0

Amy

55, Female

Worcester

United States

Profile Information:

Relationship Status:: Married
About Me:: Hi, I'm Amy. I'm 40 years old and live in Worcester, MA with my husband JJ and our two little boys (ages 5 & 3). Although I've dealt with small bald spots since the age of 16, that would quickly grow back, I was officially diagnosed with AA from a biopsy in January 08. Within two months of that I'd pretty much lost it all. I'm here to find support from others who understand. I would also love to get some folks in the New England area interested in some BGDL events (as Thea says...we are all hiding in plain site :-). I attended a BGDL event in CT that was truly a life changing experience for me...I even had the guts to finally shave off those final strands of hair that I was desperately holding on to. It was nice to finally feel empowered again. I look forward to meeting more people on this site and sharing our journeys together.
Do you have alopecia?: Alopecia areata
Are you age 18 or older?: Yes

Comment Wall:

Cheryl, Co-founder

Hi Amy, I too want to make it to a BGDL event! I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder

May 7, 2008
Jean Jackson

Hi Amy,

I'm very anxious to see what type of hair your will have next. There is a wig on order for me with curls, a big change . BGDL was fun and enlightening. I'm not sure if I will ever go bald, but I know it is a possibility.

Jean from NH

May 7, 2008
Roger

Welcome.

Roger.

May 7, 2008
Beth

Hi there! I

May 8, 2008
Beth

take it you survived a night out after bald girls do lunch? Hope all is well ;)

May 8, 2008
Cindy

Hi Amy..I don't have AA, but my 6 year old does. Just wanted to say hi since we are almost neighbors. I live in Upton..Cindy

May 15, 2008
Cindy

Hi Amy..I know so many people that work at EMC..I used to work in Worcester before I decided to stop working. Samantha is being seen 3 derm later at Children's Hospital and she is currently doing squaric acid immunotherapy. It is an irritant that produces an allergic reaction in the form of a rash. We have not seen results yet, but the dr says it is too soon. We are kicking it up this week so I hope to see something soon. Sam lost all of hair between Aug and Dec for the most part. She most recently lost the rest of her brows and lashes. Do you ever take your kids to the EMC park? If you do I could meet up there sometime...Samantha wears a wig full time and we just went to hair club for men in Southboro where she will get a free human hair wig. We will get it next month. bye for now.Cindy

May 16, 2008
Jean Jackson

Hey Amy,

My "curls" are coming from China, and with the earthquake I don't know what is happening. I'll call the person I ordered from and see if the shipment is delayed or worse. It puts things in perspective, and I haven't wanted to call, in case people there were hurt.

May 20, 2008
Daphne

It's nice to hear from you Amy.. Thanks.. Your children are cute, yes please send me a picture of the new do.. Glad to see you are embracing this.. Love to hear from you more.. Take care... Daphne

May 20, 2008
LeslieAnn Butler

Adorable little munchkins!
I used to live in New Hampshire -- brrr!
Are you doing all right?
LeslieAnn

May 25, 2008
Dotty

Hi Amy,
Your boys are adorable. I just wanted to let you know that I am planning a Boston get together in September. I would love to meet you. No final plans yet but it will definitely happen!! I've been trying to put one together for a long time but circumstances haven't allowed me to do that. But, I can't wait to meet everyone. There are 5 or 6 so far. I hope you're interested. Let me know. Nice to see another neighbor on here.
Love and Hugs,
Dotty

Aug 7, 2008
Lori D.

Hi Amy, We're having a lunch get together jan. 31st...interested?

Jan 20, 2009
Dotty

Hi Amy,
You gotta check out the pics from Saturday. They're awesome. DJ keeps talking about his new best friend. Jack is the older one right? There is an awesome pic of them hugging. I'm so glad you came. I had a wonderful time and I can't wait until the next one.
Love and Hugs,
Dotty

Feb 2, 2009
Justine

Hey Amy,
It was great to meet you too. I appreciate your compliments about Ella, but it really is easy to accept her the way she is since she's almost always been like that. It's you that I can't stop thinking about. I would never have known you were bald under that wig! You are beautiful and your personality shines. It's great to meet other people that embrace the fact that it's just hair, and to be glad it's nothing life threatening. I hope you attend the meetings in the future, because I think some of the older kids need to have someone like you to look up to.
Can't wait to meet again,
Justine

Feb 3, 2009
joycestock

Hi Amy,
The pleasure was all mine. I enjoyed meeting you and your family and am always happy if I can in any way help someone cope with this crazy condition. And I will be happy to go with you if and when you decide to get a tattoo on your beautiful head! You are a beautiful lady with a beautiful family and I am happy to know you and look forward to seeing you again. I am hoping that we can put together a real bash in the spring!

I have just joined this site at Dottie's urging and haven't figured out how to post pics and things here, but I will figure it out soon.

Be well.

Peace
Joyce

Feb 3, 2009
Cindy

Hi Amy, it was definitely great to finally meet and Sam had a great time with all the kiddos and smooching..I definitely would be up for a park date when the weather gets warm at EMC..See you soon! Cindy

Feb 3, 2009
Dotty

Hi Amy,
How's things my friend? I wanted to let you know that we are planning an "Alopecia beauty day" at a boutique in Chelmsford on June 7th as our first official awareness event for our newly incorporated non-profit Alopecia company. They are opening the boutique just for us and we can try on clothes, take lots of pics, and just have fun together. I got at least 40 dress up costumes for the kids. They will look so adorable. We are going to do a buffet brunch at the hotel nearby first and then go to the boutique. I hope you can make it, we had so much fun at the last one!!! I know it will be great!!! Miss you much. Say hi to the family. Please let me know so we can do a head count for the restaurant reservations.
Love and Hugs,
Dotty

Apr 26, 2009
Dotty

Hi Amy,
Nice to hear from you. Things are busy here as usual. I miss you!!! We've had 2 events in Massachusetts recently and are hoping to have more. I'll keep you updated on the progress. Love ya. Give everyone hugs for me.
Love and Hugs,
Dotty

Aug 4, 2009
Cindy

Hi Amy, nice to hear from you. I am beat from spending the day in Hampton, but it was worth it. I am taking Samantha to the BGDL in Sept. Are you going? Please feel free to email if you have any questions about the squaric acid. It took Samantha about 5-6 months before we saw the fuzz and then 2 before color. Be patient and I bet it will work. Sam is wig free and wants a hair cut before school. We may trim it up in a few weeks. I call her my nurse Jackie. Sam has had some rashes on her body that have tolerable and with steriod cream have cleared right up. She gets them periodically. It has been a whole year since regrowth and she has a few small nail size spots that are covered by her hair. She is doing the .01% Stay positive! Cindy

Aug 4, 2009