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claire taylor

48, Female

manchester

United Kingdom

Profile Information:

Relationship Status:: Married
About Me:: I am claire from manchester england, im 32 and have had alopecia universalis for about 17 years, I wear wigs and honestly love them,
I love music and going to gigs fave music is Arctic Monkeys, Stone Roses, The Beatles, Happy Mondays, The Enemy, The Jam,Paul Weller loads more.
I get married in 8 weeks time to Dave my long suffering husband to be I have 3 children Alex 11,Jack 8 and baby Alfie 2
I would love to hear from anyone!!!!
I have got years of expieriance on dealing with some of the issues that alopecia can cause and would really like to help anybody and if you think my advice is not so good you can say shut up Claire ha ha I wont mind xx
I have added some pictures of my wonderful friends and family who all support me I dont know if this is the norm on here but i would like people to see them, I will get some of them to join this site, I feel it would be good for them to chat and meet others who have the same condition as me, and maybe speak to other family/friends who have a loved one with alopecia.
Do you have alopecia?: Alopecia totalis
Are you age 18 or older?: Yes

Comment Wall:

Cheryl, Co-founder

Hi Claire,

Congratulations on your wedding. I will be getting married lateron this year too! I wanted to welcome to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. I look forward to getting to know you.

Cheryl, co-founder

Mar 21, 2008
Roger

Welcome!

Mar 21, 2008
Cheryl, Co-founder

Hi Claire, that is so exciting. There is something really liberating about taking those kind of chances. Believe me you will be empowered after. Feel free to upload any photo or videos and keep me informed. It is amazing how we are all doing our part to get ourselves and others to a place of acceptance. Take care and I am really glad that you are here!

Mar 21, 2008
Kara

Hi Claire .. i also have AU .. for about 25 years I had my ups and downs of crouse!! i have hair on my head(but its super thin) but no lashes or brows .. I've become a pro with the make-up with the brows and eyeliner...

Mar 22, 2008
Joan

Congratulations on your forthcoming wedding Claire. I hope your love will continue to grow as the years unfold and your dreams come true. This is my message from Australia.

Mar 22, 2008
MO gal

Welcome! Congrats on the wedding! Your children are absolutely beautiful!
You are very blessed!

Mar 22, 2008
Caroline

thank you very much for giving your story =] i really appreciate it

Mar 23, 2008
rj, Co-founder

Hi, Claire. Since there are a number of you interested in chatting, perhaps it would be a good idea for all of you to put your heads together, work out chat times among yourselves, and let the rest of us know those times. ;-)

Mar 24, 2008
Donna

Hi Claire nice to meet you and thanks for the welcome. I get married this year too, at the end of July. Have you got everything sorted?

Mar 27, 2008
Yvonne~Yhoney

Hey Claire,
Just stopping by to say "Hey" :) Love the pictures of the little ones they are so precious! ;) Remember...any advice given out of Love is good advice! :)
~Yhoney

Apr 3, 2008
Katherine Green

Heya Claire, nice too see someone else from the UK,

Cheers

Katherine.x

Apr 9, 2008
Laura Hudson

Have you had the semi perm tatts done yet? I have always been interested in this but never really pursued it. Let me know your thoughts on it once it's done.

Also, thanks so much for you encouraging words!!!

Laura

Apr 9, 2008
Nicole

Hi!! Thank you for your kind words....developing alopecia as an adult was hard...but it's made me a better person

You are beutiful and have such a beautiful family!

Apr 10, 2008
Sarah

Hiya Claire

Just passing your page so stopped by to say Hi. I hope you are having a good week. You have some g8 photo's.

Sarah
x

Apr 15, 2008
Andrew

Hi Claire! It's nice to meet you. Thanks for the comment. I can tell from the pictures that you are very confident person....which is great. It looks like you have adjusted well and should be a great role model for young ones with alopecia. By the way you look great! Comment me anytime!

Apr 22, 2008
Sherry

Hi Claire, I am one of the family members of a child with alopecia. I am the cousin of Hayden. Hayden is 3 yr old lil boy. Actually Haydens mom, Monique is my cousin. So I guess that makes Hayden my 2nd cousin..well it doesn't really matter because I love that lil' boy to pieces..along with his 2 yr old sister Hayley.
We as a family just found out within the past 8-10 months that Hayden has Alopecia. So we are in the beginning stages of learning about the disease and the treatments and all the good stuff that goes along with it. Hayden is a great child and I may be being partial, but I think he is the cutest kid in the world..hahaha
Well, you have to admit he is pretty cute..hahaha..
Anyway, I decided to write you a note because you seem to be so confident and it seems as though family means alot to you...and boy does family mean everything to me...Did you treat your alopecia? Or were you one that learned to adjust and live with it? Whatever the decision was or is, you are a beautiful person, and congrats on the wedding!!!!!!!!

Apr 22, 2008
Sherry

I am looking forward to getting to know my new movie star friend..hahaha..thanks for the encouraging words, it means alot..

Apr 22, 2008
Ashley Sutton

hi!! thanks for the comment sorry it took soooo long for me to comment back !! yes it is a wig in the pic. i also wear synthetic wigs i like how they look and usually you can get a more "hip" synthetic one then human hair or at least thats what ive experienced.

Apr 27, 2008
Cheryl, Co-founder

Congratulations on the video! Nice job!

May 4, 2008
kastababy

Cheers Claire!

Sorry I haven't had a chance to introduce myself, but I wanted to take the time to congratulate you on your upcoming marriage and wish you all the best! Love the pics from your bachelorette party!

May 4, 2008
Jill Newman

Hi im Jill. Im a new member and i have been having alot of issues lately dealing with my alopecia. i read that your married and i was wondering how your husbands or past boyfriends dealt with your alopecia and the wigs you wore. I'm wondering because i have a boyfriend and i have recently considered getting a wig for myself and what i am aftraid of is that he will look at me differently and not find me as attractive.

May 5, 2008
Vicktoria (Katya's mom)

Hi Claire, I just wanted to ask you about your experience during your teenage years. My daugher is 12 and is AU for the last 6 month. Her hair started falling out about 1 year ago. Now she is very upbeat and rarely thinks about it. We immediately got her the best and most comfortable wigs and she always wears them. Currently, we are waiting on a vacuum wig. I don't know if, as she gets older, it will become more of a problem for her or once upbeat always upbeat? I'd appreciate any thoughts you have on this. Thanks Vicktoria

May 8, 2008
Vicktoria (Katya's mom)

Thanks for the answer. That makes me feel better. Yes this is a wig. In this picture she had help from her hairstylist so it's perfectly curled. She now also has bangs because of the eyebrows, it's easier for her. I have some pictures with bangs and fake eyebrows. Congrats on the wedding. Thanks so much for the uplifting comments. Vicktoria

May 9, 2008
Michelle Chapman

Hi Claire, looking gorgeous! When I get up to Manchester, we must meet for a drink! Michelle x

May 13, 2008
gerald

You are a lovely lady.
My wife is bald and beautiful with au.
I love the bald look on beautiful women.

So you are from Manchester.
Are you a "City" fan, or a "United" fan?
Who is going to win the European Champions League final this year, Chelsea or Man U?
I am an Americam, but I must tell you, I have been to the west side of London, and I've seen Chelsea play at Stamford Bridge. And I am a Chelsea fan.
But may the best team win.
One thing for sure, it will be a British team that wins Europe this year!

May 15, 2008
Michelle Chapman

I look after meetings in the south west, but would love to get more going on all over.... I've helped NHS Choices with a profile, will check out your video!! I've been working with ITV for a show with Trinny & Susannah called the Great British Body - look out for it at the beginning of June - massive 'big up' for bald chicks!! Take care and keep in touch. Mxx

May 15, 2008
JeffreySF

Congratulations on your nuptuals Claire & Dave!!!
Have a Grand Honeymoon.

Cheers,
Jeff & Leo in San Francisco

May 19, 2008
Cheryl, Co-founder

Congratulations Claire! It looks like the wedding was beautiful and thanks for sharing your photos!

May 19, 2008
Sherry

Hi Claire,
Congratulations! You made a beautiful bride!

May 29, 2008
Sherry

LOL..that made me laugh..you should be very proud of yourself that you took it all in stride..lol..along with the drink you threw back..lol..

May 31, 2008
Katey

Love your wedding dress! :)

May 31, 2008
Yvonne~Yhoney

:) Claire, you still took beautiful wedding pictures regradless of the "Bizarre Alopecia Moment"... lol priceless! :)

Jun 13, 2008
Sherry

Beatiful...absolutely beautiful...I love your dress.

Jun 23, 2008
Billie

Beautiful wedding pictures!!! Thanks for sharing them as well as your bizarre moment!! LOL. Nice to meet you as well.

Jun 24, 2008
Gill

Hi Claire
Your wigs are beautiful, and really look as if it is your natural hair. And you look lovely on your special day.

Oct 1, 2008
Nick

aww thanks =)

how are you?

Oct 2, 2008
emma

hey hun, im from middleton , do you know it, where abouts you from x

Oct 6, 2008
emma

at the moment i can cover it as long as i have it in a pony tail cant have it down no more.. i just have the one patch its quiet big and my hair has thinned out too.. im thinking of shaving it have going for the wig option. went to dermatologist today no sign of regrowth, ive had it for 4mth's just semms to be getting bigger but no other patches which i find the most frustraing i just wish it would either go or grow if that makes sence lol... dermatologist was no help bless him.. i guess ill just have to wait and see but swaying more to shave it also itchyness is driving me mad tooo x

Oct 6, 2008
emma

lol ill have a look at that hun.. ive been looking in that paul hair world in manchester.. im not under any hospital at the moment took them all there time to get me an appointment with dermatologist, he gave me some cream and something to stop the itching, im not sure what to do i just keep thinking at least i can hide it but i feel dead scruffy sorry hun waffling .. x

Oct 7, 2008
emma

hi hunb, theres nothing i can pinpiont to cause im not really a stressful person let things go over my head altho i am a bit of a thinker.. i went dermatologist on monday waited about 2mths for appointment tho and he just said 50-50 no sign of regrowth bit its really big i cant wear my hair down but can cover it in ponytail.. im just that fed up i just want to shave it hun.. im not to sure on what wigs to but didnt relise there so many options and styles ect lol.. my family and friends ok with it think they find it bit difficult to talk about but i just chack a joke and they seem ok .. ive told ppl in work as if i do have brave days wen i hav my hair down but scrapped back in head band i dodnt want them to see and not know what it was plus if i woke one day and i didnt have any best to get it out of way really ... i watched your video i thought it was fab your very brave and your attitude is fab.. im kinda like that no point in getting worked over something i cant change altho id be lying if i said i didnt have down days ... and i promise if i dont use my wigs you can get first dibs lol .. hunni xx

Oct 8, 2008
Nini

Hi Claire, I found out about Alopecia World thru you, I did a search in google and found your youtube video, I loved it. I decided to join and wanted to thank you.

Dec 18, 2008
Nini

Hi Claire,

Well, yes I did watch your video and I really liked it. Your pictures are beautiful and you look great. I also have 3 kids, 2 daughters (11 & 9) and my little prince of 5 months.

I had never heard of Alopecia until it happened to me, and it was so fast, I went from having a very full and healthy hair to having nothing within months, but everything happens for a reason and I know God is with me in the middle of all this.

Thank you so much for sharing your story on that video, it has made a big difference, thank you.

Keep in touch,
Nini

Dec 19, 2008
Karina

Hi Claire...I´m from Argentina...I´m scared cause I can´t stop my hair falling out...my dermatologist affirmed me that is not alopecia but only sress but I´m worried. I want to ask what type of wig do you wear and if it´s comfortable. How do you deal with this issue?

Jul 5, 2009