I've had Alopecia (somewhere between Universalis and Totalis) since I was 9 months old. For a brief period when I was 5 (about 1 month) I had hair again, and that was it.
Other than that - I'm an IT Software Engineer, I'm a twin (and no - she doesn't have alopecia - she has hair!!!) and I live and grew up in and around Brisbane.
hey DOM - fantastic to see you - now you need to go and join the Australian Group so you can meet all the other Aussies that are signing up!!! I am really enjoying this webiste I hope you will too
I am going to organise a meeting really soon I promise!!!
I am working weekends now so it's a bit difficult but I will I promise!!!
and hello back i try and be as active as i can witch is easy right now since im home for 2 weeks. i love this site its exiteing to meet and talk with others who have AA,AU,AT and just other people in gen from all over. really exi about confrence in june.
Hey Dominique....I just read your reply on Signe's forum question about passing along aa to her baby. I just wanted to tell you I totally agree about the trigger thing. I've got aa, hashimoto's thyroiditis, excema and rheumatoid arthritis. Nothing came out until I was in college. No one in my family -- and I mean no one (I've gone back generations) - had anything like what I've got. I think my family all carried this gene and it just took a trigger to set it off. I had that trigger and the rest of my family, thank goodness, did not. My doctor seems to think it was an infection or injury that happened to me in college...but that was 15 years ago and I cant' remember that far back. Hell, I can barely remember what I ate for breakfast yesterday!!!! Take care....Daria
Hi Dominique - you have a great picture (the one seated looking down). When I shave my head I might have to copy the idea. I have a photographer friend that is counting down the days until I shave so he can start taking pics. :-)
Hi! I'ts nice to meet you! Yeah i'm getting there with the whole hair loss thing. I try and stay positive if not for me, my boyfriend. He's such a softy. Another aussie, yay! That photo is gorgeous. You're a brissy girl are you? Must be happy about the state of origin then. I was so cranky haha. Bloody QLD lol. How you been? Liesl xx
I think getting a Freedom wig was definitely the best solution for me. My first wig was synthetic and I found that very hot and the hair kept getting matted - not nice. The next wig I had was a human hair but obviously very processed hair because it tended to mat as well. My Freedom wig can be a little hot - I sweat a bit under the cap on hot days but if I have the hair up off my neck in a ponytail it's not unbearable. After all, on 30+ degree days, my own hair used to feel hot as well!
I find it very comfortable, it did feel a little weird at first but it didn't take that long to get used to it. Another thing that I had to get used to is getting it in the right place when you put it on. When I first got it, it would take me 3 or 4 tries to get it on right.
It definitely won't come off at the wrong moment - I've been swimming with it on (although I prefer to swim bald or in a bandana because the hair gets quite heavy when wet) and I've been on a 'slingshot' ride wearing it (where you get flung way up in the air & turn upside down etc.)
I can't think of anything else to tell you at the moment, but if you have anymore questions at all, I'd be only too happy to answer them.
I love my hair colour too! It's so close to what my own hair was. Funny to think that growing up, I didn't like my red hair and now when getting wigs, I won't settle for anything but red! I just don't look right any other colour.
Yeah, looking younger really isn't all that bad. In many ways, I'm a late starter at this "life" thing, so being able to pass for someone younger is a real advantage. :)
I'm really tired of being carded at bars, though. :P
I have been reading your page for the past few months and have wanted to message you to ask a few questions. If you read my page you would see that I have a daughter who is turning five in three weeks and she has alopecia. She is now in the shedding phase and what will happen....who knows...
I have come to terms with the fact that she may have to live with this for the rest of her life and now I am pretty much OK. I still have my days but on the most part, I am content.
What I am concern is the school matters and what would it be like for her when I am not around. I feel like you would be the perfect person to ask since you have grown up with this condition and have bloomed into a beautiful woman.
Was it hard for you? How did you deal with the issues (especially the teen years)? What about wigs? Were you bullied? Did your parents talk to the school about your condition? Did you go to a private or public school? Was it easy for you to make friends? I guess you would now what I am leaning towards. I really want to know firsthand what it may be like so that I can help her steer her life through it.
Any guidance from you will be worth more than money.
dominique, heres a link to a book and the thing about twins
http://books.google.com.au/books?id=shP_ZfPRrUkC&pg=PA19&lpg=PA19&dq=alopecia+twins&source=web&ots=61rrO6bf7G&sig=C_t9P7RGNmID3UaVwYv4IV0BdUM&hl=en&sa=X&oi=book_result&resnum=1&ct=result
Dom!! Hi there stranger! Gareth and I are back in the USA and we have a baby daughter. I've missed seeing you, Angela and the others back in Brisbane so it was such a nice surprise to find you here. How are you doing? How is your mum? I hope everyone is well! Lots of love, Courtney
Goody
Mar 17, 2008
Cheryl, Co-founder
I wanted to welcome you to Alopecia World and look forward to getting to know you.
Let me know if you have any questions.
Cheryl
Mar 17, 2008
kastababy
Mar 17, 2008
Angela Jackman
I am going to organise a meeting really soon I promise!!!
I am working weekends now so it's a bit difficult but I will I promise!!!
ANGELA
Mar 18, 2008
Roger
Mar 18, 2008
Jennifer
Mar 18, 2008
Martina Wright
Mar 18, 2008
Cheryl, Co-founder
Cheryl
co-founder
Mar 18, 2008
Angela Jackman
I note that you are a single girl???? no fella on the scene?
ANGE
Mar 19, 2008
Stchew
Mar 21, 2008
Ashley
Mar 21, 2008
brian kirchman
Mar 27, 2008
brian kirchman
Mar 27, 2008
brian kirchman
Mar 27, 2008
Daria
Apr 2, 2008
Ken
Apr 30, 2008
Kristen
May 5, 2008
Liesl
Jun 2, 2008
Roger
Hows life back in Australia?
Roger.
Jul 8, 2008
Liesl
Jul 8, 2008
Esther
Oct 6, 2008
Tony
Oct 10, 2008
Courtney
Oct 14, 2008
Karina Louise
I think getting a Freedom wig was definitely the best solution for me. My first wig was synthetic and I found that very hot and the hair kept getting matted - not nice. The next wig I had was a human hair but obviously very processed hair because it tended to mat as well. My Freedom wig can be a little hot - I sweat a bit under the cap on hot days but if I have the hair up off my neck in a ponytail it's not unbearable. After all, on 30+ degree days, my own hair used to feel hot as well!
I find it very comfortable, it did feel a little weird at first but it didn't take that long to get used to it. Another thing that I had to get used to is getting it in the right place when you put it on. When I first got it, it would take me 3 or 4 tries to get it on right.
It definitely won't come off at the wrong moment - I've been swimming with it on (although I prefer to swim bald or in a bandana because the hair gets quite heavy when wet) and I've been on a 'slingshot' ride wearing it (where you get flung way up in the air & turn upside down etc.)
I can't think of anything else to tell you at the moment, but if you have anymore questions at all, I'd be only too happy to answer them.
I love my hair colour too! It's so close to what my own hair was. Funny to think that growing up, I didn't like my red hair and now when getting wigs, I won't settle for anything but red! I just don't look right any other colour.
Karina.
Oct 18, 2008
Matt
I'm really tired of being carded at bars, though. :P
Oct 21, 2008
Karen
I have been reading your page for the past few months and have wanted to message you to ask a few questions. If you read my page you would see that I have a daughter who is turning five in three weeks and she has alopecia. She is now in the shedding phase and what will happen....who knows...
I have come to terms with the fact that she may have to live with this for the rest of her life and now I am pretty much OK. I still have my days but on the most part, I am content.
What I am concern is the school matters and what would it be like for her when I am not around. I feel like you would be the perfect person to ask since you have grown up with this condition and have bloomed into a beautiful woman.
Was it hard for you? How did you deal with the issues (especially the teen years)? What about wigs? Were you bullied? Did your parents talk to the school about your condition? Did you go to a private or public school? Was it easy for you to make friends? I guess you would now what I am leaning towards. I really want to know firsthand what it may be like so that I can help her steer her life through it.
Any guidance from you will be worth more than money.
Karen
Oct 23, 2008
Karen
Thanks for thr reply. I am looking forward to reading your advice.
Karen
Oct 29, 2008
Alison
http://books.google.com.au/books?id=shP_ZfPRrUkC&pg=PA19&lpg=PA19&dq=alopecia+twins&source=web&ots=61rrO6bf7G&sig=C_t9P7RGNmID3UaVwYv4IV0BdUM&hl=en&sa=X&oi=book_result&resnum=1&ct=result
Nov 6, 2008
Courtney
Apr 3, 2009