole at school treat you?

May 24, 2008
LeslieAnn Butler

Hi Amanda,
Yes, it's the pits. You are being very positive, but I know how much you need support.
You might find some good info and help in my new book, "If Your Hair Falls Out, Keep Dancing!" It's full of good advice and information, and it's fun to read. You can get it online -- there's a link at the bottom of my page. Or order it online through Amazon. I really think it will help you out -- it's the book I wish I had when I was first diagnosed with AA.
Hugs, LeslieAnn

May 25, 2008
LeslieAnn Butler

The best eyelast glue I've found is Ardell. You can find it at Walgreen's, Fred Meyers, places like that.
LeslieAnn

May 26, 2008
bee.

well i dont think im going but i dont know yet...we were going to go but if you didnt pay for your ticket before may 22nd then it goes to you have to pay 500 dollars...and if i go im only gonna be there saturday and maybe sunday so i dont see the point in paying 500 dollars for not even 2 days haha...i think im just gonna plan to go next year forsure, if you next year too i totally gotta meet you!

May 27, 2008
LeslieAnn Butler

Yes, Ardell seems to last longer. I tried Duo and it comes off really easily. It also helps if you put glue on both your eyelid and on the lashes. Let them get tacky, and stick them on. They last a lot longer that way. You still might have to touch up the corners, though. Use a toothpick (BUT BE CAREFUL!)
LeslieAnn

May 27, 2008
Alex

hey, whats up??

May 27, 2008
Zoe Dusting

Hi Amanda.
How are you doing?
What are your plans for this summer?!
Talk to you soon i hope:)
love zoe

May 28, 2008
Zoe Dusting

Oh by the way...in my intense lurking i noticed that you mentioned that you might want go to the conference...well i am going for sure and that would be totallllly radical if you went too! another 18 year old woooo! you should definitely consider it. I've never been, but i'm thinking it will really give me a new perspective on this alopecia business. Hope to see you there!!

May 28, 2008
Gabrielle

hey:)
how are you?

May 28, 2008
bee.

hey darlingg!
change in plans, i WILL be at the conference on sat and sun :)

May 29, 2008
Ashley

hey, thanks for the add!

Jun 1, 2008
Liesl

Hi amanda, my name is Liesl. I'm from Australia. How are you?

Jun 2, 2008
gerald

You are beautiful!
My wife is bald and beautiful with alopecia universalis. To me, a lady is often more beautiful bald than with hair, because you can really see a lady's feminine features better when she is bald.

Jun 4, 2008
jennifer

i have au too! i went thru a VERY HARD time. if you ever want to chat, zip me a message. jenn

Jun 26, 2008
Roger

You are great girl with or without hair! Dont forget that.

Roger.

Jul 1, 2008
T

Hi sweet pea. I'd love to chitty chat with ya whenever....I know it's got to be a real shitty time to lose your hair when your in the 'prime of your life'! I lost mine when I was so young that by now....I don't fucking remember what having hair was like!!
Anyhow, you're a very pretty girl....hair won't ever make or break you.
Good luck with school!

Love,
Taylor

Jul 9, 2008
T

Gosh! I'm such a nerd...Sorry new friends that I did not accept for WEEKS!! I just now figured out how to accept new requests *lol* I'm so awesome...love it!

Have a nice Thursday tomorrow ;)

Jul 9, 2008
Nick

hiyaa!!!
how are you doing?
im nick btw :)
x

Jul 10, 2008
Laura

Aww thanks so much really means a lot to me. I am very upset about all of this and it kills me everyday!

Jul 10, 2008
Laura

Hey thanks! I am trying!

Jul 28, 2008
Lacey

Heey Amanda,
i'm lacey, you look beautiful with or with out hair.
I just wanted to say hello :)

Aug 31, 2008
carly

hey amanda
cutee wigs- where do you get them from

Sep 1, 2008
carly

lol i really liked the blonde one
you should be proud to post pics when you have no hair on :)

Sep 3, 2008
Nezz

Hi Amanda, well firstly you're the person with the best attitude in this whole place considering you were diagnosed not so long ago, and well considering everything you say!
Secondly, you're beautiful, with your lovely bald head and with your lovely blonde or brunette wig. But you don't need me to tell u that!
Your blog has really made my day!
xxx

Sep 3, 2008
Roger

Hi!

Is Stillwater close to St. Paul?

Roger.

Sep 5, 2008
Kaitlyn

oh my god, where did you get that blonde wig and what is the brand. it's so adorable and just the style i have been looking for. i wonder if i could order it online? you're absolutely gorgeous btw with and without hair.

Nov 28, 2008