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Jennifer and Alieena

Female

Gaston, South Carolina

United States

Profile Information:

Relationship Status:: Married
About Me:: My name is Alieena i am 5yrs old, my birthday is Aug 27, 2003. I have Alopecia Areata. I love animals, mostly horses, but any animal will do. I enjoy horse back riding, swimming, and playing. I have a stuffed cat that I have had since the day I was born and its my best friend I take Kitty everywhere. Kitty makes me brave, she goes to the doctors with me and sits in my lap. (hi my name is Jennifer I am Alieenas mother thank you so much for having a site like this, its going to help so much.)
***UPDATE***
Alieena is doing well. We have decided not to go back to the doctors and just see what happens. In the spots where she had bold patches lots of hair has started to regrow. But with regrowth there has been a few more spots that have fallen out. But her hopes and spirts are high, I have decided that I cant protect her from the world that she will have to face it one day, so she starts Gymnastics on Tuesdays, and we go to the gym Mon, Wed, and Fri nights and she plays with the children in the daycare. She is doing so much better. I will have some new pics posted soon.
*****NEW UPDATE****
Today Alieena graduated from Kindergarten! Man is she getting so big. Her AA is getting better, and worse at the same time. Some of the first patches that fell out have started to grow back in, but then there are some new patches that have fallen out. Its like when some part starts to grow in another falls out x2. I will try to post some new pics soon.
Do you have alopecia?: Alopecia areata
Are you age 18 or older?: No - I am not 18 or older

Comment Wall:

Roger

Welcome.

Roger.

Jun 25, 2008
Cheryl, Co-founder

Hi Alieena, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder

Jun 25, 2008
Roger

Tell her shes so so cute too.

Roger.

Jun 25, 2008
Nicole

Hi Jennifer and Alieena!! Welcome to the site....let know if you ever have any questions or just want to chit chat about alopecia :)

Jun 25, 2008
Mommy

Hi Jennifer & Alieena!
We have a kitty named kitty too! Only she is a real kitty cat. You look adorable Alieena and what a beautiful name. We hope you don't let the hair or lack there of get you down and that you find support here. Helen and her mommy.

Jun 25, 2008
Cheryl, Co-founder

As we created this site and more and more people joined I realized just how important the visual of others with alopecia is. I think just seeing others living thier lives with alopecia is so important and I think a photo... says a 1,000 words. Take care. Cheryl

Jun 26, 2008
Kate Martino

hello! i just read your blog about your horrible experience...I AM SOOOOO SORRY...your poor daughter, that sounds miserable.
Just thought I would share that I am a 23 year old female from CT and I first got bald spots on my head when I was in the 2nd grade(what is that 7 or 8 years old??) and I have never lost all of my hair. I did not go through the injections because I was way too scared but I did try every cream imaginable. I have lost up to 90% of my hair, but never all of it and now I have 95% of my hair back and it has been back since before high school.
Every situation is different, that is a promise I can make you...no one knows for sure what will happen with your daughter so please do not let anyone tell you otherwise...You cannot even try to predict what the future holds, all you can do is support her and keep telling her how beautiful and special she is...If you could, come to the conference next year and have your daughter meet other people with alopecia or attend a support group with other kids so she can see that she is not alone!
I am so sorry that doctor was so rude and unfortunately, this world is a cruel place...Just keep showing her your support and keep hope regardless of what people say. Good luck and please feel free to contact me for anything!

Kate Martino

Jun 27, 2008
MARIA (mom of Savanna)

Hello Jennifer, Thank you for the firend request, I also read your blog and I almost cried just reading it, I could only imagine what you had to go through that day. My daughter Savanna was diagnoised with AA when she was 3yrs old actually it was a couple months before she turned 3. She is now 6 yrs old and AU, it didnt take long for her to lose all her hair, it was about 2 or 3 months and she was completly bald it took a lil longer for her to lose her eyebrows and eyelashes.

Her derm. was a woman and extremly senstive to the issue and a wonderful woman at that. I choose not to do any treatments at this time, I dont want her submitted to anything painful. I honestly believe when it is ready it will grow back on its own.

Savanna being bald has changed her life in some aspects, but she still lives a wonderful life, We give her all our love and tell her everyday how beautiful she is. She still does everything she wants to do. If you have any question or would just like to talk sometime, Just feel free to ask....Maria

Jun 27, 2008
Maria, Mia's Mom

Hi Jennifer and alieen, Its a shame that some derms have no compassion. I know how u feel the first derm I took my daughter to walked in the room looked at my daughter from across the room and said she has alopecia, I dont treat that or children. I left so upset and luckly found a childrens derm that was absolutely wonderful my daughter Loves him. Try and stay strong, its easy to breakdown for our children. Its been a over a year and I still have my days.
Maria

Jun 29, 2008
LeslieAnn Butler

Hi Jennifer and Alieena,
Interesting story about dermatologists. Terrible! How are you both doing? I know that sometimes the moms have a lot harder time with alopecia than the children. Anyway, I wanted to say hello. I've had aa for about 30 years.
LeslieAnn

Jun 29, 2008
Trina

jennifer,

i read your blog and was appauled at the way this dr treated you. I mean the nerve of people. No one has the final say so on what happens. Just stay strong and keep faith

Jun 30, 2008
Lori

Wow, I can't believe that doctor was such a jerk- I really think he needs to retire ASAP! It is interesting how every one thinks differently- when we went to a derm I didn't want any sugar coating--- I wanted the black and white... where as you would have been content with the gray area... interesting... but yeah you can always tell which docs have children and which don't. I hope you have a great Holiday (I am just assuming that you celebrate Thanksgiving.)

Nov 26, 2008
myranda

hey how are things going

Feb 18, 2009
myranda

thats good and i was just wondering what is that on the front of her head in the pic ithard to c

Feb 20, 2009
childrenwithhairloss

If she need a hair replacement check out www.childrenwithhairloss.us

Jun 2, 2009
Cindy

Hi Jennifer and Alieena. My name is Cindy and I have a 7 yr old daughter. She too lost her hair during K last year. Your daughter sounds like a gem. Sam is now regrowing, but she wears a wig through the hair club for men. I suggest checking it out if you decide to get one. They have a kids club that offers 3 free hair replacements a year. Cindy

Jun 4, 2009
Cindy

Hi Jennifer...go to www.hairclub.com and click on kids club. There will be a phone number to call to get the application. You need a doctors signature and that is because of the adhesive used. just call your ped for them to sign it. Once you have the paper work call you local hair club for men and make an apt. It takes about 12 weeks to get the wig. Sam likes them and they did a great job matching her color...Sam also wears headbands with hair sewn into them from www.hatswithhair.com. she prefers them in the summer. however, now that her hair is fairly grown in I don't think she will be wearing them much once school finishes...Please write if you have any questions. ARe you doing any treatment?

Jun 5, 2009