Lionel

Male

Breda

Netherlands

Profile Information:

Relationship Status:
Single
About Me:
I have alopecia areata, my hobby's are playing guitar, photography, Jeet Kune Do and Eskrima (martial arts).
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):
http://lionelhulsbergen.carbonmade.com

Comment Wall:

  • JeffreySF

    Hi Lionel,
    Welcome to Alopecia World.

    Jeffrey

    Nov 19, 2009

  • Susan - Jon's Mum

    Hi Lionel
    Welcome to Alopecia world.
    I have a 13 year old son with alopecia totalis. He plays a little guitar and would like to buy an electric one. He also loves photography. He just has a digital camera at the moment but is looking at getting a video camera.
    How are you going at the moment?

    Nov 20, 2009

  • JeffreySF

    You have come to the right place then!

    Nov 21, 2009

  • Susan - Jon's Mum

    Hey Lionel
    Just had a look at your photos - they are awesome. I will show Jon in the morning (currently 12am here). You definately have talent there.
    Hope you are well
    Susan

    Nov 22, 2009

  • Roger

    Welcome.

    Roger.

    Nov 22, 2009

  • Susan - Jon's Mum

    Hey Lionel
    I liked your photos. Can you speak English or do you use a translator?
    Do you listen to heavy metal music. Have you heard of Slipknot, Bullet for my valentine,Avenged Sevenfold,Trivium, Disturbed or Metalica? There's a few more but these are my favourite bands at the moment.
    Jon

    Nov 23, 2009

  • Susan - Jon's Mum

    You write well in English. I have heard of All Shall Perish but not actually listened to them.
    What year are you in High School? Or have you finished?
    I'm in my first year of High School. It is boring!
    Jon

    Nov 24, 2009

  • Natalie

    Hi Lionel,

    Yes, I think being open with alopecia definitely helps with the acceptance. You are very strong and courageous for being so young- that is terrifc. I was certainly not that open or strong when I was 17! I think you will find that the more open you are, the more that people respect/look up to you (at least that is what I have found in my case). Your pictures are great, too! I took guitar lessons when I was in high school, but I had to buy a little guitar because my hands are so small that I had a hard time getting all the chords right. Take care!

    Natalie

    Nov 24, 2009

  • Seadra

    We weren't put on this earth to live a normal life I guess!! :)

    Nov 24, 2009

  • Susan - Jon's Mum

    My, first year is going quite well actually. im around the smartest in my year and for my half yearly exams i got straight A's. When i lost most of my hair i decided to shave the rest off so when im older im going to think about buying a fibre optic wigg.
    Jon.

    Nov 25, 2009

  • Susan - Jon's Mum

    Let me know what the wig is like and if you like wearing it.
    And good luck with your final year of school. What are you going to do in college?

    Nov 26, 2009

  • Susan - Jon's Mum

    Hey Lionel
    The wig looks great. Glad you are happy with it! Now all i need do is try to convince Jon to get one.
    Susan

    Nov 29, 2009

  • Susan - Jon's Mum

    Jon said he 'doesn't know' why he doesn't want a wig. Usual teenage response there!
    How are you enjoying your wig? Does it make you feel like going out all the time?
    Susan

    Dec 1, 2009

  • Undiscovered

    Hello,

    How are you?

    Do you shave all of your hair and wear a full wig?

    I am wearing a small piece at the moment, and trying to blend it into the hair I have left,I like the hairstyle you have!

    Dec 1, 2009

  • Ernesto

    Hey bud! Thanks for the add. Hope this thing gets better for you. Stay in touch!

    Dec 2, 2009

  • Robert

    Hi Lionel

    I've just found your blogs and I have to say that you're very brave. I envy your strength as I just fell to pieces when my AA was at it's worst.

    Take care
    Robert

    Dec 10, 2009

  • Robert

    Hey Lionel

    I agree, there's definitely more to life than hair.

    I'm counting myself to be really lucky right now, as I see to be in remission from my AA. I'm cautiously happy... we all know how unpredictable this condition is!

    Thanks for adding me as a friend. Keep in touch
    Robert

    Dec 10, 2009

  • JeffreySF

    Hey Lionel,

    Stopping by to say Hello!

    Jeffrey

    Dec 14, 2009

  • JeffreySF

    Hi Lionel,

    Winter is here. Mind you it's very unlikely we'll get snow in San Francisco.
    Hope you are staying warm and cozy.

    Jeffrey

    Dec 14, 2009

  • Tony Jordan

    Thanks for the welcome.....i play in church mostly....I'm more of a rock blues type player with probably some U2 mixed in there. I think I have diffuse alopecia, gonna find out 4 sure on Monday. I was slowly thinning all over for about 5 years and about a month ago it started coming out all over pretty fast.....seemed like it kicked into overdrive.....definitely struggling with some depression with it, although this site has helped a bit.....I joined a group in Chicago and gonna meet some people on Tuesday.........what type of music do u play?

    tony

    Dec 18, 2009

  • Tony Jordan

    Hi Lionel, wow, superstitious by Adam Rafferty sounded great and that little boy 'Sungha Jung' is something else...thanks for turning me on to that......what kind of blues are you learning and what guys are you listening to?

    Dec 20, 2009

  • Tony Jordan

    cool about the private lesson and getten him to come out and play, way to go....there's a lot of SRV in my playing, I love BB King too as well as Gary Moore and Carlos Santana.......You have to listen to some Albert King too, he was probably the best blues guy, SRV stole a lot of his licks....here's a great album of his
    http://www.amazon.com/Very-Best-Albert-King/dp/B00000IMS7/ref=pd_si... sorry the link is so big

    Dec 21, 2009

  • T

    Hey was up man nice to meet u

    Jan 11, 2010

  • T

    ye i do man :)

    Jan 12, 2010

  • T

    Yes its real but sometimes it sucks

    Jan 12, 2010

  • T

    Its a hastle sometimes ^_^

    Jan 13, 2010

  • T

    I do 2 sometimes its just i dont have eyebrows... and wigs look kind of fake without them and i was suppose to get a new one cause the back is way 2 short on this one... and it never came because they dont have enough cash for like 65 peoples which sucks....

    Jan 14, 2010

  • T

    Ehh ye i have finals 2 they suck so much lol

    Jan 21, 2010

  • T

    or midterms whatver u call them lol

    Jan 21, 2010

  • T

    I love everything ^_^ from normal 2 double is fun all the time i also play guitar when i bored.

    Jan 25, 2010