25

Cheryl, Co-founder

Female

Detroit, MI

United States

Profile Information:

Relationship Status:: Married
About Me:: I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world… AlopeciaWorld.com!

PS: Don't forget to check out our book:

Whole in the Mirror: From Fractured Identity to Fierce Self-Acceptance:

Available on Amazon:
https://a.co/d/6emBEMY

Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
cheryl@alopeciaworld.com

"It's Hair Loss Support At Its Best"

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Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes - I am 18 or older
Your Website (Leave blank if you don't have one):: http://www.alopeciaworld.com

Comment Wall:

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Chantal

Thank you so much Cheryl! This site is so incredibly vital for our growth and confidence and healing! :) lots of ♥!

Mar 3, 2009
theresa

thank you and RJ for starting this site.

Mar 4, 2009
James

Hi Cheryl, Ya I tried to do a bulk upload from facebook. I'll have to replace them direct from my files. Thanks for the add as well. James

Mar 5, 2009
Steve E.

Thank you soooo much for remembering, it mean a lot to me. Love ya!

Mar 5, 2009
Jennifer Krahn

Thank you so much for this site. I have been recently diagnosed with AA and was utterly destroyed. This site has let me see beautiful people with even more self awareness and self confidence than I could have with hair. I'm scared of my journey but ready to embrace the challenge. This website has been the best therapy. Thanks so much and God bless

Mar 6, 2009
KD

Cheryl !!!! You made a fabulous site !!! I Luuvv all the people here !! Can you believe that !!?? Gosh where are they from ?? They are so lovely !! they didn't know me but they do care about me o_0. They helped me out after the hard days of dealing with alopecia crap ! Great people i tell you that :) hihi ! how are you doing ? sum thing special at the weekend ?

Mar 6, 2009
JeffreySF

Thank You Cheryl!!!
You make everyday a special one for me.

Hugz,

Jeff

Mar 14, 2009
brian kirchman

i was takeing a break from driveing my 4x4 truck and got on a 4 wheeler well i was going way to fast to turn that sharp and i flipped it and i flew thro the air and so did the four wheeler and it wanted to land where i did drove me shoulder first in to the only hard piece of ground for miles go figure

Mar 14, 2009
Christina Bostwick

i had a ? i hope maybe you can shead some light on...i was wondering how do you know which type of alopecia you have? how easily is it to notice if AA will or will not progressin to AU? i have had AA once @16 and now again @ 26 i to be honest i dont really know what to think..i am scared , nervous and ashamed all at once i am not coping well as i am sure you are able to tell. i havent told anyone but my hubby and my mom i just dont want anyone feeling sorry for me you know or asking ?'s i cant even answer (willit grow back? how long will it take ?) you know things like that. irealize that eveyone and every case is different but i would luv to hear your story if your willing to share..thanks.

Mar 14, 2009
kastababy

Hi Cheryl!!!

How's the wedding planning going??? Mine is stuck in neutral for the moment; we can't decide on a date -- I'm pushing for sooner, he's pushing for later so we have more time to plan, and it's crazy! I miss everyone like crazy, so I'm making an extra effort to get back on here and start posting again!!! Tell RJ I said hello, and I'm creating an iTunes mix just for him!!! If he has an iPod then he can download it!!! Hope to hear from you soon!

YoKasta

Mar 15, 2009
german mama in NY

Hi, thanks, we are very proud of her, especial her laughing!

Mar 17, 2009
josh

Thanks Cheryl, I hope I can find new friends here.

Mar 26, 2009
Johana Tichackova

Hi Cheryl.thank you so much for message .Its been really boring to talk about it with people they do have a hair they try to understand but they can not.Plus I used to hate it to talk about it I was really bad on people.Anyway what about you you still do not have any hair or did it grow up back ...Do you have any children ? You have a good day thank for the ansver Johanka.

Mar 26, 2009
shirley carole douglas

Hi Cheryl thank you so much for making me feel welcome its a great site.
All the best for now
Shirley

Mar 26, 2009
LeslieAnn Butler

Hey Cheryl,
I am hoping you can help me -- my book just won a national award and is finalist for a second one. I tried to send an announcement to all my "Friends" but it wouldn't allow me to send to that many people. How can I make the fab announcement to everyone?
Thanks!

Mar 28, 2009
LeslieAnn Butler

Thanks for your response -- there doesn't seem to be a way to send a message to any thing other than ALL friends -- and because I have more than 100 friends, I can't send. Do you know how to do that?
Hugs!

Mar 30, 2009
Julia

Very good...and you? Have you made the move to the states yet?

Mar 31, 2009
Nitza

Hello Cheryl,
I'm doing good so far so good my hair is growing but I'm scared cause I no it could fall out again.. I wish there was a support group in n.j so I can go and meet peaple. so how are you doing today.

Mar 31, 2009
Roger

Great wedding photos.

Roger.

Apr 25, 2009
Kristin (Matthew's Mom)

Congrats on the wedding. Enjoy the rest of your lives together.

Apr 25, 2009
Janet K.

Much love and blessing 2 you and R.J....c
Congrats

Apr 25, 2009
Carol

Congratulations girl!!! I have a sneeky suspicion that you and RJ will so happy together forever! I love the wedding dress too, very unique and beautiful just like you! May peace be with you! :)

Apr 30, 2009
Carol

No problem Cheryl, I can understand you've been a bit busy LOL. Take your time but thanks again!

Apr 30, 2009
Carol

Thank you so much Cheryl, I look forward to getting it. I will post pics after too! ;) Did you and RJ have a honeymoon??

Apr 30, 2009
JeffreySF

I miss you too Cheryl.

Congrats again to you and RJ.

Cya soon.

Jeffrey

May 1, 2009
Shana and Taylor

Congrats on the marriage!
xoxo
Taylor

May 1, 2009
Dotty

Hi Cheryl,
I am very happy for you, and yes, I know exactly what you mean about finding that man that loves you for you!!! I will definitely be at the conference this year barring any unforeseen issues!!! I can't wait to see you.
Love and Hugs,
Dotty

May 2, 2009
Galvin

Hi Cheryl, yea that's me with Marty on top of Mt. Washington here
in Pittsburgh and on the Brooklyn Bridge in New York City. Marty
has a big heart, but.......well I'm sure you know Marty....I'll just say we
have had some big disagreements and some really fun times.

May 2, 2009
Laura

Hey Cheryl! How are you? Congratulations on your wedding! You look stunning in your wedding pictures! Will you be moving to Michigan? Hope I get to see you in a few months in TX :)

May 2, 2009
kastababy

I'm doing good -- just been working a lot from both home and my office. Todd is doing good too -- we've decided to put things in neutral for a while; we both have some issues we need to work out before we go ahead with the wedding. It's frustrating but I know things will work out the way they're supposed to. So what is your married name going to be, and where are you two going for your honeymoon?

Glad to see you both are doing better -- have there been any cases of swine flu in Canada? Have you moved to Michigan yet???

May 2, 2009
Jeff W

Cheryl, so nice to hear from you! I'm doing well and thanks for asking. This forum has certainly been a great help in understanding, coping, and accepting. I'm so happy for you and RJ! Congrats again!
Jeff

May 3, 2009
Susan Fisher

Hi Cheryl... it is you! lol Jennifer may be contacting you for some information also... has friend she's worked with for many years with alopecia and so I sent her a link to this sight. Talk to you soon : )

May 3, 2009
Heather L

Hey Cheryl,

You are most certainly welcome! I love the big happy smiles on both yours and RJ's face in your pics. Your love for each other radiates through the pictures.

Although I am not new to AA- until this wonderful site you created- I never knew any one with this condition. So the emotional roller coaster was a lonely one. To see how confident and comfortable you are is a very beautiful and inspiring thing!! Thank you for that!

Hope you had a great weekend! And once again- congratulations!
Heather

May 3, 2009
Jess

Oh my goodness. I can not tell you how exciting it is to find people who are open and accepting of alopecia. I have androgenic alopecia that just kicked in one day. It's been very hard to deal with, very emotional, very depressing, very a lot of things duh you know that. This past weekend I finally buzzed it. My friends and family have been very supportive, though my mom is pushing me to wigs. I'm so glad I found this site, if for nothing else knowing that I'm not alone. Thank you!

May 7, 2009
lynne

hello, thank u for the welcome,
ive met some great people already, so glad i found this site, hope we can chat sn, take care,x

May 15, 2009
kastababy

Happy Sunday Cheryl!

So how's married life treating you?? How do you like living permanently in the ghost town that's Detroit??? I have to have a sense of humor about it; I have lots of family that lives there and that is where my sister-in-law's family is too.

Hope you and RJ are having a great week!

May 17, 2009
Kayleigh George

Hi Cheryl Im new to this site, but I just wanted to say thankyou for setting it up. There didnt seem to be anything for peole with alopecia. I felt I was the only person with alopecia, I no longer feel like im alone, so a big thankyou!
I hope you are well
kayleigh

May 28, 2009
Roger

Hi Cheryl =)

Im fine thanks. I talked to Marty yesterday about the trip to Houston and Austin. He is soooooo funny. He loves to talk a lot.

Im going to play some baseball today with some friends.

How are you and Rj?

May 29, 2009
JeffreySF

Hi Cheryl,

Stopped in to send you well wishes and hugz.
Sometimes i get a little down but my friends at Alopecia World bring me right back up again. I'm glad I can give my support at the same time to help others.

Are you and Rj on The Go for Houston? I have a little suprise in store....Just wait and hold your breath....

Hugz and Love

Jeffrey

Jun 1, 2009
JeffreySF

Hi Cheryl,

Saw your smile so stopped in to say hello.

Cya soon,

Jeffrey

Jun 1, 2009
JeffreySF

Hey Cheryl,

I hope you guys can make the Conf.
All is good here with me.

Chat soon,

Jeffrey

Jun 2, 2009
MiNAH

I'm getting ready to interact and it's gonna be great!
Mind you, I have just recently started wearing this.
Yet experiencing good and negative responses.
"What's a GiRL tO Do"
It's such a shame I won't be at the Conference.
I have just had 7 months Down Under.
However...some of my special ladies are going to be there with you.
Mina

Jun 3, 2009
Salmezan

Hi Cheryl,

I would like to take this opportunity to say thank you to you and RJ. AW has completely changed my life! I met a fellow alopecian from the same town and since then I have never been happier! Thank you so so much for starting up this website. It made a difference in my life and I don't think I can ever thank you enough!!

Sal xx

Jun 3, 2009
Kelci

I know I know! haha but it's great to be on here! It's different to see Alopecia from another view you know. Because for so long it's been me and my tight group at the conference and we are all pretty good with our alopecia. I stopped wearing my wig when I was 13 and haven't really looked back. It's nice to be on here and remember what I went through and know that I can help others through it as well.

Jun 3, 2009
Trina

Hey Cheryl,

Thanks for dropping by. The wedding is November 27th. The pictures of you and RJ were beautiful. You looked soo nice... Thanks for checking up on me.

TRINA

Jun 5, 2009
rj, Co-founder

Jun 6, 2009
as

Hallo Cheryl !
Thank you behind greeting !
I'd like that much wrote.I don't know England,mine translator so does it untameableness.I don't want to me was misinterpret.Therefore rather on Alopecia World no write.Only I'm reding stories and counsel second.Shall I you all on Alopecia World very like.
Thank you !

I hope as though me understand,what I wanted tell.
as

Jun 11, 2009
LeslieAnn Butler

Hey Cheryl, how are you?
I am so excited about my book wining the national ForeWord Magazine's Book of the Year, as well as the top honor, Reviewer's Choice, from ReaderViews!!! Anyway, I have a new image for the book cover which incorporates both the award seals. I added it to my photos section. What is the best way to announce it on AW?
Hugs, LeslieAnn

Jun 19, 2009
Kelci

ok will do! Are you in Texas??

Jun 26, 2009
MiNAH

I'm waiting to see all the fantastic photos of the conference.I so wished to be there..I feel so left out!
I gotta saaad face!
Martine from freedomwigs and the Princess Charlotte Foundation Sydney Australia must have been there.
Did you get a chance to meet her?
Anyway..heard that Matt was feeling an "AFTERGLOW"
Although one day..I will make my way..there's gotta be a way for all of us who are so far away.
After all...it's a slow transition into Alopecia World and there haven't been many people living in my area..so it looks like.
I guess you'll be posting all the photos up of the event any moment now...wonderful!
Mina

Jun 30, 2009

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